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Mon, 10 Sep 2007 18:04:20 -0400 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
Dear List,
A handful of replies to the original question about why people resist
being tested for celiac came in after I posted the summary last week.
Responses from the last five writers echo what people have been saying:
The diet
idea of life-long changes is terrifying
Hard to believe wheat or gluten could be bad
Too many flaws in the testing
Denial and fear
Here are some specific cases I thought interesting:
1. One woman's teenagers, who were on gf diet as children, went into
remission (n.b. Peter Green says celiac can "ebb and flow") at
puberty and don't want to hear a word about mother's adult onset
celiac. She speculates that they were more traumatized by having to
follow the diet as young children than she thought.
2. A doctor told relatives who wanted to be tested that without
symptoms, their insurance won't pay.
3. I have a friend who would rather suffer through her years of
chronic fatigue, diarrhea, and many other issues rather than do this
diet. Her kids also have the same problems with chronic diarrhea.
And none of them will listen to the argument about gluten sensitivity
and how this could be an issue if the blood tests are negative.
4. Dtr-in-law, a nurse, who has had IBS for years. She has tried many
kinds of diets, but will not try gluten-free diet. Kids have
problems, too.
Thanks again, everyone.
best regards,
Mary B.
NYC
--
Visit the Celiac Web Page at Http://www.enabling.org/ia/celiac/index.html
Archives are at: Http://Listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC
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