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Hi, 
 
In the CDF newsletter that just came out there was a clip of a journal article 
about a recent study on long-term mortality rates of people with celiac 
disease (link to full article is below).  Well, like many of you I would have 
thought that adult diagnosis would have a higher mortality rate. WRONG!  The 
study indicates that children diagnosed with celiac had a three-fold increased 
risk of long-term mortality.  Most of the deaths were caused by accidents, 
violence, suicide, cancer or cerebrovascular disease.  The study suggests that 
may result from behavioral changes.  
 
I hope this hits home to all the parents of celiac children!  I know I have often 
expressed to many parents that it must be so very difficult to be diagnosed as 
a child with celiac because of the exclusionary effects of this disease.  Many 
of the responses I received were to underplay it by saying they don't know 
what gluten food tastes like so it's not as difficult.  I think this study is clearly 
saying it's not the food nor the damage that gluten has done (otherwise adult 
mortality would have been higher) but rather the social implications may be 
deeper rooted than we care to acknowledge.  Childhood is the formative years 
and it's hard enough without adding a condition as complex as celiac.
 
So, joining or starting a R.O.C.K support group where you live should become a 
passion for you if you are a parent of a celiac child!   If not then make every 
effort to get your celiac children together if not for any other reason than to 
let them know they are not alone!!!! 
 

http://www.medscape.com/viewarticle/555671

If you are not a member, you can join free.  If you send me an email, I will 
forward the full article to you that I sent to my support group.


Some serious things to consider!  Warm Regards, Janet



Janet Kline
Charlotte, NC
Charlotte Celiac Connection
http://www.charlotte-celiac-connection.org
 

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