THERE IS A VERY THIN LINE BETWEEN THIS & THE ASHLEY X CASE. THE
ATTITUDE IS STILL THERE AS TO AN Y ONE PERSONS VALUE. IN A CHILD WITH
A DIAPER CARE WHEN THEY HAVE A PERIOD IS NO BIG THING! JUST A LAZY
CARE-TAKER! WHO WILL DECIDE WHO THIS IS OK FOR & WHO NOT? LOOK AT MANY
ADULTS WHOSE PARENTS PUT THEM IN INSTITUTIONS MANY YEARS AGO WHO AS
THEY HAVE BEEN CLOSED HAVE COME OUT & ARE LIVING IN THE COMMUNITIES
NOW? THIS IS A VERY SORE TOPIC- I FIND THE Ashley X case sickening-
look at little hints as to that families attitude- they hide the faces
of siblings, but not hers! They wanted to keep her small for their
benefit- not hers. Do away with all hormones & you get weak bones,
heart issues- and many other problems. I'm not sure this can be
discussed without emotions-- Joy
On Oct 8, 2007, at 5:57 PM, Kendall D. Corbett wrote:
> Kristina,
>
> What is troubling to me (and many others, I'm sure) is the "slippery
> slope"
> argument surrounding sterilization for someone with a disability. If a
> person who is as severely disabled as the girl in the UK is sterilized,
> where is the line drawn for others with disabilities?
>
> I don't see this one as being as scary as the "Ashley X" situation in
> the
> US, where "Ashley's" parents also had her breast buds removed, and
> other
> growth attenuation procedures performed, but it does make me wonder
> where
> the line will finally be drawn.
>
> Several states performed involuntary sterilizations of people with
> disabilities, including the state where my mother (and later my wife)
> grew
> up. When my mom was going through nurses training, she worked at the
> "Hospital School," where children with severe disabilities were
> educated and
> provided health care services. My wife was later a student there for a
> little bit when she was in grade school, since in the mid 60's, many
> small
> towns in that state didn't have access to the needed services for kids
> with
> disabilities locally. Since my wife wasn't a "permanent" resident at
> the
> school, and her parents would never have consented, it wasn't an
> issue for
> her, But even in the 50's and 60's there were families who felt they
> couldn't adequately meet the needs of their child with a disability.
> In
> these cases the children became "wards of the state," so that they
> could
> meet the financial requirements to receive state services. It's
> families in
> these circumstances that I worry about. In Wyoming, and other states,
> there
> is presently a "push" to re-open or re-populate institutions for
> people with
> disabilities. This push is based on the perceived "need" to keep
> people who
> work at these institutions employed, and a thinly veiled attempt to
> provide
> people with disabilities and their families another "choice" of service
> provision.
>
> I realize that this must be an agonizing decision for parents of
> children
> with disabilities, but feel that in all cases, we should err on the
> side of
> the least permanent option possible.
>
>
> On 10/8/07, [log in to unmask] <[log in to unmask]> wrote:
>>
>> I had a hysterectomy and the doctor said she might take my apendix
>> (but
>> did
>> not) Just to avoid it if it latter had problems... I was OK
>> with that. It
>> is not something you can't live without and it may save surgery
>> later.
>>
>> As to the hyster for the girl. I am all for it. But the mother can
>> do meds
>> to stop period. But I have been on the shot and it made me sick...
>> so I
>> say
>> go with pills. But I can understand wanting it stopped by
>> hysterectomy.
>> That way when the mother dies in years to come at least the girl
>> can't
>> end up
>> pregant in a care home somewhere. Which is what I worry about with
>> my
>> own
>> girl... who is very pertty. SO I REALLY worry.. no that some sick
>> man
>> would
>> care if they are pertty. Here in the US we hear about someone being
>> in a
>> coma
>> or something and having a baby about every year.... just think how
>> many
>> we do
>> not hear about.
>>
>> Plus.... I work in a hospital and see older family members come to our
>> department with diaper soaked and all over the bed.... at least
>> without
>> the period
>> it would not add to the mess.
>>
>> Just my thoughts.
>> kristina
>>
>>
>>
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>>
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>
>
>
> --
>
>
> Kendall
>
> An unreasonable man (but my wife says that's redundant!)
>
> The reasonable man adapts himself to the world; the unreasonable one
> persists in trying to adapt the world to himself. Therefore, all
> progress
> depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950
>
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>
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>
>
Joy C Liebeskind
Coordinator Family to Family Health Information Network
Favor Inc 2138 Silas Deane Highway Suite 103
Rocky Hill, Ct 06067
[log in to unmask]
860-563-3232 Ext 108 866-630-6055 Toll Free
Cell Phone 203-641-0679
Coordinator CT Lifespan Respite Coalition (CLRC)
Medical Home Initiative at CLRC
CTRespite.org [log in to unmask]
860-247-2572 or 860-513-0172
860-247-2572 or 203-272-9058
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