yeah i was leass than a hundred pounds when i was
trying to smack that 250 pounder around. amazing i
actually lay it to him a few times, but, common
sense.... not hardly.
the people assigning duties and i both lacked common
sense in the on the job thing.
--- "Cleveland, Kyle E."
<[log in to unmask]> wrote:
> Linda,
>
> Kids with disabilities try to do 120% better than
> their peers at
> physical activity. To prove to themselves, and
> others, that they CAN do
> it they'll really push themselves too hard and end
> up paying for it
> later in life.
>
> But, it's a thin emotional line that you really need
> to be cognizant of.
> Encourage Case to be as physically active as
> possible and what ever you
> do, don't "baby him" or make a big deal about his
> CP. Being
> overprotective can do a lot more emotional damage
> than rough-housing can
> damage his body. If you can, steer him towards the
> low-impact sports
> like swimming and cycling. Discourage things like
> football and
> wrestling. I think common sense goes a long way
> here.
>
> Case has a leg up on the rest of us codgers on the
> list. Our doctors
> and therapies were stone-age compared to what's
> available to pediatric
> physiatrists, neurologist and surgeons these days.
>
> Kyle
>
> -----Original Message-----
> From: Cerebral Palsy List
> [mailto:[log in to unmask]] On Behalf
> Of Linda Walker
> Sent: Monday, October 01, 2007 2:08 AM
> To: [log in to unmask]
> Subject: Re: Hello again
>
> Yes yes yes this is one of the things I am concerned
> about for Case
> as he tries to keep up with such an active family.
> When I joined the
> list I was thinking of the long term adult outcome.
> I absolutely want
> him in wrist guards and knee pads but I am not the
> decision maker.
>
> At 07:42 PM 9/30/2007, you wrote:
> >i mean continuing to fight to "overcome" in the
> long
> >term was not good for me. some of the things i did
> as
> >a kid to be "normal" instead of accepting the cp
> and
> >adjusting did hurt and some of the things i have
> did
> >as an adult to contine a "normal" life were hurting
> >me. and yes, now life is harder for it. i'd have
> been
> >better off had i not been hard charging going to
> >"overcome this" and took a tact of saying i have cp
> >and it is okay that i can't do ________. you fill
> in
> >the blank. like swimming instead of being normal by
> >tacking a boy 2 1/2 times my weight. or not having
> >sense enough to file a complaint on being given
> duties
> >on my job that was rediculus for someone whose
> hands,
> >arms and neck were dystonic and going ahead and
> >iqnoring what the pain was telling me and "doing my
> >job." only in the past few years have i started to
> >just give myself a break. hey i have cp, you can't
> >expect me to do ___________. fill in the blank.
> >
> >guys take care of yourself, you have cp and there
> are
> >somethings you can't do. you can hurt yourself
> trying.
> >
> >that is what i mean to say. i am not saying don't
> do
> >anything, just give yourself some slack. i did not
> and
> >i am paying for it.
> >
> >--- Linda Walker <[log in to unmask]> wrote:
> >
> > > Ken
> > >
> > > what do you mean overcoming the disability has
> > > hurt me long term. Are you talking about
> injuring
> > > yourself as a kid that makes life harder as an
> > > adult. Swimming is great.
> > >
> > > At 02:40 PM 9/30/2007, you wrote:
> > > >any real exercise i di is supposed to be in a
> > > heated
> > > >swimming pool.
> > > >
> > > >"overcoming the disability" included playing
> sports
> > > >but only sandlot as i could not make the cut on
> an
> > > >organized team. i do remember trowing a kid
> over my
> > > >head in football and he got a offer to play for
> > > >michigan state. so i was rough as h*ll when i
> was
> > > >young.
> > > >
> > > >"over coming the disability" has really hurt me
> > > long
> > > >term.
> > > >
> > > >--- "Cleveland, Kyle E."
> > > ><[log in to unmask]> wrote:
> > > >
> > > > >
> > > > >
> > > > > Manuela-
> > > > >
> > > > >
> > > > >
> > > > > Like several other folks on the list (Kat,
> Ken,
> > > et
> > > > > al) CP hit me with a glancing blow. I'm a
> left
> > > > > hemi, but I wasn't impaired much growing
> up-no
> > > > > speech or cognitive issues and my spasticity
> was
> > > > > more of a cosmetic issue than a disability.
> In
> > > high
> > > > > school I ran cross country and let's just
> say I
> > > was
> > > > > not always last in the races.
> > > > >
> > > > >
> > > > >
> > > > > CP became an issue for me in my late 20s and
> > > early
> > > > > 30s-the over-use problem that Kat wrote
> about.
> > > The
> > > > > first indication that I was having problems
> was
> > > in
> > > > > 1992 when I was training as a cyclist for
> the
> > > > > Paralympics in Barcelona. I tore my
> achilles
> > > during
> > > > > a qualifying ride. During my recuperation I
> had
> > > an
> > > > > MRI that showed a lot of joint damage on the
> > > > > affected side-left hip, knee, shoulder.
> > > > >
> > > > >
> > > > >
> > > > > My mobility really declined from 1992 to
> 2000.
> > > The
> > > > > biggest problem was fibromyalgia. I was
> treated
> > > > > with opiates for the pain and did not have
> any
> > > other
> > > > > therapy.
> > > > >
> > > > >
> > > > >
> > > > > I live near Columbus, Ohio and I found a
> great
> > > > > doctor at the Ohio State University's
> Physical
> > > > > Medicine department. He got me off of the
> > > opiates
> > > > > and started me on a PT regimen that
> consisted
> > > mostly
> > > > > of warm water therapy and myofascial
> release.
> > > > >
> > > > >
> > > > >
> > > > > Today, I feel like I am back to the point I
> was
> > > > > twenty years ago. I wear an articulated AFO
> on
> > > my
> > > > > left leg, get Botox (300 units) in my left
> > > medial
>
=== message truncated ===
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