Hi Greta,

A few years ago I put together a list of books about/by people with 
disabilities for the women with disabilities group I coordinate.  I've 
cut and pasted the books from the Auto/Biographical section for you.  
I've been meaning to update it and also add in books about/by men with 
disabilities to make a more general list - but I've been so busy (as 
well as just bone-idle with my do-to list), that I haven't gotten around 
to it yet.  I don't know if you'll be able to get hold of the 
Australian/NZ books, but I've left them in there in case anyone else is 
interested.


Annie's Coming Out - Rosemary Crossley and Anne McDonald.**
(Cerebral Palsy - Australian)

Recovering: A Journal - May Sarton
(Depression)

After the Stroke: A Journal - May Sarton
(Stroke)

Bird and other Writings on Epilepsy - Susan Hawthorne**
(Epilepsy - Australian)

Listening: Ways of Hearing in a Silent World - Hannah Merker
(Hearing Impairment)

Just An Ordinary Kid - Lisa Vasil**
(Cerebral Palsy - New Zealand)

An Unquiet Mind: A Memoir of Moods and Madness - Kay Redfield Jamison
(Manic Depression)

Daughter of the Queen of Sheba - Jacki Lynden
(Manic Depression)

Spasm: A Memoir of Lies - Lauren Slater
(Epilepsy)

Autobiography of a Face - Lucy Grealy**
(Facial Disfigurement)


I, Alison: Reaching for a Life of My Own - Alison French with Veronica
Groocock**
(Cerebral Palsy)


An Iranian Odyssey - Gohar Kordi**
(Vision Impairment)

Somebody Somewhere
Nobody Nowhere
Like Color to the Blind - Donna Williams**
(Autism - Australian)

Rusty - Carol Gino**
(Epilepsy)

Why Can't Sharon Kowalski Come Home? - Karen Thompson and Julie
Andrzejewski
(Acquired Head Injury & Lesbian Issues)

I've **'ed the ones that are definitely have experience of childhood 
disability in them - ie before the age of about 18.

Good luck with the course,  it sounds great!

Rayna


greta von der luft wrote:

> Hello,
> I am teaching a pediatrics neuro course to physical therapy students. In
> order to try to make them more empathetic & understanding (or attempt 
> to if
> needed), I am in search of a reading list. Specifically, I was 
> wondering if
> you can recommend any books non fiction, biographical, or 
> autobiographical
> about children/ adults with disabilities and/or their caregivers. I am 
> not
> so much looking about books which cover MS (multiple sclerosis), ALS (lou
> gherig's), CVA (stroke) but instead health conditions that are found in
> children and in adults like CP, MD (muscular dystrophy), SMA (spinal
> muscular atrophy), TBI (traumatic brain injury) etc. The parental 
> aspect of
> caring/advocating for a child with a disability would be welcomed as 
> well.
> So the story could be told from the viewpoint of the individual with a
> disability or his/her caregiver.
>
> Let me assure you that adults with CP will be considered, because 
> children
> with CP do become adults with CP. The reason why I am steering away 
> from MS,
> ALS, CVA is because it is a pediatrics course and they already had an 
> adult
> neuro course.
>
> Your suggestions would be greatly appreciated.
>
> Please and Thank you,
>
> Greta
>
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