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Subject:
From:
Linda Macaulay <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Thu, 19 Oct 2006 23:12:07 -0400
Content-Type:
text/plain
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Greta - Congrats on the new job!  How does it feel to have that dissertation 
DONE?  I am probably about a year away from starting mine, so knowing that 
you did it gives me hope I will too! :)

Linda
----- Original Message ----- 
From: "greta von der luft" <[log in to unmask]>
Newsgroups: bit.listserv.c-palsy
To: <[log in to unmask]>
Sent: Thursday, October 19, 2006 4:43 PM
Subject: Re: Extreme Home Makeover


> Hello,
>
> I am now a professor at University of Wisconsin-La Crosse in the DPT
> program. We, another professor and I, were talking about people without
> disabilities and the attitudes that we may  develop towards individuals 
> with
> disabilities. With your permission, I would like to forward Gary's and
> Kendall's comments to her. She may or may not use your comments in class.
>
> I think both of you raise very valid points that need to be considered 
> when
> respecting individuals with disabilities. We as people without 
> disabilities
> should not minimize your capabilities and physical impairments, but at the
> same time we should realize how your physical disability may or may not
> affect your life, activity, and participation in society.
>
> I hope I did not make too much of a generalization that may offend anyone.
> I hope I make sense in my generalization and my small rant. Also, I hope I
> did not offend anyone with my joining in and contribution to this
> discussion.
>
> Thank you,
>
> Greta
>
> On 10/19/06, Kendall David Corbett <[log in to unmask]> wrote:
>>
>> Gary, your last sentence distilled my thoughts about most (not all)
>> media portrayal of disability perfectly, especially Jerry Lewis and the
>> other pityathons!
>>
>>
>> >"Thank God!!  Another problem wiped away in an hour,=20
>> >and ain't we glad when we go to bed at night that=20
>> >we ain't disabled."
>>
>>
>> Kendall=20
>>
>> An unreasonable man (but my wife says that's redundant!)
>>
>> The reasonable man adapts himself to the world; the unreasonable one
>> persists in trying to adapt the world to himself. Therefore, all
>> progress depends on the unreasonable man.
>>
>> -George Bernard Shaw 1856-1950
>>
>> -----Original Message-----
>> From: Gary Peterson [mailto:[log in to unmask]]=20
>> Sent: Wednesday, October 18, 2006 11:45 PM
>> To: [log in to unmask]
>> Subject: Re: [C-PALSY] Extreme Home Makeover
>>
>> I watched part of this - but didn't see that he got an augmentive=20
>> communications device - did ABC give him one?  I know the main
>> focus was on his mother and the Little League baseball team, but I
>> did think they should have thought of enabling him to communicate
>> his needs - after all, his mother isn't going to be around forever,
>> ascruel as that sounds.
>>
>> Kat
>>
>>
>> Kat,
>>
>> The point you make here is by no means cruel.  I have lots of
>> reaction from watching this.  This was my first time watching the
>> show.  Generally I stay away from all these reality shows just
>> because they all want us to believe they can take a sad or
>> unfortunate situation and make it all better in an hours time.  I
>> think we all no, it just ain't so.  The only reason I watched it
>> was because of Anthony's recommendation.
>>
>> Now I'm  far from even half way knowledgeable when it comes to
>> building a house, but I have to think even with all those
>> volunteers working together, it had to take a minimum  of 6 months
>> to do what all those people did.  Speaking of time, does anyone
>> here know how long the entire show took to finish?  I'm guessing
>> lots longer then ABC would like us to believe.  And let us not
>> forget the probably tons of material that didn't make the final
>> cut.
>>
>> I give the show high praise because in the end, it did what it set
>> out to do.  I mean the family got their house and I guess that was
>> the bottom line.  What bothers me is how the show chose to get
>> there.  I will probably take a lot of heat for what I'm about to
>> say here, but so be it.
>>
>> After watching the first 10 minutes or so, I felt as if I were
>> watching something straight out of the Jerry Lewis telethon.  In
>> the beginning we get introduced to Aaron and his family.  Then the
>> host of the show spends waaay to much time telling Mom how great
>> and wonderful she is because of all she does for Aaron.  As much as
>> they tried to show us that Aaron was just your average 14 year old,
>> sadly I for one was left with just the opposite feeling.  I think
>> the message was very deliberately  designed to say:
>> "here's this severely disabled kid, and we want to keep pounding
>> that point into you are audience at home, so   whatever you do
>> don't change the channel, because by the end of our show, are
>> friend Aaron and his Mom will magically be able to sweep Aaron's
>> disability under the rug, and we can all go home and live happily
>> ever after, and won't we from Extreme Makeover  be really cool."
>>
>> I also thought the show  put to much emphasis on Aaron and his Mom.=20
>> I wanted to know lots more about the relationship between him and
>> the rest of his family.  More interaction between Aaron and his
>> brother and sister.  For those of you who don't know me, as well
>> has having C-P, I'm also totally blind.  So before watching the
>> show, I thought of having my Supported Living staff watch the show
>> with me.  But after having it on for the first 5 minutes, I decided
>> there was enough dialog and sound so I let myself just imagine the
>> visuals on my own.  So There's a chance there were visual parts
>> that may have addressed some of my above concerns.
>>
>> This show  might have had great potential.  But with the media's
>> across the board attitude towards disability, in my view it fell
>> way short of the mark.  Once again the media has left those nice=20
>> average Americans who would rather take their queues about what it
>> meansto be disabled from people like Jerry Lewis and his kids with
>> a feeling of:=20
>> "Thank God!!  Another problem wiped away in an hour,  and ain't we
>> glad when we go to bed at night that we ain't disabled."
>>
>> Thanks to all for reading my rant.
>>
>> Gary
>>
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