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Sender:
Cerebral Palsy List <[log in to unmask]>
Date:
Mon, 8 Oct 2007 15:24:30 -0700
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Cerebral Palsy List <[log in to unmask]>
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From:
ken barber <[log in to unmask]>
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i am not sure it sould be discussed without emotion. 

--- Joy Liebeskind <[log in to unmask]> wrote:

> THERE IS A VERY THIN LINE BETWEEN THIS & THE ASHLEY
> X CASE. THE 
> ATTITUDE IS STILL THERE AS TO AN Y ONE PERSONS
> VALUE.   IN A CHILD WITH 
> A DIAPER CARE WHEN THEY HAVE A PERIOD IS NO BIG
> THING! JUST A LAZY 
> CARE-TAKER! WHO WILL DECIDE WHO THIS IS OK FOR & WHO
> NOT? LOOK AT MANY 
> ADULTS WHOSE PARENTS PUT THEM IN INSTITUTIONS MANY
> YEARS AGO WHO AS 
> THEY HAVE BEEN CLOSED HAVE COME OUT & ARE LIVING IN
> THE COMMUNITIES 
> NOW?   THIS IS A VERY SORE TOPIC- I FIND THE Ashley
> X case sickening- 
> look at little hints as to that families attitude-
> they hide the faces 
> of siblings, but not hers! They wanted to keep her
> small for their 
> benefit- not hers. Do away with all hormones & you
> get weak bones, 
> heart issues- and many other problems.    I'm not
> sure this can be 
> discussed without emotions--  Joy
> 
> On Oct 8, 2007, at 5:57 PM, Kendall D. Corbett
> wrote:
> 
> > Kristina,
> >
> > What is troubling to me (and many others, I'm
> sure) is the "slippery 
> > slope"
> > argument surrounding sterilization for someone
> with a disability.  If a
> > person who is as severely disabled as the girl in
> the UK is sterilized,
> > where is the line drawn for others with
> disabilities?
> >
> > I don't see this one as being as scary as the
> "Ashley X" situation in 
> > the
> > US, where "Ashley's" parents also had her breast
> buds removed, and 
> > other
> > growth attenuation procedures performed, but it
> does make me wonder 
> > where
> > the line will finally be drawn.
> >
> > Several states performed involuntary
> sterilizations of people with
> > disabilities, including the state where my mother
> (and later my wife) 
> > grew
> > up.  When my mom was going through nurses
> training, she worked at the
> > "Hospital School," where children with severe
> disabilities were 
> > educated and
> > provided health care services.  My wife was later
> a student there for a
> > little bit when she was in grade school, since in
> the mid 60's, many 
> > small
> > towns in that state didn't have access to the
> needed services for kids 
> > with
> > disabilities locally.  Since my wife wasn't a
> "permanent" resident at 
> > the
> > school, and her parents would  never have
> consented, it wasn't an 
> > issue for
> > her,  But even in the 50's and 60's there were
> families who felt they
> > couldn't adequately meet the needs of their child
> with a disability.  
> > In
> > these cases the children became "wards of the
> state," so that they 
> > could
> > meet the financial requirements to receive state
> services.  It's 
> > families in
> > these circumstances that I worry about.  In
> Wyoming, and other states, 
> > there
> > is presently a "push" to re-open or re-populate
> institutions for 
> > people with
> > disabilities.  This push is based on the perceived
> "need" to keep 
> > people who
> > work at these institutions employed, and a thinly
> veiled attempt to 
> > provide
> > people with disabilities and their families
> another "choice" of service
> > provision.
> >
> > I realize that this must be an agonizing decision
> for parents of 
> > children
> > with disabilities, but feel that in all cases, we
> should err on the 
> > side of
> > the least permanent option possible.
> >
> >
> > On 10/8/07, [log in to unmask]
> <[log in to unmask]> wrote:
> >>
> >> I had a hysterectomy and the doctor said she
> might take my apendix 
> >> (but
> >> did
> >> not)  Just to avoid it if it latter had
> problems... I was OK
> >> with  that.  It
> >> is not something you can't live without and it
> may save surgery  
> >> later.
> >>
> >> As to the hyster for the girl.  I am all for it.
> But the mother can
> >> do  meds
> >> to stop period.  But I have been on the shot and
> it made me sick... 
> >> so  I
> >> say
> >> go with pills.  But I can understand wanting it
> stopped by  
> >> hysterectomy.
> >> That way when the mother dies in years to come at
> least the  girl 
> >> can't
> >> end up
> >> pregant in a care home somewhere.  Which is what
> I worry  about with 
> >> my
> >> own
> >> girl... who is very pertty.   SO I REALLY worry..
> no  that some sick 
> >> man
> >> would
> >> care if they are pertty.  Here in the US we hear 
> about someone being 
> >> in a
> >> coma
> >> or something and having a baby about every 
> year.... just think how 
> >> many
> >> we do
> >> not hear about.
> >>
> >> Plus.... I work in a hospital and see older
> family members come to our
> >> department with diaper soaked and all over the
> bed.... at least 
> >> without
> >> the  period
> >> it would not add to the mess.
> >>
> >> Just my thoughts.
> >> kristina
> >>
> >>
> >>
> >> ************************************** See what's
> new at
> >> http://www.aol.com
> >>
> >> -----------------------
> >>
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>
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> >>
> >
> >
> >
> > -- 
> >
> >
> > Kendall
> >
> > An unreasonable man (but my wife says that's
> redundant!)
> >
> > The reasonable man adapts himself to the world;
> the unreasonable one
> > persists in trying to adapt the world to himself.
> Therefore, all 
> > progress
> > depends on the unreasonable man.
> >
> > -George Bernard Shaw 1856-1950
> >
> 
=== message truncated ===



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