<<Disclaimer: Verify this information before applying it to your situation.>>
========================= News Highlights
1. Dr. Gomez (a Cocoa Beach GI) will be the guest speaker at the Cocoa
Beach meeting on August 13, 1995. The meeting starts at 1:00 PM in the
Cape Canaveral Hospital auditorium. The subject will be interesting
items from the Baltimore Conference.
2. Pat Garst, one of the original forces in improving the lives of US
celiacs passed away on April 16, 1995 in Frankfort Kentucky. Pat will
always be remembered for her work as one of the initial organizers of
the Midwestern Celiac Sprue Association. She was a respected author
and poet. Pat will be missed, but what she started will continue as a
greater understanding of CD is obtained by everyone.
3. Gluten-Free Living is a new professional newsletter and resource
for people with gluten intolerance. The first and future issues are
reported to contain articles on: in-depth features in the areas of
health, science, medicine, dietetics, nutrition, genetics, psychology,
and food; answers from experts, case studies, recipes.
Some of the future articles are:
1. Medication and Gluten Intolerance: What to do when you can't say no.
2. Pregnancy and Celiac Disease: A guide for Parents-to-Be.
3. The Genetics of Celiac Disease: Understanding the Risk Factors.
4. What's in a Name A Guide to Dermatitis Herpetiformis.
Subscriptions are: $29.00 (6 issues) or $49.00 (12 issues - 2 years).
They may be requested by submitting a subscription request to: Gluten-
Free living, PO Box 105, Hastings-on-Hudson, NY 10706.
4. Against the Grain: The Slightly Eccentric Guide to Living Well
Without Gluten or Wheat by Jax Peters Lowell turn a serious diet into a
witty and wise survival guide. The book contains chapters on
restaurant assertiveness, allergy etiquette, traveling with a special
diet and recipes from 12 chefs. Menu masters in 13 languages are
included. One source is the Gluten-Free Pantry at a cost of $22.50.
5. Celiac Disease The Dark Side of the Gastrointestinal Planet is a
two day symposium on the epidemiology, pathology, diagnosis, and
treatment of the largely undiagnosed disease. Sponsored by the
University of Maryland School of Medicine in Baltimore Maryland on July
14-15, 1995. For further information contact Vicky Roach at the
Division of Pediatric Gastroenterology and Nutrition, 22 Greene St.
N5W70, Box 140, Baltimore, MD 21201 (410) 328-0812 or Annette Bentley,
[log in to unmask] The noted celiac presenters are: Dr. James
Stephen, Dr. Auricchio Salvatore, Dr. Joseph Murray, Dr. Ivan Hill, Dr.
Maki Markuu, Dr. Guandalini Stefano, and Nancy Patin Falini M.A., R.D.
6. CSA/USA Annual Conference is October 6 - 8 at the San Francisco
Airport Marriott. For details contact CSA at PO Box 31700, Omaha, NE
68131 (402) 558-0600, Internet: [log in to unmask]
7. October is considered to be Celiac Sprue month by several national
groups in the US and Canada.
8. Who says that GF must always be plain: A Wyoming celiac won the
All American City Celebration Grand Prize on September 23, 1994, for
her apple pie. Using the recipe (Donna Jo's Dream Pastry) from Bette
Hagman's second cookbook, she demonstrated that GF food is excellent.
9. Disaster Preparedness: The possibility of being evicted from your
home by a major natural disaster is not limited to certain dates. In
Florida, the summer and hurricane season go hand in hand. This is not
the only natural disaster; floods and fires are examples that can
happen at anytime. It is critical that you plan several courses of
action. Consider adding Ensure or Ensure Plus to your stockpile of
emergency rations. These GF products can supplement any available GF
foods to accomplish a well balanced meal. Additional thoughts on
disaster preparedness are available in previous issues of The
ActionLine.
10. US Support Groups: The ActionLine believes in the benefits of
attending a local support group meeting and whenever possible,
information on local groups is passed along about a local group to
support the resolution of a question. These are the known support
groups. Any additions would be appreciated or anyone that desires the
address may drop Mike Jones a note for the address of a group in an
area that you will be visiting or near a relative.
Birmingham, AL Cocoa Beach, FL Metairie, LA
Bisbee, AZ Crystal River, FL Lutherville, MD
Fountain Hills, AZ Jacksonville, FL Attlenboro, MA
Mountain Home, AR Lutz, FL Boston, MA
Tucson, AZ Mary Ester, FL Sommerville, MA
Mountain Home, AK Miami, FL Flint, MI
Rogers, AK Orlando, FL Holly, MI
Carlsbad, CA Sarasota, FL St. Louis Park, MN
Freestone, CA Tallassee, FL Ocean Springs, MS
Garden Grove, CA Tampa, FL Bozeman, MT
Modesto, CA Zephyrhills, FL Elk Creek, MO
Piedmont, CA Smyra, GA Jackson, MO
Rancho Cordova, CA Elmhurst, IL Liberty, MO
Redlands, CA Northbrook, IL St. Louis, MO
San Diego, CA Rockford, IL Henderson , NE
San Rafael, CA Washington, IL Lincoln, NE
Stockton, CA Fishers, IN Omaha, NE
Studio City, CA West Lafayette, IN Henderson, NV
Auroa, CO Carroll, IA Ithaca, NY
Colorado Springs, CO Waverly, IA Hampton, NH
Glastonbury, CT Leavenworth, KS Long Branch, NJ
Naugatauk, CT Merriam, KS Marlton, NJ
Thomaston, CT Topeka, KS Old Bridge, NJ
Wilmington, DE Wichita, KS West Orange, NJ
Washington, DC Baton Rouge, LA Westwood, NJ
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Albuquerque, NM Perrysburg, OH Houston, TX
Albany, NY Westlake, OH Merkel, TX
Binghamton, NY Morris, OK Midland, TX
East Auroa, NY Oklahoma City, OK San Antiono, TX
Franklin Square, NY Bend, OR Texarkana, TX
Jamesville, NY Portland, OR Murray, UT
New York, NY Salem, OR Virginia Beach, VA
Penfield, NY Columbus, PA Wirtz, VA
Rochester, NY Flourtown, PA Seattle, WA
Staten Island, NY McVeytown, PA Tacoma, WA
White Plains, NY Philadelphia, PA Appleton, WI
Lumber Bridge, NC Pittsburg, PA Madison, WI
Raleigh, NC Coventry, RI Wauwatosa, WI
Weaverville, NC W Columbia, SC Powell, WY
Oakes, ND Nashville, TN
Cincinnati, OH Coppell, TX
Fairborn, OH FT. Worth, TX
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