Gary, I would say person A needs to grow up, or at least get s communication device, because if he's not mildly mentally delayed, there's no sense of him resorting to such juvenile behavior.
I have never heard of anything medical which could explain the ptoblem. Social rebellion couls explain it, I would imagine, but nothing medical. Beth?
If Bobby were here, I wonder if he'd know.
---- Original message ----
>Date: Fri, 14 Sep 2007 20:51:51 -0500
>From: Gary Peterson <[log in to unmask]>
>Subject: CP and behavior
>To: [log in to unmask]
>
>Hi all,
>
>So I have some medical questions here, and I'm trying to find
>out if there's any connection between Cerebral Palsy and these
>other medical issues if that's indeed what they are. I'm very
>weak in the area of medical terminology so I ask your indulgence
>while I stumble my way through. I'll set this up as best I can
>via fictitious example.
>
>So we have two people. Person A and person B. Both can be male
>or female. Person A has Cerebral Palsy from birth, and uses an
>electric wheelchair. They are in there mid to late 20's and
>have severe speech limitations. They have lived independently
>in their community for a little over two years and have 24-7
>staffing.
>
>Person B is the primary staff person for person A. Among other
>duties, they assist person A in finding and hiring other staff.
>All staff for person A are in there early to mid 20's.
>
>Since moving out on their own, person A has always bin plagued by
>an unusually high amount of staff turnover. Usually on an
>average of every two weeks to a month. Person B is told person A
>is very hard to work with. Person B is told, person A isn't very
>patient when it comes to working with staff to help better
>understand them, and They loose their temper to the extreme.
>At times when they don't feel they're being understood, they will
>often at the top of their lungs order staff to just go away and
>leave them alone. Then person A just stays in their room
>refusing to say or do anything. They will often behave in this
>manner for up to three hours at a time.
>
>Also When person A is in this state, they will take their anger
>out on staff with frequent bouts of wetting them sells. There
>are staff past and present who feel person A is deliberately
>wetting them sells as a way of getting back at one particular
>staff or another. There have also been incidents when person A
>often puts them sells and staff at great risk. On more then
>one occasion, person A has gone into the street after being
>advised by their staff that it's not safe to do so. Staff
>describes the look on person A's face as one of: "Don't tell me
>what to do, I'll go in the street if I want to!!"
>
>Person A has also been approached by total strangers in the
>presents of staff, and told how it's not a good idea to just dart
>out into the street like that in their wheelchair.
>
>When person B sits down with person A and shares the information
>given to them by the rest of the staff, after some hesitation,
>person A tells person B they are aware of how angry they get, but
>they cannot give any reason for why they get so angry. They tell
>person B when they start to get angry, they try and stop them
>sells but they just cant. Person B has advised person A that if
>their anger continues unchecked, at some point, it may become
>really hard to find adequate staff. Person B also tells person
>A he has heard through the grapevine that person A is getting a
>reputation in the community as someone to stay away from. Person
>B has tried to assist person A in coming up with ways of trying
>to deal with their anger. They've talked about everything from
>person A just going outside for a while, to slow breathing
>exercises. While these kinds of things seem to work now and
>then, often they end up being no more then a temporary band aid
>with the underlying issues just waiting to surface all over
>again.
>
>Now if the above scenario were a real life situation, and if one
>of my co workers asked me what my thoughts were about person A,
>I would say they were someone who was still adjusting to living
>on their own. Someone without a lot of maturity or life
>experience. Someone who is still learning just who they are and
>what they want their life to look like. So there for, they have
>a right as all of us do to make misstates along the way. Even at
>those times when they end up putting their independence at great
>risk. Someone who is justifiably frustrated do to the constant
>challenge of having to make them sells understood to all those
>around them. Or they might just be a real punk who just doesn't
>care about how their behavior affects those around them.
>
>However at the same time I wonder. I wonder if there are issues
>being overlooked regarding person A. So my questions to all of
>you are these:
>With all the information I've given you in the above fictitious
>example, aside from Cerebral Palsy, are there other medical
>issues going on here? Is there some kind of cross over or hard
>wire disconnect in person A's brain to where something gets
>switched on or off, and the only way person A can express them
>sells is by wetting them sells? If so, is this directly related
>to Cerebral Palsy or could there be totally separate issues
>going on here? If this is a medical condition, is there a
>specific name for it? If this is directly related to Cerebral
>Palsy what is the connection? Could Someone direct me to a site
>where I might learn more about these issues?
>
>Thanks in advance for any and all help, and everyone have a
>greaaaat weekend!!
>
>See ya-Gary
>
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