Susan,

My wife Janet (who also has CP) and I "feel your pain" (figuratively if not
literally). We're both 47.  We've both got arthritis in several areas of our
bodies and degenerative disk disease as well as repetitive strain injuries
in our better hands and arms.

Ken,

You asked once how the Sonocur therapy worked for Janet's arms.  I wish I
could say that it was a great success, but it wasn't.  I'd say she's gtten
about a 10 percent improvement.  The orthopod says it may take up to six
months for the maximum effect to be seen, so we'll hold on a little longer.
By about the end of February, we'll look at nerve conduction studies and
possibly surgery from there.

 I think we need to approach a major university and get them to do a study
on "Aging with CP" or possibly aging with other significant disabilities as
well.  I'd suggest UW (Wyoming), as that's where I work, but we'd need a
more major university that has access to more people.  Maybe we could get
funding from ADD (Administration on Developmental Disabilities) or RSA
(Rehab Services Administration) to fund it.  I'll check it out @
www.grants.gov later today.

On Jan 30, 2008 9:11 PM, ken barber <[log in to unmask]> wrote:

> you do have our understanding as it appears to get us
> all.
>
> --- Susan Moskowitz <[log in to unmask]>
> wrote:
>
> >      Aging with CP has caught up with me too, as of
> > yesterday.  I banged up my right knee a few days ago
> > just going  about my normal activities, no big deal.
> > Only problem was pain kept getting worse not better,
> > despite my efforts to rest and prevent further
> > strain. I gave in and visited the local emergency
> > room yesterday, where I was promptly diagnosed with
> > a badly bruised kneecap and osteoarthritis!  I am
> > now home with instructions to take it easy for
> > several days and swallow Advil four pills at a
> > time,every eight hours until I can arrange an
> > appointment with an orthopedist.   My age as of
> > yesterday,46 years, 5 months,9 days.
> >
> > Susan
> --
> Kendall
>
> An unreasonable man (but my wife says that's redundant!)
>
> The reasonable man adapts himself to the world; the unreasonable one
> persists in trying to adapt the world to himself. Therefore, all progress
> depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950
>

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