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Subject:
From:
ken barber <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Tue, 5 Sep 2006 17:49:41 -0700
Content-Type:
text/plain
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we'd mind if you did not keep us up to date, our new
friend. 

--- Mary Katherine Powers <[log in to unmask]> wrote:

> hello,
> 
> thanks to everyone who put up with my complaining
> about muscle 
> stiffness and suggested I get a diagnosis.  I'm
> going to see Dr. 
> Charles Silberstein of the orthopedic outpatient
> clinic Thursday 
> morning.  I talked with the nurse and explained I do
> not have a 
> diagnosis, but when she heard I was a preemie with
> delayed development 
> (I walked late and walked on my toes for a while)
> she said that the Dr. 
> evaluates preemies as well.  I wanted to make sure
> that he wouldn't be 
> angry at me for wasting his time if it turned out
> that my only problem 
> is being out of shape.  She said it was appropriate
> to see him.
> 
> At least this way, it will be over with soon, one
> way or the other.  I 
> already think Kennedy Krieger is going to help me
> more than the PTs 
> I've seen thus far.  She asked if I had any x-rays
> done and I said no.  
> Then I started wondering to myself, I wonder why
> not, since 2 PTs told 
> me I'm walking out of alignment, and one blamed bone
> structure, and 
> then said there was nothing I could do about it
> except stretch.
> 
> 4 PTs have failed so far because I can't do the
> stretching they 
> proscribe.  It pretty much renders me immobile. 
> Maybe I'm just so out 
> of shape that I can't stretch much, but I have tried
> to be very, very 
> careful and never stretch to the point of pain.  The
> last straw was the 
> PT last Friday assuring me that the stretches
> wouldn't hurt, and - well 
> - although I did a lot less than he said to do, they
> hurt!
> 
> thanks for all of your support.  If you don't mind,
> I'll let you know 
> what the outcome is.
> 
> Mary Katherine
>
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