in 1986 I spent a week on Oahu, I think, on a beach called waikiki.
wonderful.
I've always heard Maui was extra magical. I expect I will try to take
several day trips to other islands. I might even try snorkeling if they
have a mask that i won't have to put my mouth around. Hmm, perhaps I will
run into an old bf who was a diving instructor. that would be a trip.
Ken, I frequently get upgraded to first class because I can't walk all the
way back to coach, and so, often if they have available seats we get free
upgrades and let me tell you: You don't want to be in anything less for a
long trip like to down-under! your poor neck would be a mess! I hope Judy
wins a lottery! anyway, talk to a travel agent to get those good seats
because I don't think they don't sell them over the net.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[log in to unmask]
"What is real but compassion, as we move from birth to death?"
~~Greg Brown~~
> [Original Message]
> From: ken barber <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 11/22/2005 8:39:13 PM
> Subject: Re: was: My water-retention problem now: traveling plans.
>
> i actually liked the big island more than maui or
> ouhu, but liked ouhu better than maui. although maui
> has it's own character to offer. you will like maui.
> how long you going to be there? if you can visit
> more than one island i suggest it. i'd like to visit
> all
> of them.
> i think your dad is great to send you.
>
> since we are talking travel, i have enough frequent
> flyer miles in one accoubt for judy and i to go
> business class to austrailia and new zealand. in a
> few years we'll have first class mileage. i do not
> know how much difference there is between first class
> and business class as far as perks and confort for
> international flying. don't know what is best way to
> approach seeing the most of both countries. also could
> have another stop on the way back. i would want this
> to be about 4-6 weeks trip. will be only trip of this
> magnatude that we ever take unless judy wins a lottery
> or something.
>
>
>
> > >guess what! My dad's sending me & a helper to
> > Maui
> > > for my big 50th
> > > birthday! I'm really jazzed!
> > >
> > > Mag
> > >
> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> > > [log in to unmask]
> > >
> > > "What is real but compassion, as we move from
> > birth
> > > to death?"
> > > ~~Greg Brown~~
> > >
> > >
> > > > [Original Message]
> > > > From: ken barber <[log in to unmask]>
> > > > To: <[log in to unmask]>
> > > > Date: 11/22/2005 1:53:44 PM
> > > > Subject: Re: My water-retention problem
> > > >
> > > > i see a dystonia specialist and this is
> > something
> > > that
> > > > people with dystonia can do is to foll a body
> > part
> > > to
> > > > relax. i do this on a regular basis that is to
> > > fool
> > > > one part to relax at least temporarily. you
> > can't
> > > stay
> > > > tense in one place to relax another one all the
> > > time,
> > > > but, i do give the worse place a break for a
> > short
> > > > time.
> > > >
> > > > --- Jonathan Rand <[log in to unmask]> wrote:
> > > >
> > > > > My feet r very tender, I think because of
> > > abnormal
> > > > > stresses put on them. It
> > > > > used 2 be much worse. When symptoms of
> > chemical
> > > > > sensitivity first started
> > > > > creaping up on me, I didn’t no what was
> > > happening.
> > > > > My movements became more
> > > > > normal at first. Then I became very sleepy
> > all
> > > the
> > > > > time. Sometimes my
> > > > > movements became A LOT worse! Neck spasms
> > were
> > > > > choaking off blood 2 my
> > > > > brain, (or something like that). Anyway, my
> > > feet
> > > > > were getting soar from
> > > > > walking “wrong” I guess. 4 a few years, I
> > wore
> > > > > extra large shoes, & I wore
> > > > > them on the wrong foot, (left on right, etc.),
> > > to
> > > > > stop my feet from rubbing
> > > > > on the shoes. Getting my toenails cut was
> > like
> > > open
> > > > > heart surgery!
> > > > >
> > > > > But after I learned how 2 control the chemical
> > > > > sensitivity, my mobility
> > > > > problems seemed 2 “stabolize,” & walking
> > became
> > > much
> > > > > easier. I still don’t
> > > > > / can’t walk without shoes because my toes
> > curl
> > > up
> > > > > under my feet, & they wud
> > > > > drag along the ground, (and that HURTS), but
> > > since
> > > > > my doctors weren’t really
> > > > > helping, I felt I was forced 2 try stuff on my
> > > own,
> > > > > & maybe I was somewhat
> > > > > successful.
> > > > >
> > > > > I still hate getting my toenails cut but it’s
> > a
> > > > > thousand times easier now…
> > > > >
> > > > > I don’t know if other people can do this…
> > Maybe
> > > I’m
> > > > > weird. But at 1 point
> > > > > I found that I was able 2 relax my feet wile
> > > > > walking, if I tensed up
> > > > > “something else.” Like my legs, (or another
> > > part of
> > > > > my body). Then my toes
> > > > > didn’t curl up, & my feet didn’t turn in as
> > > much.
> > > > >
> > > > > But I have ATHETOSIS as well as spasticity.
> > In
> > > som
> > > > > cases I get to CHOOSE
> > > > > between the 2.
> > > > >
> > > > > It’s a little complicated. But r u able 2
> > relax
> > > a
> > > > > part of your body 2 take
> > > > > the pressure off it? In order 2 do this, you
> > > hav2
> > > > > pay a price! Another
> > > > > part of u will have to tense up.
> > > > >
> > > > > It looks like som people with ONLY spasticity,
> > > won’t
> > > > > b able 2 do this. But
> > > > > I’m wondering if it can be learnt.
> > > > >
> > > > > I suspect there r many movement “schemes”
> > people
> > > can
> > > > > adopt? I only no wats
> > > > > happening 2 me…. (& wat it LOOKS like I’m
> > > seeing in
> > > > > others). I cud be very
> > > > > off on this but I wanted 2 try 2 help, anyway.
> >
> > > :)
> > > > >
> > > > > Jonathan
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > > >From: Rayna <[log in to unmask]>
> > > > > >Reply-To: "St. John's University Cerebral
> > Palsy
> > > > > List"
> > > > > ><[log in to unmask]>
> > > > > >To: [log in to unmask]
> > > > > >Subject: My water-retention problem
> > > > > >Date: Tue, 22 Nov 2005 13:47:52 +0800
> > > > > >
> > > > > >Had my appointment with my GP on Thursday
> > > morning.
> > > > > She took one look at
> > > > > >my feet, prodded them a bit with her fingers,
> > > and
> > > > > got an expression of
> > > > > >`oh, this really isn't good', on her face. A
> > > bit
> > > > > unnerving, as my feet
> > > > > >weren't nearly as swollen as they have been
> > in
> > > the
> > > > > evenings.
> > > > > >
> > > > > >She tested my BP - fine, took three vials of
> > > blood
> > > > > - sticking needles
> > > > > >into me is such a distressing situation for
> > > both of
> > > > > us (I have a
> > > > > >tendency to swear like a sailor in those
> > > > > situations, really cannot bear
> > > > > >invasive medical treatments, have had a few
> > too
> > > > > many), that she figured
> > > > > >she may as well test for as much as possible
> > > while
> > > > > she was there. Went
> > > > > >over other possible reasons for the water
> > > > > retention, agreed that lack of
> > > > > >excercise hasn't helped, but will get better
> > > now
> > > > > the weather is good,
> > > > > >she doesn't think that my salt intake is a
> > > cause or
> > > > > a problem -
> > > > > >something about living in a warm climate,
> > > didn't
> > > > > pay much attention.
> > > > > >
> > > > > >So she gave me a script for diuretics, and
> > > wants to
> > > > > see me in a week.
> > > > > >The diuretics do seem to be working - my feet
> > > are
> > > > > less swollen than they
> > > > > >were in the evenings, but still too swollen,
> > > wish
> > > > > they would work faster.
> > > > > >
> > > > > >It seems that I have weird little toes, they
> > > both
> > > > > turn under my feet -
> > > > > >always have, and I thought that was normal,
> > > > > apparently not - and in the
> > > > > >last few weeks that has meant that I've
> > > essentially
> > > > > been walking on my
> > > > > >toenails. That explains the excruciating
> > pain
> > > when
> > > > > I walk. May have to
> > > > > >go to a podiatrist - the thought makes me
> > > > > physically ill. I cannot bear
> > > > > >people fiddling with my feet - or even
> > touching
> > > > > them. I've spoken to a
> > > > > >few others with CP in the last couple of
> > years
> > > who
> > >
> > === message truncated ===
> >
> >
> >
> >
> >
> > __________________________________
> > Yahoo! Mail - PC Magazine Editors' Choice 2005
> > http://mail.yahoo.com
> >
>
>
>
>
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