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i am looking for other Celiacs who have been diagnosed as having 
Refractory Sprue.

This is a condition where the degree of inflammation affects the entire 
small intestine.

I dropped 30 lbs  after a third operation to remove scar tissue from 
two previous bowel blockage operations
in 1994 and 1996.

I was lymphoma free but the operation kicked off this condition.

I am now eating a wide variety of foods without gaining weight.  I was 
on TPN and it
got me to 120 lbs  I still can't eat oils and fructose to any degree 
and have dropped to
105 lbs.

Aim of this  is to find any info as to how others have advanced their 
nutrition.

I have a good appetite and have leveled at 105 but need suggestions how 
to gain weight.

Hal De Bruyn in Boston.

* Please remember some posters may be WHEAT-FREE, but not GLUTEN-FREE *
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