read the info on side effects and recognise them if
they appear. most people have no problem, but, i did
and had to quit taking it. 

--- Linda Walker <[log in to unmask]> wrote:

> Lynette,
> 
> I have looked for the cp parents list recently and
> could not find it 
> active. Is their a url for it that you know of?
> I am wondering about oral baclofen for Case. We've
> never tried it 
> because he is so bright and we've heard it impacts
> intellect. I was 
> very sorry to read about the Nuzzo parent with the
> bad experience 
> because I still think in surgery less is more. Do
> you know anyone 
> else who has had or is doing the percutaneous
> lengthening? Also are 
> you considering Nuzzo for your sons surgery because
> his credentials 
> seem really good to me. Top of his class, top
> medical schools, and all that.
> Anyone else want to speak about surgery and their
> experiences please help us.
> These are the hardest decisions we all have to make
> because mistakes 
> can worsen not better the situation.
> 
> All the best,
> 
> Linda
> 
> At 03:23 AM 3/14/2006, you wrote:
> >Wow...sorry I offended so many of you on this list!
>  I would never with his
> >disability before him, he is NOT a cerebral palsied
> child..yuck.  You're
> >right, on parents list we state the disablity to
> share infomation.  The fact
> >that my son has survied a miracle gives other
> parents who may have a child
> >whom has nearly drowned..hope.
> >
> >Hand sugery; I think thumbs and wrist flexor
> lengthening.  Cody uses his
> >feet for everything, if he could even use one
> finger he would be elated.  I
> >don't know of anyone who has had the surgery.
> >
> >Pump; We went through withdrawals as the cath came
> out.  Head itching, head
> >aches, increased spasticty.  We still put it back
> in as his shoulders are
> >dislocating daily from spasticity. I would go to
> the guy in Colorado, it is
> >not an easy surgery.
> >
> >Sorry I offended anyone....
> >
> >Lynette, Cody's mom
> >
>
>_________________________________________________________________
> >Don't just search. Find. Check out the new MSN
> Search!
>
>http://search.msn.click-url.com/go/onm00200636ave/direct/01/
> 


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