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Date: | Mon, 26 Jun 2006 12:29:04 -0400 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
Thank you to everyone who answered my question about this medication.
Within a day or two the bleeding stopped and the gas pain and diarrhea
started to improve. Unfortunately she ate some raw fruit and was back to
a lot of blood but after giving up the fruit has started to improve again.
I am supposed to discuss with the doctor today or tomorrow about doing a
colonoscopy. She is tolerating the pill well and is seeing some steady
improvement. Here are the responses. Paula in Pa.
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Some one asked if Xifaxan is gluten free. I called the mfr. website
phone number and talked to a doctor who checked and called back.
He said yes it is gluten free.
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One person pointed out that celiacs develop bad gut flora and
suggested Kefir as a good broad spectrum probiotic to get
good flora.
We were just about to try kefir when she got so sick she ended
up in the ER.
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One family is traveling to Africa with a Crohn's and a celiac teen.
Their pediatric gastro gave them this antibiotic to carry with them in
case of intestinal problems and were not warned about any
conflicting foods.
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Someone wrote saying that an E Coli study showed it can can dodge
antibiotics by invading "immune system cells in the bladder wall" and
wondered if other bugs do too. One study found 18% of
E Coli had become resistant to SMZ/TMP (that is
trimethoprim/sulfamethoxazole).
This should be of interest to celiacs who have a tendency to get
infections.
Here is the link:
http://www.healthatoz.com/healthatoz/Atoz/dc/caz/kidn/utri/alert04192000.jsp
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One person took this medication for a small intestine overgrowth,
and was filled with gas with a very bad odor, but after taking the
medication
for 4 weeks was much better. Some of her food intolerances went
away.
She said it is very important to have a good probiotic afterward and used
VSL#3 from the doctor for a month after the Xifaxan. Her doctor said
VSL#3 is the only probiotic that has been studied by the Gastro docs
and is used to treat ulcerative colitis. the website gives you dosages
for
your weight etc.
She took 3 packets of this but it caused too gas & had to cut down to 1 pack
a day for 10 days then increase to 2 a day for the balance of the month.
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Someone cautioned about ingredients and vitamins and recommended
Twinlab Allergy MultiCaps for Allergic and Chemically Sensitive individuals
at VitaminShoppe. I need to look this up.
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Someone suggested it could be Giardia and had been on two kinds of pills.
This is one of the things for which our dau. was cultured.
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One person was given Xifaxan 800mg a day (our dau. is on 600) for what
turned out to be celiac disease. The only side effect was flatulence,
nothing
else unpleasant.
Visit the Celiac Web Page at Http://www.enabling.org/ia/celiac/index.html
Archives are at: Http://Listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC
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