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Friends,
Since the low oxalate diet was mentioned recently, I have a question. 
Because of interstitial cystitis, I've been on a low oxalate diet for about 
10 years and it is very beneficial for that problem.  I suspected celiac 
some years back, but didn't actually get the proper diagnosis until 2 1/2 
years ago (8 years & 10 doctors later).  I had been on a GF diet for several 
years before, but had a couple of infractions that I finally found and 
cleared.  I was down to 111 pounds (I'm 5'7").   I began to gain weight, and 
although not perfect, felt better overall.

Many have said it takes several years and I realize that, but I seem to be 
getting worse.  For a while, I seemed to be able to eat a few fruits w/o 
allergic reactions.  At present, I cannot tolerate gluten, soy, corn, sugar, 
dairy, eggs, potato, tomato and of course, anything high oxalate which means 
no beans/sweet potato/spinach/beet, etc.   I eat apples and pears; anything 
else gives me oral allergy syndrome unless it is cooked; i.e. cooked peaches 
and not fresh.   My diet consists only of fresh meat, fresh veggies and 
fruits.  I eat rice in very small amounts, as starches stall my digestion 
and I end up losing more weight.

I've tried a cabinet full of "remedies" and at present, do not tolerate 
anything herbal; homeopathic remedies make me ache, as did the last 2-3 
probiotics I tried.  I supplement potassium and zinc.

To you who have the oxalate problem, is there any medication that is 
helpful?  Have you ever been to a urologist for this problem, and was it 
helpful?

Recently, I wanted to try using fresh juices and had several glasses of 
carrot/apple.  I ended up with severe jaw pain, and over the weekend, ate a 
salad with fresh carrot/apple/kiwi and had the worst bout of jaw pain I've 
ever experienced.  Carrots are medium oxalate so I assume juicing delivers 
too much oxalate.
Constant burning pain & fatigue from oxalate is just hard to tolerate. 
Until recently, I was able to eat a few nuts, but my pain has been 
increasing so I'm trying to back off.  I'm very discouraged.  My body is 
extremely touchy and there is seldom a day w/o pain.  I find it extremely 
difficult to give up more foods.

Suggestion?  Comments?  I'm ready to visit my internist for a checkup, but 
would like some new info before I do.  I end up educating her more than she 
does me.

Joyce in Alabama 

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