i have not talked to anyone about the pump or any
other form since trying it back years ago now.
--- Tamar Raine <[log in to unmask]> wrote:
> Ken, baclofen did nothing for me at all when I took
> it orally. Because the pump goes directly into your
> spinal fluid, you can use very tiny amounts.
> Micrograms instead of miigrams. Don't be so quick to
> think it can't work for you. It might work out.
> Have you talked with a knowledgeable person about
> the pump?
>
> Hugs,
> Mag
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> Tamar Mag Raine
> [log in to unmask]
> www.cafepress.com/Tamarmag
> Lots of new art & designs ~ come and look!
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
>
> ----- Original Message ----
> From: ken barber <[log in to unmask]>
> To: [log in to unmask]
> Sent: Sunday, April 8, 2007 9:42:07 PM
> Subject: Re: surprise!
>
> mag it is great that the baclofen pump worked so
> well
> for you. i wish i did not get side effects with
> baclofen.
>
> --- Tamar Raine <[log in to unmask]> wrote:
>
> > Dear Friends,
> > I have good news! Many of you know that due to
> > severe pain from severe tightness in my legs, due
> to
> > several car accidents in the 1990s, I have not
> been
> > able to walk. Last year I was in even worse shaape
> > as I hurt my hip, and it was so tight it hurt to
> get
> > in the car because the seat in the car was the
> wrong
> > angle. So, I was in a lot of pain, and
> > ever-increasing pain medication did little to
> help.
> > I tried Feldenkrais, Massage, Acupuncture, hot
> tubs,
> > PT, nothing worked. Xrays finally showed that my
> hip
> > was so tight that it was pulling everything out of
> > alignment. I was seriously depressed. Then I
> > remembered the spasticty clinic in Berkeley. I was
> > finally able to get in to be evaluated by the
> PT's,
> > they couldn't do anything with me because
> everything
> > caused me so much pain. They recomended I try the
> > ITB pump, aka the Baclofen pump. It has an 87
> > percent positive response in folks with CP, 95
> > percent positive response in people with SCI.
> Before
> > they open you up to put in the
> > pump, they test it, by injecting Baclofen into
> the
> > spine. It worked very well for me, so in December
> > 2006, I had the surgery. And now, three months
> > later, I am walking with a walker in PT! After I
> > get more practice walking on different surfaces,
> > they will give me a walker to take home. On
> > thursday, I walked about 30 feet...
> >
> > So, that is one thing, another thing is I have
> fixed
> > up my website and have added many new paintings,
> so,
> > go have a look and let me know what y'all think.
> Of
> > course, I'd like you to purchase something if you
> > see something you like. My prices are fair,
> remember
> > that most of the price goes to cafepress who
> provide
> > the items, print them, ship them, so I usually
> earn
> > just a couple dollars on most, though not all
> items.
> > Each design comes on many different items in a
> range
> > of prices. if you have trouble seeing things,
> press
> > Control and the Plus symbol on your numeric
> keypad.
> > this will enlarge the page. New items I'd like to
> > point out are postage stamps. Yes, these are real
> > U.S. postage stamps with two of my designs on
> them.
> > Also of note, is my award-winning poem; The
> Cerebral
> > Palsy Lady. Also Breast Cancer Awareness
> > tee-shirts, and anti-RFID real i.d. act tee
> shirts.
> > If I sell 200 breast cancer tees, I'll donate
> 100.00
> > to Susan Koman foundation. So, tell all your
> friends
> > to
> > visit my website!
> > http://www.cafepress.com/tamarmag
> >
> > Love,
> > Tamar
> >
> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> > Tamar Mag Raine
> > [log in to unmask]
> > www.cafepress.com/Tamarmag
> > Lots of new art & designs ~ come and look!
> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >
> >
> >
> > -----------------------
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> >
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> >
>
>
>
>
>
>
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