Hello, James, and welcome to the list. I'm Kat, one of the list
mods, and I am a 53-year old CP living and working in NC.
Most of us are CP adults but we do have a few parents/guardians of CP
kids on this list, so one of them can probably offer some
suggestions. We also have Beth, our very own OT who offers great
advice based on her experience in working with CP kids and their
families.
I also suggest you join the CP Parents' list - You can go here to
subscribe:
http://listserv.syr.edu/scripts/wa.exe?REPORT&z=3
Good luck!
Kat
On 27 Aug 2006, at 09:46, James Ward wrote:
Hi,
I am new to the list and have a question about orthotics.
I will try to offer a quick summary
My daughter just turned three recently and only at her most recent visit
did her developmental pediatrician admit that she "warranted a diagnosis
of cp." She shows gross, fine motor, and speech delay. Prior to the cp
diagnosis, she was described as hypotonic. She started in afos at about
18 months. She did not walk until around the age of two. Her balance and
coordination are poor. As became more active, and her fine motor skills
improved, it became more and more difficult to keep the afos on her (she
would loosen them or take them off herself).
We had her reevaluated at about two and a half. At this point she could
walk with or without afos. Several physicians, an ortotist, and a
physical therapist have evaluated her. The ortotist recommends afos, an
orthopedic doc recommended orthopedic shoes, a pediatric orthopedic doc
recommended smos, her developmental pediatrician is not sure that she
even needs orthopedic shoes as long as her shoes have arch support.
There is general agreement that she pronates and has a tendency to toe
walk. Her tone is now described as mixed, though she is still fairly
hypotonic. I am not sure where the physical therapist stands at the
moment, but suspect she would lean toward afos.
Any information, or suggestions, on how to navigate this world of
orthotics would be helpful.
Thanks.
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