>richard horne wrote:
>>
>> Diane,
>>
>> How I sympathize with what you are going through. I also have a 6 year old
>> daughter who is extremely allergic to milk (among other things). She is so
>> sensitive that we carry epi-pens with us and have one on hand as well as the
>> Benadryl at home.
>> It is very difficult to explain to someone "dying" but we have always
>> brought her up to never, ever take any food from anyone without asking us
>> first if it was ok and never eat anything in the house without also asking.
>> But as we find
>> out they don't always listen and they favorite thing is "I forgot". I have
>> always put it plainly that if she does eat one thing that has milk in it
>> with her being so sensitive that she would die which means that I would
>> forever miss
>> her. And that we want her to be around for a long, long time. Also, with us
>> going through 2 trips to the ER with very severe reactions I think that has
>> helped her to understand that IT IS  real. I remind her that if she does eat
>> something she shouldn't that she would end up with the hives and breathing
>> shutting down and the doctors and nurses picking her to try to get the IV in
>> her. It may sound cruel to the average person on the street but it stops her
>> and makes her realize that she doesn't want to go through that again.
>> Also, with her missing out on so many things I try to find out what cookies
> she
>> likes to eat and I make sure she helps with making them as it makes the
>> I wish you all the best and thanks for letting me actually see that there is
>> someone out there with the same experiences. Sometimes you can feel pretty
>> alone.
>>
>> Chris Horne
>
>Hi Chris,
>
>What an odd situation 3 people with 6 year old daughters with
>anaphylaxis to milk protein! I think we should get these girls together
>by email and let them no they are not alone. They could have their own
>support circle. I know my Ashley would like to hear from them as she too
>sometimes feels alone but is very good with her allergies and totally
>understands the concept of what could happen to her.
>
>My problem in not the peer pressure, it is the fact that her one in only
>anaphylactic reaction was when she was 8 mths old. She still tests very
>postitve to milk and I am told never to give her milk in any way shape
>or form. How do you re-enforce to a child that doesn't remember what an
>allergic reaction is like if she can't remember. Every once in awhile I
>have a problem with this. She understands death because we found a dead
>bird on the side of the road so I took it home and had a little funeral
>in the back yard. That helped! But I know that someday she will try it
>just because we have kept her so safe that she will think that since
>nothing has happened to her that nothing will. Any opinions?
>
>Hazel Green
>"It only takes one bite!"
>
 
My husband and I also found it very strange that we all have such similar
situations. Great idea for the girls to get together on the internet and
learn and possibly teach each other. I know Meaghan could recount very well
how terrible she felt those 2 times. The vomiting, rash, swollen eyes and
problems
breathing makes her very wary with what she has to eat. She even has learned
the names that she should stay away from and helps read labels in the
grocery store. As for the substitute chocolate chips I tend to stay away
from chocolate
substitutes since a 6 year old can't tell by the looks what is milk-free and
what is truly chocolate. We don't tempt with milk-free Easter bunnies and such.
I hate to press my luck. Let me know if you want to get the girls started on
this. They could have their own internet pen-pals. Thanks again.
 
Chris Horne