Lynette,

I have looked for the cp parents list recently and could not find it 
active. Is their a url for it that you know of?
I am wondering about oral baclofen for Case. We've never tried it 
because he is so bright and we've heard it impacts intellect. I was 
very sorry to read about the Nuzzo parent with the bad experience 
because I still think in surgery less is more. Do you know anyone 
else who has had or is doing the percutaneous lengthening? Also are 
you considering Nuzzo for your sons surgery because his credentials 
seem really good to me. Top of his class, top medical schools, and all that.
Anyone else want to speak about surgery and their experiences please help us.
These are the hardest decisions we all have to make because mistakes 
can worsen not better the situation.

All the best,

Linda

At 03:23 AM 3/14/2006, you wrote:
>Wow...sorry I offended so many of you on this list!  I would never with his
>disability before him, he is NOT a cerebral palsied child..yuck.  You're
>right, on parents list we state the disablity to share infomation.  The fact
>that my son has survied a miracle gives other parents who may have a child
>whom has nearly drowned..hope.
>
>Hand sugery; I think thumbs and wrist flexor lengthening.  Cody uses his
>feet for everything, if he could even use one finger he would be elated.  I
>don't know of anyone who has had the surgery.
>
>Pump; We went through withdrawals as the cath came out.  Head itching, head
>aches, increased spasticty.  We still put it back in as his shoulders are
>dislocating daily from spasticity. I would go to the guy in Colorado, it is
>not an easy surgery.
>
>Sorry I offended anyone....
>
>Lynette, Cody's mom
>
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