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I've never heard of Baclofen pumps making the scoliosis worse. It would
depend on what's causing her scoliosis, abnormal trunk control, hip
dysplasia, etc. Was it the Adeli suit? That and therasuits are very
popular now. Botox injections only work to help release the muscle from an
abnormal pattern and have to be followed by aggressive splinting and
exercise. All options have consequences and eventually, you'll make the
decision that's best for your family.
Beth t.
-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]] On Behalf Of [log in to unmask]
Sent: Saturday, April 09, 2005 7:25 AM
To: [log in to unmask]
Subject: Re: Beth/ gait training
We have a gait trainer and have tried Beclofen shots... only worked for 6
about 3 times then they did nothing. Bedlofen pump we have heard it can
make scoliosis get worse faster and the pump can get infected from filling.
We have tried, the month of therphy... can't remember the name of it... that
stared over seas and you do it for 6 hours a day.. did nothing.
Kristina
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