My feet r very tender, I think because of abnormal stresses put on them. It
used 2 be much worse. When symptoms of chemical sensitivity first started
creaping up on me, I didn’t no what was happening. My movements became more
normal at first. Then I became very sleepy all the time. Sometimes my
movements became A LOT worse! Neck spasms were choaking off blood 2 my
brain, (or something like that). Anyway, my feet were getting soar from
walking “wrong” I guess. 4 a few years, I wore extra large shoes, & I wore
them on the wrong foot, (left on right, etc.), to stop my feet from rubbing
on the shoes. Getting my toenails cut was like open heart surgery!
But after I learned how 2 control the chemical sensitivity, my mobility
problems seemed 2 “stabolize,” & walking became much easier. I still don’t
/ can’t walk without shoes because my toes curl up under my feet, & they wud
drag along the ground, (and that HURTS), but since my doctors weren’t really
helping, I felt I was forced 2 try stuff on my own, & maybe I was somewhat
successful.
I still hate getting my toenails cut but it’s a thousand times easier now…
I don’t know if other people can do this… Maybe I’m weird. But at 1 point
I found that I was able 2 relax my feet wile walking, if I tensed up
“something else.” Like my legs, (or another part of my body). Then my toes
didn’t curl up, & my feet didn’t turn in as much.
But I have ATHETOSIS as well as spasticity. In som cases I get to CHOOSE
between the 2.
It’s a little complicated. But r u able 2 relax a part of your body 2 take
the pressure off it? In order 2 do this, you hav2 pay a price! Another
part of u will have to tense up.
It looks like som people with ONLY spasticity, won’t b able 2 do this. But
I’m wondering if it can be learnt.
I suspect there r many movement “schemes” people can adopt? I only no wats
happening 2 me…. (& wat it LOOKS like I’m seeing in others). I cud be very
off on this but I wanted 2 try 2 help, anyway. :)
Jonathan
>From: Rayna <[log in to unmask]>
>Reply-To: "St. John's University Cerebral Palsy List"
><[log in to unmask]>
>To: [log in to unmask]
>Subject: My water-retention problem
>Date: Tue, 22 Nov 2005 13:47:52 +0800
>
>Had my appointment with my GP on Thursday morning. She took one look at
>my feet, prodded them a bit with her fingers, and got an expression of
>`oh, this really isn't good', on her face. A bit unnerving, as my feet
>weren't nearly as swollen as they have been in the evenings.
>
>She tested my BP - fine, took three vials of blood - sticking needles
>into me is such a distressing situation for both of us (I have a
>tendency to swear like a sailor in those situations, really cannot bear
>invasive medical treatments, have had a few too many), that she figured
>she may as well test for as much as possible while she was there. Went
>over other possible reasons for the water retention, agreed that lack of
>excercise hasn't helped, but will get better now the weather is good,
>she doesn't think that my salt intake is a cause or a problem -
>something about living in a warm climate, didn't pay much attention.
>
>So she gave me a script for diuretics, and wants to see me in a week.
>The diuretics do seem to be working - my feet are less swollen than they
>were in the evenings, but still too swollen, wish they would work faster.
>
>It seems that I have weird little toes, they both turn under my feet -
>always have, and I thought that was normal, apparently not - and in the
>last few weeks that has meant that I've essentially been walking on my
>toenails. That explains the excruciating pain when I walk. May have to
>go to a podiatrist - the thought makes me physically ill. I cannot bear
>people fiddling with my feet - or even touching them. I've spoken to a
>few others with CP in the last couple of years who also have this
>difficulty. Does anyone else have problems with this, or have any ideas
>as to the cause - physical or psychological?
>
>Rayna
>
>--
>
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