i actually liked the big island more than maui or
ouhu, but liked ouhu better than maui. although maui
has it's own character to offer. you will like maui.
how long you going to be there? if you can visit
more than one island i suggest it. i'd like to visit
all
of them.
i think your dad is great to send you.
since we are talking travel, i have enough frequent
flyer miles in one accoubt for judy and i to go
business class to austrailia and new zealand. in a
few years we'll have first class mileage. i do not
know how much difference there is between first class
and business class as far as perks and confort for
international flying. don't know what is best way to
approach seeing the most of both countries. also could
have another stop on the way back. i would want this
to be about 4-6 weeks trip. will be only trip of this
magnatude that we ever take unless judy wins a lottery
or something.
> >guess what! My dad's sending me & a helper to
> Maui
> > for my big 50th
> > birthday! I'm really jazzed!
> >
> > Mag
> >
> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> > [log in to unmask]
> >
> > "What is real but compassion, as we move from
> birth
> > to death?"
> > ~~Greg Brown~~
> >
> >
> > > [Original Message]
> > > From: ken barber <[log in to unmask]>
> > > To: <[log in to unmask]>
> > > Date: 11/22/2005 1:53:44 PM
> > > Subject: Re: My water-retention problem
> > >
> > > i see a dystonia specialist and this is
> something
> > that
> > > people with dystonia can do is to foll a body
> part
> > to
> > > relax. i do this on a regular basis that is to
> > fool
> > > one part to relax at least temporarily. you
> can't
> > stay
> > > tense in one place to relax another one all the
> > time,
> > > but, i do give the worse place a break for a
> short
> > > time.
> > >
> > > --- Jonathan Rand <[log in to unmask]> wrote:
> > >
> > > > My feet r very tender, I think because of
> > abnormal
> > > > stresses put on them. It
> > > > used 2 be much worse. When symptoms of
> chemical
> > > > sensitivity first started
> > > > creaping up on me, I didn’t no what was
> > happening.
> > > > My movements became more
> > > > normal at first. Then I became very sleepy
> all
> > the
> > > > time. Sometimes my
> > > > movements became A LOT worse! Neck spasms
> were
> > > > choaking off blood 2 my
> > > > brain, (or something like that). Anyway, my
> > feet
> > > > were getting soar from
> > > > walking “wrong” I guess. 4 a few years, I
> wore
> > > > extra large shoes, & I wore
> > > > them on the wrong foot, (left on right, etc.),
> > to
> > > > stop my feet from rubbing
> > > > on the shoes. Getting my toenails cut was
> like
> > open
> > > > heart surgery!
> > > >
> > > > But after I learned how 2 control the chemical
> > > > sensitivity, my mobility
> > > > problems seemed 2 “stabolize,” & walking
> became
> > much
> > > > easier. I still don’t
> > > > / can’t walk without shoes because my toes
> curl
> > up
> > > > under my feet, & they wud
> > > > drag along the ground, (and that HURTS), but
> > since
> > > > my doctors weren’t really
> > > > helping, I felt I was forced 2 try stuff on my
> > own,
> > > > & maybe I was somewhat
> > > > successful.
> > > >
> > > > I still hate getting my toenails cut but it’s
> a
> > > > thousand times easier now…
> > > >
> > > > I don’t know if other people can do this…
> Maybe
> > I’m
> > > > weird. But at 1 point
> > > > I found that I was able 2 relax my feet wile
> > > > walking, if I tensed up
> > > > “something else.” Like my legs, (or another
> > part of
> > > > my body). Then my toes
> > > > didn’t curl up, & my feet didn’t turn in as
> > much.
> > > >
> > > > But I have ATHETOSIS as well as spasticity.
> In
> > som
> > > > cases I get to CHOOSE
> > > > between the 2.
> > > >
> > > > It’s a little complicated. But r u able 2
> relax
> > a
> > > > part of your body 2 take
> > > > the pressure off it? In order 2 do this, you
> > hav2
> > > > pay a price! Another
> > > > part of u will have to tense up.
> > > >
> > > > It looks like som people with ONLY spasticity,
> > won’t
> > > > b able 2 do this. But
> > > > I’m wondering if it can be learnt.
> > > >
> > > > I suspect there r many movement “schemes”
> people
> > can
> > > > adopt? I only no wats
> > > > happening 2 me…. (& wat it LOOKS like I’m
> > seeing in
> > > > others). I cud be very
> > > > off on this but I wanted 2 try 2 help, anyway.
>
> > :)
> > > >
> > > > Jonathan
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > > >From: Rayna <[log in to unmask]>
> > > > >Reply-To: "St. John's University Cerebral
> Palsy
> > > > List"
> > > > ><[log in to unmask]>
> > > > >To: [log in to unmask]
> > > > >Subject: My water-retention problem
> > > > >Date: Tue, 22 Nov 2005 13:47:52 +0800
> > > > >
> > > > >Had my appointment with my GP on Thursday
> > morning.
> > > > She took one look at
> > > > >my feet, prodded them a bit with her fingers,
> > and
> > > > got an expression of
> > > > >`oh, this really isn't good', on her face. A
> > bit
> > > > unnerving, as my feet
> > > > >weren't nearly as swollen as they have been
> in
> > the
> > > > evenings.
> > > > >
> > > > >She tested my BP - fine, took three vials of
> > blood
> > > > - sticking needles
> > > > >into me is such a distressing situation for
> > both of
> > > > us (I have a
> > > > >tendency to swear like a sailor in those
> > > > situations, really cannot bear
> > > > >invasive medical treatments, have had a few
> too
> > > > many), that she figured
> > > > >she may as well test for as much as possible
> > while
> > > > she was there. Went
> > > > >over other possible reasons for the water
> > > > retention, agreed that lack of
> > > > >excercise hasn't helped, but will get better
> > now
> > > > the weather is good,
> > > > >she doesn't think that my salt intake is a
> > cause or
> > > > a problem -
> > > > >something about living in a warm climate,
> > didn't
> > > > pay much attention.
> > > > >
> > > > >So she gave me a script for diuretics, and
> > wants to
> > > > see me in a week.
> > > > >The diuretics do seem to be working - my feet
> > are
> > > > less swollen than they
> > > > >were in the evenings, but still too swollen,
> > wish
> > > > they would work faster.
> > > > >
> > > > >It seems that I have weird little toes, they
> > both
> > > > turn under my feet -
> > > > >always have, and I thought that was normal,
> > > > apparently not - and in the
> > > > >last few weeks that has meant that I've
> > essentially
> > > > been walking on my
> > > > >toenails. That explains the excruciating
> pain
> > when
> > > > I walk. May have to
> > > > >go to a podiatrist - the thought makes me
> > > > physically ill. I cannot bear
> > > > >people fiddling with my feet - or even
> touching
> > > > them. I've spoken to a
> > > > >few others with CP in the last couple of
> years
> > who
> >
> === message truncated ===
>
>
>
>
>
> __________________________________
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