Subject: | |
From: | |
Reply To: | |
Date: | Tue, 3 Oct 2006 16:12:25 -0700 |
Content-Type: | text/plain |
Parts/Attachments: |
|
|
<<Disclaimer: Verify this information before applying it to your situation.>>
Many of you who wrote previously to my query previously asked to hear the resulta of my journey...
My EGD was "suggestive of celiac sprue" - variable villous abnormality with moderate villous blunting, etc. Because prelim labs (NOT including tTg - IgA) were negative, my GI said this result was a red herrring and I did not have celiac disease. I even talked to him about the rash I had, which he never examined.
So, I called my dermatologist and asked for a biopsy. He was sure it was DH, and we were correct. Biopsy came back Friday. I would love to see my GI's face when he gets a copy of the biopsy...
Prometheus labs are apparently negative (I have not seen them yet).
So, there you have it. I have very mixed emotions - glad to get it diagnosed and sad, too, because part of me was still hoping that I was wrong.
I guess the test of my diet will be the rash and repeat EGD? When should repeat EGD be performed? I am going to go on dapsone for awhile to get things under control with the rash (as soon as my blood count and G6PD come back). Then my derm and I will work it out to minimize the dosing or just use it if needed.
Also, could use recommendations of western Washington MD's who are knowledgeable with CD/DH.... Obviously, my current GI is not.
Thanks for listening. Beth
---------------------------------
All-new Yahoo! Mail - Fire up a more powerful email and get things done faster.
Visit the Celiac Web Page at Http://www.enabling.org/ia/celiac/index.html
Archives are at: Http://Listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC
|
|
|