>From: Kathy <[log in to unmask]>
>Reply-To: "St. John's University Cerebral Palsy List"
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: Kathy Jo Pink's Attendnt Woes (Was: Re: Another Question
> about Personal Assistants)
>Date: Wed, 3 Aug 2005 18:58:00 -0400
>
>I'm thoroughly confused. Do you mean the agency wants a mother of a former
>attendant to work with you? IYes! f that's the case, keep in mind that
>the mother
>may be more mature than her daughter and may be able to help you better. If
>Joy said they're two different people and you might want to give the mother
>a
>chance, I agree. Who knows, she may work out for you.
>
>I hate to say this, but you all are making me so glad I can live on my own
>and
>only need a housecleaner to help me out. It must be terribly difficult
>having to worry about how you're going to function throughout the day with
>the help of undependable or difficult people. I don't know how you do it,
>honestly I don't. From what I've heard, NC doesn't make it easy for
>disabled
>adults to live at home with round-the-clock assistants.
>
>Kat
>What's NC?
>On Wednesday 03 August 2005 6:46 pm, Kathy Jo Pink wrote:
> > Hi Everyone,
> >
> >
> >
> > Sorry, Joy, I don't know what to tell you, but, I have someattendant
> > woes of my own right now. All my attendants are leaving. (I have an
> > agency that hires, pays, and fires all of my attendants for me.)
> > Yesterday I e-mailed thesupervisor of all my attendants and asks what
> > was going on in my case. She counseled me she has a mom of a previous
> > attendant of mine. This attendant I fired because she refused to give
> > me drinks when I asked. I e-mailed the supervisor back today and said
> > I really have STRONG feelings about Diane Hanke if she is Heather's
> > Mom. I know I haven't met Diane Hanke and I know you said that they are
> > two different people. But... I suppose I could meet Diane (without
> > signing any papers) and see how that goes. If that goes okay, I will
> > try her only once a week to start out with. . .
> >
> > Joy Welan wrote:
> > >Hi everyone,
> > >
> > >Even though my situation is different than Kathy Jo's, the recent
> > >discussion has reminded me what a great resource for information this
> > >list can be. Just as a reminder, I have spastic diplegia CP that
> > >almost exclusively affects my legs, and use a power wheelchair for
> > >mobility. I just finished up my undergrad degree, and am about to
> > >start law school. I live in Washington, DC.
> > >
> > >My needs are very minimal (a little over an hour a day of assistance),
> > >but what I do need is critical. It breaks down to about half an hour
> > >in the morning for transferring and dressing, about fifteen minutes in
> > >the afternoon for some other personal care tasks or household chores,
> > >and about half an hour at night for undressing, showering, and
> > >transferring.
> > >
> > >Until this point, I have been successful at finding assistants through
> > >school and community newspapers. My parents take care of my needs
> > >when I'm home for weekends or vacations. I've lived in my own
> > >apartment throughout college, and planned to do the same in law
> > >school. However, I still haven't been able to hire anyone for the
> > >fall semester, and I'm getting nervous. I don't want to live at home,
> > >since I feel like that would be a huge step backward in terms of
> > >independence, and would also be really inconvenient in terms of
> > >commuting. Also, as my parents get older, I'm realizing that I need a
> > >better solution.
> > >
> > >Does anyone have ideas about ways that I may be able to find
> > >assistants? I've never worked with agencies or government
> > >organizations before, but I'm not too proud to start if necessary. I
> > >just don't know where to begin.
> > >
> > >Thanks for your help!
> > >
> > >~Joy~
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