you can be dianosed late for anything. one of judy's
workmate has her husband recouperating from back
surgery a year ago to help with "internal spina
biffida"
he is in his 50's and did not know he had it until he
started having unexplained back problems. 


--- Rayna <[log in to unmask]> wrote:

> Mary Katherine Powers wrote:
> 
> >
> > I had no idea there was anyone diagnosed with CP
> later in life.  I 
> > thought everyone was diagnosed by about age 5 or
> so.
> 
> 
> Hi Mary,
> 
> About a decade ago I met a young woman in her mid
> twenties who'd only 
> been diagnosed with CP a couple of years before I
> met her.  Her CP was 
> very very mild, but funny thing was, as soon as I
> saw her walk in the 
> door, and before she said she had it, I knew she had
> CP.  And, very 
> oddly - I would never ask a question like this
> usually - I asked her 
> "How long have you been diagnosed with CP?", rather
> than saying, as I 
> normally would, something like, "Oh, you have CP
> too, like me".  It was 
> very strange.  And up to then, I'd had no idea that
> CP could be 
> diagnosed so late.  I'm 32 and was diagnosed at 2
> and a half, so that's 
> all I knew.
> 
> So yes, it is possible to be diagnosed very late. 
> The person I 
> mentioned was stiffer than average in her movements,
> and I could see a 
> slight delay before she did anything or spoke,
> wouldn't have been picked 
> up by anyone not very familiar with CP.
> 
> Sounds like you've had a very frustrating time with
> the medics.  Just 
> remember, doc's aren't superhuman, and some times
> they muck up 
> diagnosises.  Before I was dx-ed with CP as a kid,
> they thought I might 
> have brittle bones (didn't break a bone till I was
> 18 so I have *no* 
> idea where they got that from!), and all the
> standard doom and gloom 
> rubbish they talk about premmie babies.
> 
> Hope you get a proper answer and useful help from
> the med. community 
> soon. :-)
> 
> Rayna - spastic CP from Perth, Australia, working in
> non profit advocacy 
> (for the info of those of you who've joined/rejoined
> the list since I 
> posted last.  And to clear up possible confusion
> about my name for those 
> who don't know me, I'm female. :-) )
> 
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