Kathy Jo,
A personal futures plan, or person centered plan, is (or should be)
broader than a personal services plan. A PFP includes what you want out
of life, and how you and the others involved in your life will go about
achieving that. It can include things like:
1. Where you want to live
2. What you want to do (either for pay, or as a volunteer, or just for
fun),
3. The types of things you want to do for fun, and how to do those
things - getting there, any assistive technology you might need
to do them, etc.
4. What you want to do educationally
5. Who you want involved in providing personal services, if needed.
6. The people involved in your life, who don't necessarily provide
services (friends, relatives, etc.)
7. How you're going to do things like cooking, cleaning, or the people
to help you with those things.
A PFP should be built around what you want. You'll need to make room
for realities like paying bills, cleaning the house, etc, but those are
the things that make it so you get to decide for yourself. A PFP can
include other things, too. Check out some of the sources in that
bibliography I sent.
I mentioned Partners in Policymaking to you, and when I went through
Partners, everyone in the class put together a PFP. Here are some of
the things mine included, and how they've worked out.
1. Where you want to live.
In my own house, with a yard, so I can have a dog.
Janet and I bought a house four years ago that is completely wheelchair
accessible. We'd been renting it for the same amount as the mortgage
payment, taxes and insurance, and the landlord said that since he wasn't
making a profit, he'd sell it. He'd allowed us to have a dog, and Janet
wanted a cat, so we've got two of those. They are our kids, since we
haven't been able to have kids of our own.
2. What you want to do (either for pay, or as a volunteer),
I'd always wanted to work in the disabilities field, and had
pretty much done that since I graduated from college. I'm still doing
that, and have "hit my stride" in my field.
3. What you want to do educationally.
I've got my Bachelor's degree, and am going to go back to get my
Master's degree soon. I was talking with a co-worker the other day,
who said "Get on it! I want you to help teach some of the courses
we're designing in disability studies!"
4. The types of things you want to do for fun, and how to do those
things - getting there, any assistive technology you might need
to do them, etc.
Janet and I both love to ski, and to do things with our
families. For skiing, we go to ski areas that have programs for people
with disabilities, as the equipment is too expensive to buy, and we
need people who are experienced with it to help us out.
As far as doing things with our families, that's easier
because they've been around one of us for our entire lives. One
thing that was really cool that happened this summer is that
Janet's parents, with the help of her brothers and their
families, and a financial contribution from us, built a new deck
that included a ramp, so I can get into their house easily. It's also
a lot easier for Janet, and on the 4th of July, they had a neighborhood
barbecue, and almost everyone used the ramp, to the surprise of one of
Janet's sisters-in-law.
4. Who you want involved in providing personal services, if needed.
We're getting to the point that some household upkeep tasks are
almost impossible for us, so we've got a couple of really good friends
who help us out with some of that stuff. (Changing light bulbs,
putting screens on windows or taking them off..., etc.) We
hired a cleaning lady, and that really helps.
5. The people you want involved in your life, who don't necessarily
provide services (friends, relatives, Church, etc.)
We're both active in our Church, have friends from work, and
from school (We've both been out a while, but people who were once
professors, students with us, or University staff, we now count as
good friends). We've got friends that we go to visit, even though
they're getting pretty spread out now. We went to visit friends in
New Mexico a year ago, and my brother and his family in Pennsylvania
over Christmas.
6. How you're going to do things like cooking, cleaning, or the things
or people to help you with those things.
Our house is completely accessible, so "how" is easier now than
it was in our apartment when we first got married (the kitchen was so
small that Janet and I couldn't both be in there at the same time.
The "things" to make life easier we've finally found most of. It
helps that Janet and I started dating when we both worked for our
state assistive technology project, so we had access to (or were) the
best minds in the state on the subject. We also had good connections
around the country for things that kicked our butts. That's how I met
Linda Rowley from the Waismann Center.
Kendall Corbett
Coordinator of Consumer Activities
Wyoming INstitute for Disabilities - WIND
College of Health Sciences
University of Wyoming
1000 E. University Avenue, Dept. 4298
Laramie, WY 82070
(307) 766-2853
[log in to unmask]
-----Original Message-----
From: Kathy Jo Pink [mailto: [log in to unmask]]
Sent: Wednesday, July 20, 2005 11:22 AM
To: [log in to unmask]
Subject: Re: I'm Back
Kendall David Corbett wrote:
>Is a PFP the same as Invidual service plan? (This form lists all of my
current services and I sign it every six mo..)
>
>Kathy Jo said:
>
>
>
>>I don't have a plan to make it happen? Any ideas, anyone?
>>
>>
>
>Get in touch with Linda Rowley at the Waisman Center, and ask her for
>info on personal futures planning, and someone close to Lancaster that
>can help you put a PFP (personal future plan) together. I could refer
>you to several people in Wyoming, but since you're in Wisconsin, that
>won't work. Also, ask Linda about a program called "Partners in
>Policymaking." I think something like that would be immensely helpful
>to you!
>
>Here are links to:
>
>1. The Waisman Center, and to Linda Rowley
>
>Waisman Center on Human Development=20
>University of Wisconsin-Madison=20
>1500 Highland Ave=20
>Madison, WI 53705-2280=20
>Main Phone: 608-263-1656=20
>Main Fax: 608-263-0529=20
>Website: http://www.waisman.wisc.edu/
>
>
>Family Village Internet Project
>Linda Rowley, LPN, BS
>608-263-5973
>[log in to unmask]
>http://www.familyvillage.wisc.edu/index.htmlx
>
>
>Jean Boehnen probably would have answers to your general questions on
>CP:
>
>Cerebral Palsy Clinic
>Jean Boehnen, RN=09
>608-263-7335=09
>[log in to unmask]
>
>
>2. Personal Futures Planning,=20
>
>http://www.iidc.indiana.edu/cedir/pfplanbib.html
>
>The above link is a bibliography on person centered planning, which is
>another name for personal futures planning.=20
>
>3. Partners in Policymaking, which got started in Minnesota.
>
>http://www.partnersinpolicymaking.com/
>
>Kendall Corbett
>
>An unreasonable man (but my wife says that's redundant!)
>
>The reasonable man adapts himself to the world; the unreasonable one
>persists in trying to adapt the world to himself. Therefore, all
>progress depends on the unreasonable man.
>
>-George Bernard Shaw 1856-1950
>
>
>-----Original Message-----
>From: Kathy Jo Pink [mailto:[log in to unmask]]=20
>Sent: Tuesday, July 19, 2005 11:20 AM
>To: [log in to unmask]
>Subject: Re: I'm Back
>
>
>I like living with my parents. I don't know what I want. I guess
>ideally , I want to live in my own place (apartment?). If that does
not
>work I will go to an adult family home, a group home, or a nuring home
>(a nursing home would probably be my last choice.) I don't have a plan
>to make it happen? Any ideas, anyone?
>
>
>
>
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