mag, Mag, MAG,



NO, I DON'T WANT TO STOP GOING TO CORNERSTONE. (unless I find something
to do that is different) i DON'T WANT MY PARENTS TO KICK ME OUT . If I
was to stop going to Cornerstone, come January first, 2006, I will be at
Cornerstone all of the time and lose my guardianship. No, they don't
work for Cornerstone or own it. I go to Cornerstone just so they can
have a break.



Kathy Jo









Magenta Raine wrote:

>Kathy Jo,
>So, stop going to cornerstone! Let your parents kick you out. You want to
>be on your own anyway... Do they own cornerstone? Do they work for
>Cornerstone? It sure sounds like your parents have a financial stake in
>keeping you either at home, or at Cornerstone. Why else would they be so
>mad about you leaving the day program? They have no right to hold you back,
>so, don't let them manipulate you.
>
>Mag
>
>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>[log in to unmask]
>How can we expect new results if we do what we've always done?
>War is outdated for the 21st century!
>
>
>
>
>>[Original Message]
>>From: Kathy Jo Pink <[log in to unmask]>
>>To: <[log in to unmask]>
>>Date: 7/16/2005 3:01:03 PM
>>Subject: I'm Back
>>
>>Hello Everybody,
>>
>>
>>
>>For those who are new or don't remember me. My name is Kathy Jo Pink . I
>>am a thirty -four year old born with Cerebral Palsy and because of this
>>I need help eating, going to the bathroom, brushing my teeth, taking a
>>bath (or a shower), washing my hair, shaving , cutting my nails,
>>dressing, brushing my hair, etc. Basically I need total care much like
>>an infant.
>>
>>
>>
>>I left C-PALSY because I went to an Easter Seals Camp in June. I will be
>>leaving the list in a month again to go to Camp Courageous of Iowa.
>>
>>Are JerkyMovements a characteristic of all cases of Cerebral Palsy?
>>
>>I am stillfighting with Independent Living. Last November, I agreed to
>>go to Cornerstone one day a week (just for Dayservice). That was a BIG
>>mistake . I said yes because My Mom wanted it and wanted a break and
>>Cornerstone was building on...well, about a month ago, when I wanted an
>>assessment for somewhere else, my caseworker said okay and stop going to
>>Cornerstone. My parents said (after my caseworker left) if you stop
>>going to Cornerstone , once a week, come the first of the next year, you
>>will be kicked out of the house and be at Cornerstone permanently and
>>lose your guardianship. I have been looking in to another options . My
>>Independent Living Specialist says , "
>>You are correct, ILR is your local independent living center. However,
>>our agency which has a personal care services department - unlike other
>>ILC's - only offers that service in the La Crosse area. One of the
>>things we do is to help people locate other options for personal care
>>services or living options. My personal preference is that if a person
>>has a county case worker, that case worker should be doing that service.
>>If your case worker needs more resources to help you, I'd be happy to
>>help in any way I can. But like I said, I prefer you work with your case
>>worker - She is there to help you. If your case worker is unwilling to
>>help you, you can let me know and I can assist you with advocating or
>>helping you find services.
>>Hope your search is going well. Let me know if you or your case worker
>>need help." and
>>
>>however, what your case manage presents may be the only
>>options available in your area and for your funding source. If you are
>>not satisfied, let her know and ask why those are the only options. The
>>area you live in does not have a lot of options to begin with, so you
>>may not have much to choose from.Yesterday, I wrote a letter to my
>>
>>
>caseworker, I said As you know, I’m not completely satisfied with
>
>
>>Cornerstone.  Some of the things I like
>>about it are the  staff and
>>drivers,  some of the outings and some
>>of the afternoon activities .  .  Some of the reasons that I don’t like
>>
>>
>are
>
>
>>the morning programming, I am not given a choice what I want to do when
>>
>>
>I’m
>
>
>>there (at dayservice), I don’t like some of the the other clients , I
>>
>>
>don’t
>
>
>>like going to bed early the night before and getting up early.  Is
>>
>>
>Cornerstone my only option for Dayservice
>
>
>>and Respite ?  If so, why?  If it’s my only option, I am going to get
>>somebody else involved .  How is Room
>>and Board paid for Residential Services?
>>The REM assessment is free. Knowing that, can I have a REM Assessment
>>done and still continue with Cornerstone?
>>Until I find something else that I like and can afford , I will be
>>willing to continue with Cornerstone.
>>Does Unified have a billing number that could be used for personal care?
>>
>>
>>
>>
>>
>>
>>On the Fourth of July, my Dad  was out spraying in the  P.M. in the back
>>
>>pasture.  He had the 4-wheeler and a load of spray spraying.  He was
>>
>>going along the ditch line and the 4-wheeler and load tipped over on top
>>
>>of him.  He laid for about 20 minutes before he could move and crawled
>>
>>out.  He was in so much pain when he finally got back to the house.  He
>>
>>said I have to go in.  They x-rayed his back and he has a compression
>>
>>fracture.  He compressed the vertebrae.  He is in alot of pain.  They
>>
>>gave him four shots and pain pills.  The doctor advised him to stay in
>>
>>the hospital over night but he wouldn't.  He must be very careful and
>>
>>any change in his condition he must get to the hospital immediately.   He
>>
>>
>has a brace.  If the
>
>
>>pain doean't have of let up, he would have gone to Dubuque (Iowa) to
>>see a specialist and perhaps surgery .   He went to the doctor and the
>>
>>
>doctor told his do whatver
>
>
>>he wants and stop when it hurts
>>
>>
>>
>>My Grandmother seems to be doing a lot better!  Since the Tuesday afteer
>>
>>Mother's Day, she has had pneumonia , couldn't eat or drink, and kidney
>>
>>failure . She was in and out of the hospital three times.
>>
>>
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