Hey kendall, the website I saw recently had really cool two-seater
quadcycle or two seater tricycles...
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[log in to unmask]
Catch you later!
> [Original Message]
> From: Kendall David Corbett <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 6/17/2005 2:54:27 PM
> Subject: Re: new to list introduction
>
> Linda,
>
> I was 10 or 11 (in 4th grade, anyway). John (my brother) finally got
> sick of me not being able to keep up. It was basically the same thing
> with driving - he got tired of having to give me rides. When I learned
> to ride a bike, I had balance problems, and spasticity and tightness in
> my legs (mostly the right). My CP is secondary to hydrocephalus, and
> when I was 16, I had another surgery for the hydrocephalus that resulted
> in left hemiplegia. Unfortunately, I can't ride a two-wheeler any more.
> My wife also has CP, and has ridden a three wheeled bike. We're looking
> at getting a three wheeled recumbent bike, or bikes, as we need to do
> something to stay in better shape.
>
> Kendall Corbett
>
> An unreasonable man (but my wife says that's redundant!)
>
> The reasonable man adapts himself to the world; the unreasonable one
> persists in trying to adapt the world to himself. Therefore, all
> progress depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950
>
> -----Original Message-----
> From: Bobby Greer [mailto:[log in to unmask]]=20
> Sent: Thursday, June 16, 2005 10:20 PM
> To: [log in to unmask]
> Subject: Re: new to list introduction
>
> Linda
>
> I am 67 yrs old, spastic quuad and a retired college professor. I
> learned to a 3 wheeled bike fashioned by my father who was a mechanic.
> Ifinally got to where I could tilt the third wheel up and ride two
> wheeled.
> I was about 10 yrs old.
>
> Bobby
> ----- Original Message -----
> From: "Linda Walker" <[log in to unmask]>
> Newsgroups: bit.listserv.c-palsy
> To: <[log in to unmask]>
> Sent: Thursday, June 16, 2005 10:17 PM
> Subject: Re: new to list introduction
>
>
> > Wow! how old were you when you learned to ride a two wheeler? That is
> one
> > of my goals with Case but he is still learning the 3 wheels. It seems
> > several people here understand about the looking down but in tons of
> > therapy and discussing falling when running no one ever mentioned
> this.
> > Strange!
> > When my son was in college he took up hang gliding, very similar to
> sky
> > diving. one of his friends fell to earth and they had to race him to
> the
> > hospital and he has never totally recovered from the brain injury. An
> old
> > boyfriend of mine was a sky diver who broke his leg and it never
> healed
> > properly and he was in a long leg cast for over a year and became
> addicted
> > to narcotics for the pain. Just food for thought. Although I love to
> > challenge myself physically, I don't like to do things that can cause
> > permanent injury as my view is that life already throws us enough bad
> > curves as is. I also used to go skydiving with friends but alwasy
> stayed
> on
> > the ground watching them float down to lunch. This was at the Han
> airstrip
> > on Maui, HI and was quite fun. As a single parent I felt I could not
> risk
> > something that would possibly leave me unable to care for them even
> for a
> > short time.
> >
> > All the best,
> >
> > Linda
> >
> >
> > At 12:06 PM 6/16/2005, you wrote:
> > >Linda,
> > >
> > >=3D20
> > >
> > >Older brothers can be a powerful motivator! I have a brother who's
> 51
> > >weeks older than I am, and he first taught me to ride a two wheeled
> > >bike, and to drive. =3D20
> > >
> > >=3D20
> > >
> > >I've worked in the disability field for the last 17 years, and my
> first
> > >job in the field out of college drilled into us a concept called "the
> > >dignity of risk." Basically, dignity of risk is letting a person
> with a
> > >disability (or anyone, for that matter) try things they want to
> (taking
> > >appropriate safety precautions, of course), realizing there will be
> some
> > >that work well, and others that don't. But, a person learning that
> an
> > >activity might not be a good "fit" for them through experience is
> > >usually better than being told "you can't do that because you have
> X."
> > >Case's doctors may recommend activities that he not do, and those
> > >recommendations are probably good ideas, but, as it sounds that
> you're
> > >already doing, help him learn to, and let him do try the things that
> he
> > >wants to do.
> > >
> > >=3D20
> > >
> > >Those are easy things for me to say, since I've not been a parent.
> > >
> > >=3D20
> > >
> > >One thing I've always wanted to try, but haven't yet, is skydiving.
> I
> > >guess I'd better get after it before the opportunity passes me by.
> > >
> > >=3D20
> > >
> > >Kendall Corbett
> > >
> > >=3D20
> > >
> > >An unreasonable man (but my wife says that's redundant!)
> > >
> > >=3D20
> > >
> > >The reasonable man adapts himself to the world; the unreasonable one
> > >persists in trying to adapt the world to himself. Therefore, all
> > >progress depends on the unreasonable man.
> > >
> > >=3D20
> > >
> > >-George Bernard Shaw 1856-1950
> > >
> > >=3D20
> > >
> > >=3D20
> > >
> > >=3D20
> > >
> > >-----Original Message-----
> > >
> > >From: Linda Walker [mailto:[log in to unmask]]=3D20
> > >
> > >Sent: Thursday, June 16, 2005 9:44 AM
> > >
> > >To: [log in to unmask]
> > >
> > >Subject: Re: new to list introduction
> > >
> > >=3D20
> > >
> > >hmmm...wise advice because he wants to please us he might try too
> hard
> > >
> > >also. He can ride his tricycle 2 miles. We often play a counting
> game.
> > >Nana
> > >
> > >count how fast I get into the car. We have a trampoline and he could
> not
> > >
> > >even stand up on it at first and now he has taught himself to jump
> alone
> > >
> > >and recently I counted 535 jumps his record before falling. None of
> us
> > >
> > >could belelive he could do it. He is motivated by a two year older
> > >brother
> > >
> > >as well. Thank you all.
> > >
> > >=3D20
> > >
> > >At 07:09 PM 6/15/2005, you wrote:
> > >
> > > >it is good that Case already knows when and how to say
> > >
> > > >i need help. many of us did things that it would have
> > >
> > > >been better had we knew that we were pushing beyond
> > >
> > > >what we could wisely do.
> > >
> > > >
> > >
> > > >--- Linda Walker <[log in to unmask]> wrote:
> > >
> > > >
> > >
> > > > > Thanks so much. We are on North shore of Oahu and he
> > >
> > > > > attends Sunset
> > >
> > > > > Elementary which is across the street from Pipeline,
> > >
> > > > > one of the most famous
> > >
> > > > > big wave beaches. In fact if they have to do a
> > >
> > > > > helicopter rescue they land
> > >
> > > > > on the school grounds but this has not happened
> > >
> > > > > since we have been here.
> > >
> > > > > From reading this list I know he will have a good
> > >
> > > > > life like so many of you
> > >
> > > > > have made for yourselves.
> > >
> > > > > We try not to baby him but because he is so social
> > >
> > > > > he knows how to wrap us
> > >
> > > > > around his finger....we sometimes do. Once he said
> > >
> > > > > to me, nana did you
> > >
> > > > > forget, I have cp, that is too hard for me to do. I
> > >
> > > > > said ok let me help
> > >
> > > > > you. He is too tight to totally dress himself but
> > >
> > > > > does undressing
> > >
> > > > > independently and bath and teeth brushing. We have
> > >
> > > > > definitely taught him
> > >
> > > > > it's ok to ask for help. We are so lucky that he
> > >
> > > > > escaped many problems, no
> > >
> > > > > problem with appetite or digestion. Friends are
> > >
> > > > > amazed at how much he eats
> > >
> > > > > and drinks to stay hydrated.
> > >
> > > > > thank you for answering.
> > >
> > > > >
> > >
> > > > > At 01:26 PM 6/15/2005, you wrote:
> > >
> > > > > >welcome aboard linda,
> > >
> > > > > > it appears that you all have gotten a lot of
> > >
> > > > > ducks
> > >
> > > > > >in a row on helping Case. he sounds like a small
> > >
> > > > > >wonder. you'll gets lots of infomation here. my
> > >
> > > > > first
> > >
> > > > > >bit is to tell you you are on tract. help him
> > >
> > > > > adjust
> > >
> > > > > >where necessary and don't baby him.
> > >
> > > > > > i am ken, a 56 year old retried computer
> > >
> > > > > programmer.
> > >
> > > > > >i have two children and two am a grandchildren. i
> > >
> > > > > live
> > >
> > > > > >in metro atlanta.
> > >
> > > > > > by the way, i like hawaii. what island are you
> > >
> > > > > on?
> > >
> > > > > >
> > >
> > > > > >--- Linda Walker <[log in to unmask]> wrote:
> > >
> > > > > >
> > >
> > > > > > > Hello,
> > >
> > > > > > >
> > >
> > > > > > > I do not have cp but am a family
> > >
> > > > > caregiver
> > >
> > > > > > > and joined hoping to learn and
> > >
> > > > > > > to get advice from people who've already
> > >
> > > > > experienced
> > >
> > > > > > > what my 6, nearly 7,
> > >
> > > > > > > year old fantastic grandson, Case is going
> > >
> > > > > through.
> > >
> > > > > > > He has moderate spastic
> > >
> > > > > > > diplegia, speaks well (lots of speech,
> > >
> > > > > occupational,
> > >
> > > > > > > physical and vison
> > >
> > > > > > > therapy so far) and is mainstreamed in school
> > >
> > > > > with a
> > >
> > > > > > > one on one because
> > >
> > > > > > > there are some things he has not yet mastered.
> > >
> > > > > He
> > >
> > > > > > > walks, falls alot, and
> > >
> > > > > > > loves to run.
> > >
> > > > > > > Once when watching him run, he fell
> > >
> > > > > right in
> > >
> > > > > > > front of me and I noticed
> > >
> > > > > > > that the reason he fell was because he looked
> > >
> > > > > down
> > >
> > > > > > > at his feet. That day
> > >
> > > > > > > was a huge breakthrough because when I taught
> > >
> > > > > him to
> > >
> > > > > > > look out a little
> > >
> > > > > > > farther he ran all over the park without
> > >
> > > > > falling. It
> > >
> > > > > > > was amazing and he was
> > >
> > > > > > > so pleased with himself. Before this day, I
> > >
> > > > > thought
> > >
> > > > > > > he lacked balance, but
> > >
> > > > > > > the therapists said it was not a balance issue
> > >
> > > > > and
> > >
> > > > > > > that caused me to look
> > >
> > > > > > > for other reasons causing him to crash. I still
> > >
> > > > > > > think his balance may be
> > >
> > > > > > > affected by cp despite what the therapists said.
> > >
> > > > > > > This same eye tracking
> > >
> > > > > > > issue seems to affect his tricycle riding. He
> > >
> > > > > > > doesn't look far enough out
> > >
> > > > > > > to keep from bumping into things but we are
> > >
> > > > > working
> > >
> > > > > > > on his being able to
> > >
> > > > > > > ride home from school without help. He's pretty
> > >
> > > > > > > close on this.
> > >
> > > > > > > His father moved the family to Hawaii
> > >
> > > > > > > because the school in Hawaii was
> > >
> > > > > > > willing to let him run, whereas the schools in
> > >
> > > > > Los
> > >
> > > > > > > Angeles wanted him in a
> > >
> > > > > > > walker. The school here is terrific as it is all
> > >
> > > > > > > grass so he does not fall
> > >
> > > > > > > on asphalt and can be more active which he
> > >
> > > > > loves. We
> > >
> > > > > > > are trying to see that
> > >
> > > > > > > he is as independent as possible and also keep
> > >
> > > > > him
> > >
> > > > > > > aerobicized to develop
> > >
> > > > > > > his heart and strength. He is a highly motivated
> > >
> > > > > > > child with a terrific
> > >
> > > > > > > spirit who would probably fit in well with this
> > >
> > > > > > > group when he is older.
> > >
> > > > > > > He has had several rounds of botox and
> > >
> > > > > it
> > >
> > > > > > > seems to work pretty well on
> > >
> > > > > > > him. In Los Angeles they did not sedate him and
> > >
> > > > > it
> > >
> > > > > > > hurt him so his mother
> > >
> > > > > > > did not take him back. In Hawaii the doctor
> > >
> > > > > sedates
> > >
> > > > > > > him, this is so much
> > >
> > > > > > > better. I was surprised we were not offered that
> > >
> > > > > > > option before and didn't
> > >
> > > > > > > know about it but there is no reason he or
> > >
> > > > > anyone
> > >
> > > > > > > should suffer. I read
> > >
> > > > > > > about how scared some people were to get botox
> > >
> > > > > and
> > >
> > > > > > > how it left them
> > >
> > > > > > > traumatized. I don't see how doctors can
> > >
> > > > > consider
> > >
> > > > > > > doing this without light
> > >
> > > > > > > sedation.
> > >
> > > > > > > The doctors are suggesting the heel cord
> > >
> > > > > > > lengthening operation. I am
> > >
> > > > > > > wondering if anyone here has had it. We have
> > >
> > > > > heard
> > >
> > > > > > > the older he is when he
> > >
> > > > > > > has the operation the better the result. Does
> > >
> > > > > anyone
> > >
> > > > > > > have any first hand
> > >
> > > > > > > experience they want to share with me? Is there
> > >
> > > > > > > anythng that is not as
> > >
> > > > > > > dramatic that works well? He is stretched daily
> > >
> > > > > and
> > >
> > > > > > > learning to do his own
> > >
> > > > > > > exercises. The whole family exercises regularly
> > >
> > > > > so
> > >
> > > > > > > this helps motivate him.
> > >
> > > > > > > Anyhow I probably won't stay on the list
> > >
> > > > > > > because I feel like I don't
> > >
> > > > > > > belong. I hope it's ok to ask these questions.
> > >
> > > > > > >
> > >
> > > > > > > All the best to everyone,
> > >
> > > > > > >
> > >
> > > > > > > Linda
> > >
> > > > > > >
> > >
> > > > > >
> > >
> > > > > >
> > >
> > > > > >
> > >
> > > > > >
> > >
> > > > > >__________________________________
> > >
> > > > > >Do you Yahoo!?
> > >
> > > > > >Make Yahoo! your home page
> > >
> > > > > >http://www.yahoo.com/r/hs
> > >
> > > > >
> > >
> > > >
> > >
> > > >
> > >
> > > >
> > >
> > > >
> > >
> > > >__________________________________
> > >
> > > >Do you Yahoo!?
> > >
> > > >Read only the mail you want - Yahoo! Mail SpamGuard.
> > >
> > > >http://promotions.yahoo.com/new_mail
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