-----Original Message-----
From: United Cerebral Palsy [mailto:[log in to unmask]]
Sent: Tuesday, June 07, 2005 19:05
To: [log in to unmask]
Subject: UCPeople - June 7, 2005
<https://img.getactivehub.com/an2/custom_images/publicpolicy/UCPeople_He
ader.jpg>
June 7, 2005
Volume 2, Issue 23
~ Plushland Summer Catalog Available ~
Summer is here! That means it is time to break out your bathing suit and
hit the beach with your Plushland Summer Catalog in hand. The Summer
Selection of Plushland items are adorable. You can celebrate the 4th of
July with the Patriotic Bear Collection or lounge by the pool with the
Aloha and Surfer Bears. These cute and cuddly seasonal items make great
pool party favors. To find out more about the latest Plushland
selections, please visit <http://www.abilitybear.com/>
www.AbilityBear.com for summer fundraising ideas. Picture of
Mom and Daughter Ability Bears
<http://img.getactivehub.com/an2/custom_images/publicpolicy/abilitybear.
jpg>
_____
Annual Conference Program Packed With Excitement
June 7, 2005
By Jim Baker
United Cerebral Palsy (UCP) will celebrate Life Without Limits with an
exciting program of events at its 2005 Annual Conference in Phoenix,
from June 22-25. Three plenary sessions will weave the Life Without
Limits theme through continuous breakout sessions for executives,
program staff, and exhibitors.
The Power of Speaking Out: Willowbrook 30 Years Later
Thursday, June 23, 1:00 - 3:00pm Willbrook Speak Out!
1972-2005
<http://img.getactivehub.com/an2/custom_images/publicpolicy/Willowbrook.
jpg>
In 1972, rookie reporter Geraldo Rivera launched a covert investigation
of the Willowbrook State School in Staten Island for WABC-TV in New
York. Later resulting in a Peabody Award for his work, Rivera documented
brutal living conditions at the school for children with disabilities,
leading to national outrage and widespread reforms.
With an interactive presentation, Bernard Carabello, a resident of
Willowbrook for more than 20 years, will address United Cerebral Palsy
conferences about the Power of Speaking Out to sustain self-advocacy and
change social attitudes towards disability. He will be joined by
disability activist and author Hank Bersani, Associate Professor and
Chair of the Division United Cerebral Palsy Research Foundation
Logo
<http://img.getactivehub.com/an2/custom_images/publicpolicy/Research.jpg
> of Special Education at Western Oregon University.
Cerebral Palsy Research Update
Friday, June 24, 10:00 - 11:30am
United Cerebral Palsy Research and Educational Foundation Director Dr.
Murray Goldstein will lead a panel to discuss the current state of
research of cerebral palsy and related disorders. Dr. Goldstein and
Assistant Director Dr. Carl Gunderson welcome:
* Dr. Donna Ferrier, Vice-Chair of the Division of Child Neurology
at the University of California, San Francisco, and
* Dr. Deborah Gaebler-Spira, Associate Professor at The
Rehabilitation Institute of Chicago
The expert panel will discuss prevention of cerebral palsy, treatment
and therapies for people with the condition, and the future of research.
Big Sky Luncheon: Building the Movement Toward an Unlimited Future for
People with Disabilities
Friday, June 24, 11:45am - 2:00pm
Former Congressman from California, Majority Leader of the U.S. House of
Representatives and co-author of the Americans with Disabilities, Act
Tony Coelho will address the annual conference of United Cerebral Palsy
about the state of "Big Sky", a UCP initiative raising the prominence of
disability issues on the national agenda.
For more information about the 2005 United Cerebral Palsy Annual
Conference program, visit the UCP Web
<http://www.ucp.org/ucp_generalsub.cfm/1/12438> site.
_____
Supreme Court Affirms Americans with Disabilities Act
By Jim Baker
The U.S. Supreme Court, by a 6-to-3 majority, affirmed the ability of
the Americans with Disabilities Act (ADA) to regulate accessibility of
public accommodations, including foreign-flag cruise ships. In the
case, Spector v. Norwegian Cruise Line, Douglas Spector and several
other plaintiffs claimed the cruise line required people with
disabilities to pay a premium for an accessible room, travel with a
companion, waive any medical liability, and reside in a limited number
of less attractive cabins. In addition, there were no accessible public
restrooms onboard the ship.
Though the Court ruled that the disability law applied to foreign-flag
ships, the majority opinion left a loophole for cruise line operators to
avoid compliance. Justice Anthony Kennedy wrote that only modifications
that did not create international discord or disrupt a ship's "internal
affairs" were necessary.
Stephen Bennett, President and CEO of United Cerebral Palsy, released
the following statement:
"Today, by a 6-to-3 majority, the Supreme Court affirmed the vision of
the Americans with Disabilities Act (ADA) that a nation should not
separate its citizens with disabilities from society."
"The architects of the ADA endorsed provisions that require all places
of public life to be accessible to Americans with disabilities. Clearly,
their intent was to ensure that citizens with disabilities were not just
able to access public services that make life possible, but places that
make life worthwhile."
<http://www.ucp.org/ucp_generaldoc.cfm/1/9/10020/10020-10020/6174> Read
the full statement.
News and Notes
Disability Policy Collaboration
Current Action Alerts - Take Action Now!
* <http://ga4.org/campaign/wheelchair_5_20_05> Fight Medicare's
"In the Home" Restriction on Wheelchair Coverage
* <http://ga4.org/campaign/811_5_16_05> HUD Section 811 Housing -
Ask Congress To Restore Funding, Proposed Cut Will Eliminate Critical
Housing Program
* <http://ga4.org/campaign/ss_5_5_05> Urge Your Members of
Congress to Put People First (Save Social Security)
From this week's Capitol Insider
The National Governors Association's (NGA) executive committee
unanimously agreed not to participate in the new Medicaid Commission,
which will be appointed by the Department of Health and Human Services.
The Supreme Court ruled that foreign cruise lines sailing in U.S. waters
must provide better access for passengers in wheelchairs. Read the
<http://www.ucp.org/uploads/ACF42.doc> Capitol Insider for a complete
briefing of the week's most important public policy events.
_____
News Headlines
Center
<http://www.ajc.com/metro/content/metro/gwinnett/0605/07hihope.html> for
developmentally disabled adults loses funding
The Hi Hope Service Center in Lawrenceville, Georgia has lost funding
that allowed its participants to eat free in the agency's cafeteria for
the past 46 years. - The Atlanta Journal Constitution
Law
<http://www.chicagotribune.com/news/local/northshore/chi-0506070124jun07
,1,509387.story?coll=chi-newslocalnorthshore-hed> allows special
education students to graduate with peers
A new law was passed in Illinois that will allow special education to
students to graduate with peers and be able to finish their schooling
afterwards. - Chicago Tribune
Customers
<http://www.washingtonpost.com/wp-dyn/content/article/2005/06/06/AR20050
60601928.html> troubled by unreliability of MetroAccess program
Metro faces lawsuits from customers who use the MetroAccess program
which was designed to help people with disabilities travel to work. -
The Washington Post
Volusia
<http://www.orlandosentinel.com/news/orl-asecvvoting07060705jun07,0,6766
285.story?coll=orl-news-headlines> County Council rebels against State
mandated disability regulations
Florida's Volusia County Council has rejected a contract to buy
touch-screen voting machines in a 4-3 vote. - Orlando Sentinel
<http://http://www.sfgate.com/cgi-bin/article.cgi?f=/n/a/2005/06/06/nati
onal/w114605D65.DTL> Court: Ships Must Provide Disabled Access
The Supreme Court extended the reach of a landmark federal disabilities
law, ruling Monday that foreign cruise lines that dock at U.S. ports
must provide better access to people with disabilities. - The Associated
Press
_____
2005 United Cerebral Palsy Annual Conference Update
June 23-25, 2005 -- Phoenix, Arizona
Countdown to Phoenix: 14 Days
Annual Conference News
The The UCP Expo will be open from 9am to 5pm on Thursday and Friday and
from 9am to 1pm on Saturday. There will be 58 exhibit spaces at the UCP
Expo of the Annual Conference with a wide range of exhibitors presenting
their products and services to conference attendees.
United Cerebral Palsy will host a film festival Thursday evening from
8pm to 11pm, featuring two films portraying people with disabilities who
have overcome obstacles to reach their dreams. Academy AwardR nominated
director Alice Elliott will present her documentary short The Collector
of Bedford Street. For the first time in the United States, film
executive Martin Katz will present the feature Cloud Cuckoo Land, a new
film from the United Kingdom starring an actor with cerebral palsy.
On Friday evening of the conference, with the assistance of United
Cerebral Palsy of the Mid South, UCP will be host a Texas Hold'Em Poker
Tournament from 8pm to 11pm. All are invited to participate in this
tournament, however, there will only be slots for the first 96 people
who sign up. Likewise, those who wish to simply watch and learn to play
poker are welcome. Conference attendees can sign up for the tournament,
on a first-come-first-serve basis, at the Development Department booth
at the UCP Expo. The top table will win a variety of gift certificates
as prizes.
Program Information
* The breakout sessions on Thursday, June 23, will include:
* Business Improvement Practices, In Cooperation with CARF
* Stand by Your Brand and Team UCP
* Federal Disability Policy: Headed for Disaster?
* Federal Medicaid Reform: What's In-Store for the Disability
Community?
* Strategic Alliances and Restructurings: The Continuum of Models,
Issues and Opportunities
* ffiliate Housing Finance Opportunities
* Raising Revenue - Promotions & Point of Sale
For more information about the Phoenix program, visit the UCP Web site.
( <http://www.ucp.org/ucp_generalsub.cfm/1/12438>
http://www.ucp.org/ucp_generalsub.cfm/1/12438)
Hotel reservations can still be made by visiting the Arizona Biltmore
Web site. ( <http://www.arizonabiltmore.com/> www.arizonabiltmore.com)
Remember, you must register for the UCP Annual Conference to participate
in the exciting program. Register online today! (
<http://ww2.eventrebels.com/er/Registration/RegistrationForm.jsp?Activit
yID=451&ItemID=1497>
http://ww2.eventrebels.com/er/Registration/RegistrationForm.jsp?Activity
ID=451
<http://ww2.eventrebels.com/er/Registration/RegistrationForm.jsp?Activit
yID=451&ItemID=1497> &ItemID=1497)
Stay tuned for an update on 2005 UCP Annual Conference events and
programs in next week's UCPeople.
<http://www.ucp.org/ucp_generalsub.cfm/1/12438> Annual Conference Logo
_____
If you received this message from a friend, you can sign
<http://ga4.org/publicpolicy/join.html?r=Ldzgusn1gRxeE> up for UCP
Public Policy Action Center.
This message was sent to [log in to unmask] Visit your subscription
<http://ga4.org/publicpolicy/smp.tcl?nkey=dx76k6rz556dtk&> management
page to modify your email communication preferences or update your
personal profile. To stop receiving UCPeople - Weekly Journal for the
UCP community, click to unsubscribe
<http://ga4.org/publicpolicy/remove-domain-direct.tcl?ctx=subscription&n
key=dx76k6rz556dtk&> . To stop ALL email from UCP Public Policy Action
Center, click to remove
<http://ga4.org/publicpolicy/remove-domain-direct.tcl?ctx=center&nkey=dx
76k6rz556dtk&> yourself from our lists (or reply via email with
"remove" in the subject line).
<http://www.getactive.com>
<http://ga4.org/nlor/dx76k6rz556dtk>
|
