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Subject:
From:
Kendall David Corbett <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Tue, 17 May 2005 13:37:50 -0600
Content-Type:
text/plain
Parts/Attachments:
text/plain (184 lines)
KJ,

I'd get in touch with both of them.  They might end up referring you to
each other anyway, and getting as much information as you can is
probably a good thing.  But, do as much as you can handle.  If you try
to do too much, you might not do as well as if you do a little at a
time, and make sure that you know all you need to from that source.

Kendall Corbett

An unreasonable man (but my wife says that's redundant!)

The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all
progress depends on the unreasonable man.

-George Bernard Shaw 1856-1950


-----Original Message-----
From: Kathy Jo Pink [mailto:[log in to unmask]] 
Sent: Tuesday, May 17, 2005 12:28 PM
To: [log in to unmask]
Subject: Re: new member intro and some well-meant comments...

No, I didn't say that IL was too expensive.  That was REM.  I will be
starting with Wisconsin Coalition For Advocacy .  should I wait to see
how that goes before I contact the Waisman Center?



Kathy Jo Pink











Kendall David Corbett wrote:

>Kathy Jo,
>
>As Ken and Bobby said, CP isn't something you "get over."  Your
>statement reminded me of some "well meaning 'friends'" of my mom when I
>was in school.  They were positive that if my/her faith were strong
>enough, that I could be "normal."  I've got two major problems with
>that.
>
>1.      I think I was and am pretty much normal, even if I do use a
>wheelchair.  I did "normal" things other kids did, although maybe a
>little differently;
>2.      G_d probably had (and has) other things in mind for me than
>testing my faith (or my mom's faith, for that matter) with my
>disability.  I'm not sure what those things are, but I think if I do
the
>best I can with what I've got, G_d will be OK with that.  =20
>
>As far as "getting over CP," I think we learn better ways to cope with
>the challenges that we encounter, whether they be physical obstacles,
or
>the attitudes of others.  I've learned to just ignore people like my
>mom's former "friends," because it's just not worth the effort to try
>and educate some people.  I spend a _lot_ of time personally and
>professionally working with little kids on disability awareness
>activities, because they seem to be the most receptive.  That doesn't
>mean I ignore older kids and adults, but I give them about three
chances
>and move on. =20
>
>You said the first IL center you checked out was "too expensive."  Get
>in touch with the folks at the Waismann Center, and find out if they
>have someone who can help you to develop a plan to achieve the level of
>independence you'd like.  Here's contact info.
>
>Waisman Center=20
>University of Wisconsin-Madison=20
>1500 Highland Ave=20
>Madison, WI 53705-2280=20
>Main Phone:  608-263-1656=20
>Main Fax:  608-263-0529=20
>Website:  http://www.waisman.wisc.edu/=20
>
>Carl Durocher can get you in touch with the right folks at Waismann,
>
>Carl Durocher
>608-265-2544
>[log in to unmask]
>
>and Linda Rowley can give you other contacts throughout Wisconsin
>
>Linda Rowley, LPN, BS
>608-263-5973
>[log in to unmask]
>
>=20
>        =20
>=20
>
>Kendall Corbett
>
>An unreasonable man (but my wife says that's redundant!)
>
>The reasonable man adapts himself to the world; the unreasonable one
>persists in trying to adapt the world to himself. Therefore, all
>progress depends on the unreasonable man.
>-George Bernard Shaw 1856-1950
>
>-----Original Message-----
>From: Bobby Greer [mailto:[log in to unmask]]=20
>Sent: Sunday, May 08, 2005 3:44 PM
>To: [log in to unmask]
>Subject: Re: new member intro and some well-meant comments...
>
>Kathy Jo,
>
>    Acceptance is action and action is an ongoing process.
>For example, if you let others "decide for you", that is not action
it's
>giving up. Action is looking into where you might want to stay and
>making a
>decision. You speak of "accepting CP" as if it were an event, but it is
>not,
>it is a lifetime process.
>
>Bobby
>----- Original Message -----
>From: "ken barber" <[log in to unmask]>
>Newsgroups: bit.listserv.c-palsy
>To: <[log in to unmask]>
>Sent: Sunday, May 08, 2005 5:02 PM
>Subject: Re: new member intro and some well-meant comments...
>
>
>
>
>>  i said "is it true?" have you gotten over cp? maybe
>>you should pay attention to some of the email you get.
>>
>>   you do not just out grow cp. its not an allergy.
>>
>>--- Kathy Jo Pink <[log in to unmask]> wrote:
>>
>>
>>>Huh?
>>>
>>>
>>>
>>>
>>>
>>>ken barber wrote:
>>>
>>>
>>>
>>>>well, has it been true?
>>>>
>>>>--- Kathy Jo Pink <[log in to unmask]> wrote:
>>>>
>>>>From
>>>>
>>>>
>>>>>the time I was age
>>>>>ten to age twenty-nine, everyday I was told that I
>>>>>would walk and get
>>>>>over C.P. later in my life...
>>>>>
>>>>>Kathy Jo Pink
>>>>>
>>>>>
>>__________________________________________________
>>Do You Yahoo!?
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>>http://mail.yahoo.com
>>
>>
>
>
>
>

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