Mag, I don't know if there are any Supported Living Organizations in my area
or not.  Should I do a Web Search ?  What's the difference between
Independent Living and Supported Living?  My parents say it is too close to
their vacation to hire and train ten people.  (4 weeks)



There are three people that I wrote about yesterday to you as far as
Cornerstone goes.  I only complained about one.



Yesterday, I met with my county nurse.  (We meet every two months.)  She was
all for Independent Living.  (There are two businesses in my town that
provide caseworkers.)  The County Nurse told me that the business that I get
my caseworker from doesn't support independent living where as the other one
does.  I used to to get my caseworker from the other agency , I don't know
why I was switched.  My parents were complete opposite yesterday.  As they
were talking about my own place down the road.  They talked about how
expensive it would be.



Kathy

Kathy Jo Pink
[log in to unmask]
AOL IM ScreenName:  kjptde











-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]]On Behalf Of Tamar Raine
Sent: Monday, September 13, 2004 7:35 PM
To: [log in to unmask]
Subject: Re: Your summer


Kathy Jo, are there any supported living organizations in your area? That
is what I, and Gary have. We get Supported Living services because we need
more hours of help than somebody who is an independent Living client.  your
dept of developmental services may know of an agency and then they could
help you move out into your own place. it sounds like your parents are
being passive aggressive -- in that they offer you the basement to live in,
but then they say they don't want anybody in their house while they're
gone.

If this person at cornerstone is doing those things, they need to move that
person out! have you complained?



Tamar Mag Raine
[log in to unmask]
IM: tamarmag48
Oakland Mayor's Commission on People with disabilities


> [Original Message]
> From: kat <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 9/13/2004 3:08:46 PM
> Subject: Re: Your summer
>
> If they are conditions you can't live with - and they do sound pretty
> bad indeed - you should have other choices.  Having said that, I'm
> afraid that most residental programs have problems such as those you
> describe because the care facilities are normally woefully
> understaffed.  However even for that situation, you should feel
> empowered to complain if you're treated in such a manner by another
> resident or staff member.  No one should need to put up with sexual
> abuse.
>
> I'd advise you to document each incidence so you have proof of such
> things.  Log them in your laptop, etc. with dates, names and places.
>
> Kat
>
> On Mon, 2004-09-13 at 13:55, Kathy Pink wrote:
>
> > They propose I go to Cornerstone when they are in Branson.  (Yes, it is
> > Branson, MS that I'm talking about.)  No one in my county gets as much
money
> > as I do.  I know that is wrong because I know of other people that can
have
> > 24-Hour Care that are in my county, bit, they are all elderly.
> >
> >
> >
> > Some of the reasons that I don't like Cornerstone is because what the
> > permanent clients say / do.  This one particular client says "Doctors
> > cripple people" and then without my or anybody's permission got in my
power
> > chair and took off.  When I went to my bedroom for personal time (I had
my
> > own single bedroom.) I shut the door.  This same client came in.  The
same
> > client salted my food without asking or getting my permission .  This
same
> > client has accused other people for taking her personnel belongings
.Another
> > client has asked me if I would go to bed because him and if I would love
> > him. There is another client that said or did something, but, I don't
> > remember what.
> >
> >
> >
> > This weekend, I wrote a letter to my case manager asking for a different
> > respite place .  it will probably be a nursing home or a home for the
> > Mentally Retarded.
> >
> >
> >
> > Kathy Jo
> >
> > Kathy Jo Pink
> > [log in to unmask]
> > AOL IM ScreenName:  kjptde
> >
> > -----Original Message-----
> > From: St. John's University Cerebral Palsy List
> > [mailto:[log in to unmask]]On Behalf Of kat
> > Sent: Sunday, September 12, 2004 1:59 PM
> > To: [log in to unmask]
> > Subject: Re: Your summer
> >
> >
> > So what do they propose you do while they're in Branson?  (I assume
> > you're talking about Branson, MS).  As for not being able to afford
> > 24-hour care, I think the state has to help you get that if that is what
> > they think you need.
> >
> > You've said you don't like Cornerstone.  What exactly don't you like
> > about Cornerstone?  You know, no matter where you go or what you do,
> > there will be rules to follow, things you'll have to do even though you
> > don't like them.  I live by myself, and I don't particularly like
> > getting up early but I do it.  If I don't, I don't get to work on time
> > and I'd get fired.
> >
> > There are trade-offs in any path in life.  It's just a matter of finding
> > those you can live with.   Now I'll get off my soapbox! :p
> >
> > Kat
> >
> > On Sun, 2004-09-12 at 14:05, Kathy Pink wrote:
> >
> > > It isn't only my parents that say I can't live alone.  I have a
history of
> > > hurting myself and others.  My county social worker says I need
24-Hour
> > > Care.  I met with The Independent Living Specialist , my social
worker,
> > and
> > > my parents Thursday.  My parents and my social worker were mad with me
> > > because I contacted the Center Of Independent Living.  No two CP
Cases are
> > > alike.  I can't afford 24-Hour Care.
> > >
> > >
> > >
> > > My parents are going to Branson in October and they said I can't stay
here
> > > because it is their house.  People that worked here have stolen, some
> > people
> > > have forgotten , not showed, or they were three hours late.
> > >
> > >
> > > Kathy Jo
> > > Kathy Jo Pink
> > > [log in to unmask]
> > > AOL IM ScreenName:  kjptde
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > -----Original Message-----
> > > From: St. John's University Cerebral Palsy List
> > > [mailto:[log in to unmask]]On Behalf Of Kathy
> > > Sent: Monday, September 06, 2004 8:14 PM
> > > To: [log in to unmask]
> > > Subject: Re: Your summer
> > >
> > >
> > > He's wrong.  There's assistive technology to help you with such
things,
> > and
> > > if
> > > not that, aides can help you.  What will you do when your parents die?
> > You
> > > need to start planning ahead and getting ready to be on your own.
> > >
> > > Kat
> > >
> > > On Monday 06 September 2004 8:34 pm, Kathy Pink wrote:
> > > > My dad said in order to live independently you have to be able to
talk,
> > > > walk, or feed yourself and I can't do any.
> > > >
> > > > Kathy Jo Pink
> > > > [log in to unmask]
> > > > AOL IM ScreenName:  kjptde
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > > -----Original Message-----
> > > > From: St. John's University Cerebral Palsy List
> > > > [mailto:[log in to unmask]]On Behalf Of Tamar Raine
> > > > Sent: Sunday, September 05, 2004 9:51 PM
> > > > To: [log in to unmask]
> > > > Subject: Re: Your summer
> > > >
> > > >
> > > > I can get in and out of my wheelchair, and I can feed myself,
though I
> > > need
> > > > somebody to cut my food.  and I talk ok, not great, but i can
> > communicate.
> > > > But regardless, each of us is different, and please don't compare
> > yourself
> > > > to anybody.
> > > >
> > > > Tamar Mag Raine
> > > > [log in to unmask]
> > > >
> > > > The reasonable man adapts himself to the world; the unreasonable one
> > > > persists in trying to adapt the world to himself.
> > > > Therefore, all progress depends on the unreasonable man.
> > > > -George Bernard Shaw 1856-1950
> > > >
> > > > IM: tamarmag48
> > > > Oakland Mayor's Commission on People with disabilities
> > > >
> > > > > [Original Message]
> > > > > From: Kathy Pink <[log in to unmask]>
> > > > > To: <[log in to unmask]>
> > > > > Date: 9/5/2004 12:29:23 PM
> > > > > Subject: Re: Your summer
> > > > >
> > > > > Mag,
> > > > >
> > > > > Can you walk, talk, or feed yourself ? Kathy Jo
> > > > >
> > > > > Kathy Jo Pink
> > > > > [log in to unmask]
> > > > > AOL IM ScreenName:  kjptde
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > > -----Original Message-----
> > > > > From: St. John's University Cerebral Palsy List
> > > > > [mailto:[log in to unmask]]On Behalf Of Tamar Raine
> > > > > Sent: Friday, September 03, 2004 5:15 PM
> > > > > To: [log in to unmask]
> > > > > Subject: Re: Your summer
> > > > >
> > > > >
> > > > > Kathy Jo,
> > > > > You know I have an average of 5 hours of assistance a day. Others
need
> > > >
> > > > more
> > > >
> > > > > assistance and yet they have their own apartments. So, you can do
it,
> > > > > even if they say 24 hour care is too expensive, it is your right
to
> > live
> > > > > where you want to live. The law is called Olmstead, and I know
that
> > > > > States are having trouble helping everybody that needs it, but I
urge
> > > you
> > > > > not to give up. it may take a year. but don't give up.  in the
> > meantime
> > > > > there are things you can do, like have somebody teach you about
money.
> > > > >
> > > > > Mag