KJ,
Get in touch with Linda Rowley at the Waissman Center, and ask her for info on personal futures planning, and someone close to Lancaster that can help you put a PFP (personal future plan) together. I could refer you to several people in Wyoming, but since your in Wisconsin.... Also, ask Linda about a program called "Partners in Policymaking." I think something like that would be immensely helpful to you!
Kendall
-----Original Message-----
From: Kathy Jo Pink [mailto:[log in to unmask]]
Sent: Tue 7/19/2005 12:31 PM
To: [log in to unmask]
Cc:
Subject: Re: Re : I'm Back
I guess I don't know what I want. I guess ideally , I want to live in
my own place (apartment?). If that does not work I will go to an adult
family home, a group home, or a nuring home (a nursing home would
probably be my last choice.) I don't have a plan to make it happen?
Any ideas, anyone? I know, Kat, I am going to have to take control
(somehow). I have went to every WebSite and everybody that you guys
have suggested/recommended. I appreciate all your help.
Kathy wrote:
>Well, as Joy said, what do you want? You're not being clear as to exactly
>what you want and don't want. We have given you the same advice over and
>over and frankly, you're going to have to take control and fix this yourself
>if you want any control at all. If you sit back and let people do things f=
>or
>you, you'll never get want you want.
>
>And, too, remember that wherever you end up going, whether it be Cornerston=
>e,
>some place else, or staying at home, life being what it is, nothing's going
>to be perfect 100 per cent of the time. People are going to snap at you,
>they will argue with you, the food won't always be good, and you're not goi=
>ng
>to feel great all the time. That's just life. You just need to roll with
>it. I used to know a CP person who went from assisted-living apartment to
>apartment because she found fault with everything. I think she ended back
>where she started from!
>
>I'm not saying settle for less. I'm saying weigh your options, make your
>decision, do it and stick with it. It'll make things so much easier for you
>and everyone else in your life.
>
>Kat
>
>On Sunday 17 July 2005 1:15 pm, Kathy Jo Pink wrote:
>
>
>>mag, Mag, MAG,
>>
>>
>>
>>NO, I DON'T WANT TO STOP GOING TO CORNERSTONE. (unless I find something
>>to do that is different) i DON'T WANT MY PARENTS TO KICK ME OUT . If I
>>was to stop going to Cornerstone, come January first, 2006, I will be at
>>Cornerstone all of the time and lose my guardianship. No, they don't
>>work for Cornerstone or own it. I go to Cornerstone just so they can
>>have a break.
>>
>>
>>
>>Kathy Jo
>>
>>Magenta Raine wrote:
>>
>>
>>>Kathy Jo,
>>>So, stop going to cornerstone! Let your parents kick you out. You want to
>>>be on your own anyway... Do they own cornerstone? Do they work for
>>>Cornerstone? It sure sounds like your parents have a financial stake in
>>>keeping you either at home, or at Cornerstone. Why else would they be so
>>>mad about you leaving the day program? They have no right to hold you
>>>back, so, don't let them manipulate you.
>>>
>>>Mag
>>>
>>>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>>>[log in to unmask]
>>>How can we expect new results if we do what we've always done?
>>>War is outdated for the 21st century!
>>>
>>>
>>>
>>>>[Original Message]
>>>>From: Kathy Jo Pink <[log in to unmask]>
>>>>To: <[log in to unmask]>
>>>>Date: 7/16/2005 3:01:03 PM
>>>>Subject: I'm Back
>>>>
>>>>Hello Everybody,
>>>>
>>>>
>>>>
>>>>For those who are new or don't remember me. My name is Kathy Jo Pink . I
>>>>am a thirty -four year old born with Cerebral Palsy and because of this
>>>>I need help eating, going to the bathroom, brushing my teeth, taking a
>>>>bath (or a shower), washing my hair, shaving , cutting my nails,
>>>>dressing, brushing my hair, etc. Basically I need total care much like
>>>>an infant.
>>>>
>>>>
>>>>
>>>>I left C-PALSY because I went to an Easter Seals Camp in June. I will be
>>>>leaving the list in a month again to go to Camp Courageous of Iowa.
>>>>
>>>>Are JerkyMovements a characteristic of all cases of Cerebral Palsy?
>>>>
>>>>I am stillfighting with Independent Living. Last November, I agreed to
>>>>go to Cornerstone one day a week (just for Dayservice). That was a BIG
>>>>mistake . I said yes because My Mom wanted it and wanted a break and
>>>>Cornerstone was building on...well, about a month ago, when I wanted an
>>>>assessment for somewhere else, my caseworker said okay and stop going to
>>>>Cornerstone. My parents said (after my caseworker left) if you stop
>>>>going to Cornerstone , once a week, come the first of the next year, you
>>>>will be kicked out of the house and be at Cornerstone permanently and
>>>>lose your guardianship. I have been looking in to another options . My
>>>>Independent Living Specialist says , "
>>>>You are correct, ILR is your local independent living center. However,
>>>>our agency which has a personal care services department - unlike other
>>>>ILC's - only offers that service in the La Crosse area. One of the
>>>>things we do is to help people locate other options for personal care
>>>>services or living options. My personal preference is that if a person
>>>>has a county case worker, that case worker should be doing that service.
>>>>If your case worker needs more resources to help you, I'd be happy to
>>>>help in any way I can. But like I said, I prefer you work with your case
>>>>worker - She is there to help you. If your case worker is unwilling to
>>>>help you, you can let me know and I can assist you with advocating or
>>>>helping you find services.
>>>>Hope your search is going well. Let me know if you or your case worker
>>>>need help." and
>>>>
>>>>however, what your case manage presents may be the only
>>>>options available in your area and for your funding source. If you are
>>>>not satisfied, let her know and ask why those are the only options. The
>>>>area you live in does not have a lot of options to begin with, so you
>>>>may not have much to choose from.Yesterday, I wrote a letter to my
>>>>
>>>>
>>>caseworker, I said As you know, I=92m not completely satisfied with
>>>
>>>
>>>
>>>>Cornerstone. Some of the things I like
>>>>about it are the staff and
>>>>drivers, some of the outings and some
>>>>of the afternoon activities . . Some of the reasons that I don=92t li=
>>>>
>>>>
>ke
>
>
>>>are
>>>
>>>
>>>
>>>>the morning programming, I am not given a choice what I want to do when
>>>>
>>>>
>>>I=92m
>>>
>>>
>>>
>>>>there (at dayservice), I don=92t like some of the the other clients , I
>>>>
>>>>
>>>don=92t
>>>
>>>
>>>
>>>>like going to bed early the night before and getting up early. Is
>>>>
>>>>
>>>Cornerstone my only option for Dayservice
>>>
>>>
>>>
>>>>and Respite ? If so, why? If it=92s my only option, I am going to get
>>>>somebody else involved . How is Room
>>>>and Board paid for Residential Services?
>>>>The REM assessment is free. Knowing that, can I have a REM Assessment
>>>>done and still continue with Cornerstone?
>>>>Until I find something else that I like and can afford , I will be
>>>>willing to continue with Cornerstone.
>>>>Does Unified have a billing number that could be used for personal care?
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>On the Fourth of July, my Dad was out spraying in the P.M. in the back
>>>>
>>>>pasture. He had the 4-wheeler and a load of spray spraying. He was
>>>>
>>>>going along the ditch line and the 4-wheeler and load tipped over on top
>>>>
>>>>of him. He laid for about 20 minutes before he could move and crawled
>>>>
>>>>out. He was in so much pain when he finally got back to the house. He
>>>>
>>>>said I have to go in. They x-rayed his back and he has a compression
>>>>
>>>>fracture. He compressed the vertebrae. He is in alot of pain. They
>>>>
>>>>gave him four shots and pain pills. The doctor advised him to stay in
>>>>
>>>>the hospital over night but he wouldn't. He must be very careful and
>>>>
>>>>any change in his condition he must get to the hospital immediately. =
>>>>
>>>>
>He
>
>
>>>has a brace. If the
>>>
>>>
>>>
>>>>pain doean't have of let up, he would have gone to Dubuque (Iowa) to
>>>>see a specialist and perhaps surgery . He went to the doctor and the
>>>>
>>>>
>>>doctor told his do whatver
>>>
>>>
>>>
>>>>he wants and stop when it hurts
>>>>
>>>>
>>>>
>>>>My Grandmother seems to be doing a lot better! Since the Tuesday afteer
>>>>
>>>>Mother's Day, she has had pneumonia , couldn't eat or drink, and kidney
>>>>
>>>>failure . She was in and out of the hospital three times.
>>>>
>>>>
>
>=2D------------------------------------------------------
>
>
>
>
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