C-PALSY Archives

Cerebral Palsy List

C-PALSY@LISTSERV.ICORS.ORG

Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Show All Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Subject:
From:
Kathy Pink <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Wed, 13 Oct 2004 19:26:28 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (377 lines)
Yes, Mag, they do have some classes.  I don't know about activities.  KJ

Kathy Jo Pink
[log in to unmask]
AOL IM ScreenName:  kjptde











-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]]On Behalf Of Tamar Raine
Sent: Tuesday, October 12, 2004 8:57 PM
To: [log in to unmask]
Subject: Re: Respite (Was: Your summer)


that is great KJ!

Do they have classes or some kind of activities?

Mag

Tamar Mag Raine
[log in to unmask]
IM: tamarmag48
Oakland Mayor's Commission on People with disabilities


> [Original Message]
> From: Kathy Pink <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 10/12/2004 3:35:54 PM
> Subject: Re: Respite (Was:  Your summer)
>
> Mag,
>
>
>
> Yes.  They will let me come and go as I please.  I liked everything about
> this place.  Kathy Jo
>
> Kathy Jo Pink
> [log in to unmask]
> AOL IM ScreenName:  kjptde
>
>
>
>
>
>
>
>
>
>
>
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of Tamar Raine
> Sent: Tuesday, October 12, 2004 1:12 AM
> To: [log in to unmask]
> Subject: Re: Respite (Was: Your summer)
>
>
> Kathy Jo,
> Nursing homes have a reputation for not allowing people to come and go as
> they please.  Like if I wanted to go for a ride, they might not let me
out.
> Do you know what their policies are regarding this type of thing? What did
> you like about this place?
>
> Tamar Mag Raine
> [log in to unmask]
> IM: tamarmag48
> Oakland Mayor's Commission on People with disabilities
>
>
> > [Original Message]
> > From: Kathy Pink <[log in to unmask]>
> > To: <[log in to unmask]>
> > Date: 10/11/2004 3:27:19 PM
> > Subject: Re: Respite (Was:  Your summer)
> >
> > Mag,
> >
> >
> >
> > What do you mean by interesting and being able to come and go as I
please?
> > I think I will have an Internet Connection .
> >
> >
> >
> > Kathy Jo
> >
> > Kathy Jo Pink
> > [log in to unmask]
> > AOL IM ScreenName:  kjptde
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > -----Original Message-----
> > From: St. John's University Cerebral Palsy List
> > [mailto:[log in to unmask]]On Behalf Of Tamar Raine
> > Sent: Sunday, October 10, 2004 6:47 PM
> > To: [log in to unmask]
> > Subject: Re: Respite (Was: Your summer)
> >
> >
> > Interesting, Kathy Jo,
> > Will you be able to come and go as you please? Will you have an Internet
> > connection?
> >
> > Tamar Mag Raine
> > [log in to unmask]
> > IM: tamarmag48
> > Oakland Mayor's Commission on People with disabilities
> >
> >
> > > [Original Message]
> > > From: Kathy Pink <[log in to unmask]>
> > > To: <[log in to unmask]>
> > > Date: 10/10/2004 2:33:47 PM
> > > Subject: Respite (Was:  Your summer)
> > >
> > > First of all, I would like to apologize for the last e-mail I sent
> > regarding
> > > this topic.  At that time, I just got a hard directory at work to work
> on.
> > >
> > >
> > >
> > > No, Mag, I'm not going to Cornerstone .  But, However, I am going to a
> > local
> > > nursing home.  They have a DD (Developmental Disability) Unit.  I was
> > there
> > > visitvisiting and interviewing (getting ready to beadmitted) Thursday.
> > They
> > > said they need help teach me about money.
> > >
> > > Kathy Jo
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > Date:         Sun, 12 Sep 2004 11:22:28 -0700
> > >
> > >
> > > Reply-To:     [log in to unmask]
> > >
> > >
> > > Sender:       "St. John's University Cerebral Palsy List"
> > >
> > >               <[log in to unmask]>
> > >
> > >
> > > From:         Tamar Raine <[log in to unmask]>
> > >
> > >
> > > Subject:      Re: Your summer
> > >
> > >
> > >
> > > Content-type: text/plain; charset=US-ASCII
> > >
> > > Kathy Jo,
> > > what did the specialist say?  What was the outcome of the meeting?
will
> > > you be going to cornerstone in October?
> > >
> > > Tamar Mag Raine
> > > [log in to unmask]
> > > IM: tamarmag48
> > > Oakland Mayor's Commission on People with disabilities
> > >
> > >
> > > > [Original Message]
> > > > From: Kathy Pink <[log in to unmask]>
> > > > To: <[log in to unmask]>
> > > > Date: 9/12/2004 11:06:09 AM
> > > > Subject: Re: Your summer
> > > >
> > > > It isn't only my parents that say I can't live alone.  I have a
> history
> > of
> > > > hurting myself and others.  My county social worker says I need
> 24-Hour
> > > > Care.  I met with The Independent Living Specialist , my social
> worker,
> > > and
> > > > my parents Thursday.  My parents and my social worker were mad with
me
> > > > because I contacted the Center Of Independent Living.  No two CP
Cases
> > are
> > > > alike.  I can't afford 24-Hour Care.
> > > >
> > > >
> > > >
> > > > My parents are going to Branson in October and they said I can't
stay
> > here
> > > > because it is their house.  People that worked here have stolen,
some
> > > people
> > > > have forgotten , not showed, or they were three hours late.
> > > >
> > > >
> > > > Kathy Jo
> > > > Kathy Jo Pink
> > > > [log in to unmask]
> > > > AOL IM ScreenName:  kjptde
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > > -----Original Message-----
> > > > From: St. John's University Cerebral Palsy List
> > > > [mailto:[log in to unmask]]On Behalf Of Kathy
> > > > Sent: Monday, September 06, 2004 8:14 PM
> > > > To: [log in to unmask]
> > > > Subject: Re: Your summer
> > > >
> > > >
> > > > He's wrong.  There's assistive technology to help you with such
> things,
> > > and
> > > > if
> > > > not that, aides can help you.  What will you do when your parents
die?
> > > You
> > > > need to start planning ahead and getting ready to be on your own.
> > > >
> > > > Kat
> > > >
> > > > On Monday 06 September 2004 8:34 pm, Kathy Pink wrote:
> > > > > My dad said in order to live independently you have to be able to
> > talk,
> > > > > walk, or feed yourself and I can't do any.
> > > > >
> > > > > Kathy Jo Pink
> > > > > [log in to unmask]
> > > > > AOL IM ScreenName:  kjptde
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > > > -----Original Message-----
> > > > > From: St. John's University Cerebral Palsy List
> > > > > [mailto:[log in to unmask]]On Behalf Of Tamar Raine
> > > > > Sent: Sunday, September 05, 2004 9:51 PM
> > > > > To: [log in to unmask]
> > > > > Subject: Re: Your summer
> > > > >
> > > > >
> > > > > I can get in and out of my wheelchair, and I can feed myself,
> though I
> > > > need
> > > > > somebody to cut my food.  and I talk ok, not great, but i can
> > > communicate.
> > > > > But regardless, each of us is different, and please don't compare
> > > yourself
> > > > > to anybody.
> > > > >
> > > > > Tamar Mag Raine
> > > > > [log in to unmask]
> > > > >
> > > > > The reasonable man adapts himself to the world; the unreasonable
one
> > > > > persists in trying to adapt the world to himself.
> > > > > Therefore, all progress depends on the unreasonable man.
> > > > > -George Bernard Shaw 1856-1950
> > > > >
> > > > > IM: tamarmag48
> > > > > Oakland Mayor's Commission on People with disabilities
> > > > >
> > > > > > [Original Message]
> > > > > > From: Kathy Pink <[log in to unmask]>
> > > > > > To: <[log in to unmask]>
> > > > > > Date: 9/5/2004 12:29:23 PM
> > > > > > Subject: Re: Your summer
> > > > > >
> > > > > > Mag,
> > > > > >
> > > > > > Can you walk, talk, or feed yourself ? Kathy Jo
> > > > > >
> > > > > > Kathy Jo Pink
> > > > > > [log in to unmask]
> > > > > > AOL IM ScreenName:  kjptde
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > > > > -----Original Message-----
> > > > > > From: St. John's University Cerebral Palsy List
> > > > > > [mailto:[log in to unmask]]On Behalf Of Tamar Raine
> > > > > > Sent: Friday, September 03, 2004 5:15 PM
> > > > > > To: [log in to unmask]
> > > > > > Subject: Re: Your summer
> > > > > >
> > > > > >
> > > > > > Kathy Jo,
> > > > > > You know I have an average of 5 hours of assistance a day.
Others
> > need
> > > > >
> > > > > more
> > > > >
> > > > > > assistance and yet they have their own apartments. So, you can
do
> > it,
> > > > > > even if they say 24 hour care is too expensive, it is your right
> to
> > > live
> > > > > > where you want to live. The law is called Olmstead, and I know
> that
> > > > > > States are having trouble helping everybody that needs it, but I
> > urge
> > > > you
> > > > > > not to give up. it may take a year. but don't give up.  in the
> > > meantime
> > > > > > there are things you can do, like have somebody teach you about
> > money.
> > > > > >
> > > > > > Mag
> > >
> > > Kathy Jo Pink
> > > [log in to unmask]
> > > AOL IM ScreenName:  kjptde

ATOM RSS1 RSS2