OKAY, Kathy Jo...

What do you mean by guardianship?

Mag

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[log in to unmask]
How can we expect new results if we do what we've always done?
War is outdated for the 21st century!


> [Original Message]
> From: Kathy Jo Pink <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 7/17/2005 10:17:20 AM
> Subject: Re: I'm Back
>
> mag, Mag, MAG,
>
>
>
> NO, I DON'T WANT TO STOP GOING TO CORNERSTONE. (unless I find something
> to do that is different) i DON'T WANT MY PARENTS TO KICK ME OUT . If I
> was to stop going to Cornerstone, come January first, 2006, I will be at
> Cornerstone all of the time and lose my guardianship. No, they don't
> work for Cornerstone or own it. I go to Cornerstone just so they can
> have a break.
>
>
>
> Kathy Jo
>
>
>
>
>
>
>
>
>
> Magenta Raine wrote:
>
> >Kathy Jo,
> >So, stop going to cornerstone! Let your parents kick you out. You want to
> >be on your own anyway... Do they own cornerstone? Do they work for
> >Cornerstone? It sure sounds like your parents have a financial stake in
> >keeping you either at home, or at Cornerstone. Why else would they be so
> >mad about you leaving the day program? They have no right to hold you
back,
> >so, don't let them manipulate you.
> >
> >Mag
> >
> >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >[log in to unmask]
> >How can we expect new results if we do what we've always done?
> >War is outdated for the 21st century!
> >
> >
> >
> >
> >>[Original Message]
> >>From: Kathy Jo Pink <[log in to unmask]>
> >>To: <[log in to unmask]>
> >>Date: 7/16/2005 3:01:03 PM
> >>Subject: I'm Back
> >>
> >>Hello Everybody,
> >>
> >>
> >>
> >>For those who are new or don't remember me. My name is Kathy Jo Pink . I
> >>am a thirty -four year old born with Cerebral Palsy and because of this
> >>I need help eating, going to the bathroom, brushing my teeth, taking a
> >>bath (or a shower), washing my hair, shaving , cutting my nails,
> >>dressing, brushing my hair, etc. Basically I need total care much like
> >>an infant.
> >>
> >>
> >>
> >>I left C-PALSY because I went to an Easter Seals Camp in June. I will be
> >>leaving the list in a month again to go to Camp Courageous of Iowa.
> >>
> >>Are JerkyMovements a characteristic of all cases of Cerebral Palsy?
> >>
> >>I am stillfighting with Independent Living. Last November, I agreed to
> >>go to Cornerstone one day a week (just for Dayservice). That was a BIG
> >>mistake . I said yes because My Mom wanted it and wanted a break and
> >>Cornerstone was building on...well, about a month ago, when I wanted an
> >>assessment for somewhere else, my caseworker said okay and stop going to
> >>Cornerstone. My parents said (after my caseworker left) if you stop
> >>going to Cornerstone , once a week, come the first of the next year, you
> >>will be kicked out of the house and be at Cornerstone permanently and
> >>lose your guardianship. I have been looking in to another options . My
> >>Independent Living Specialist says , "
> >>You are correct, ILR is your local independent living center. However,
> >>our agency which has a personal care services department - unlike other
> >>ILC's - only offers that service in the La Crosse area. One of the
> >>things we do is to help people locate other options for personal care
> >>services or living options. My personal preference is that if a person
> >>has a county case worker, that case worker should be doing that service.
> >>If your case worker needs more resources to help you, I'd be happy to
> >>help in any way I can. But like I said, I prefer you work with your case
> >>worker - She is there to help you. If your case worker is unwilling to
> >>help you, you can let me know and I can assist you with advocating or
> >>helping you find services.
> >>Hope your search is going well. Let me know if you or your case worker
> >>need help." and
> >>
> >>however, what your case manage presents may be the only
> >>options available in your area and for your funding source. If you are
> >>not satisfied, let her know and ask why those are the only options. The
> >>area you live in does not have a lot of options to begin with, so you
> >>may not have much to choose from.Yesterday, I wrote a letter to my
> >>
> >>
> >caseworker, I said As you know, I’m not completely satisfied with
> >
> >
> >>Cornerstone.  Some of the things I like
> >>about it are the  staff and
> >>drivers,  some of the outings and some
> >>of the afternoon activities .  .  Some of the reasons that I don’t like
> >>
> >>
> >are
> >
> >
> >>the morning programming, I am not given a choice what I want to do when
> >>
> >>
> >I’m
> >
> >
> >>there (at dayservice), I don’t like some of the the other clients , I
> >>
> >>
> >don’t
> >
> >
> >>like going to bed early the night before and getting up early.  Is
> >>
> >>
> >Cornerstone my only option for Dayservice
> >
> >
> >>and Respite ?  If so, why?  If it’s my only option, I am going to get
> >>somebody else involved .  How is Room
> >>and Board paid for Residential Services?
> >>The REM assessment is free. Knowing that, can I have a REM Assessment
> >>done and still continue with Cornerstone?
> >>Until I find something else that I like and can afford , I will be
> >>willing to continue with Cornerstone.
> >>Does Unified have a billing number that could be used for personal care?
> >>
> >>
> >>
> >>
> >>
> >>
> >>On the Fourth of July, my Dad  was out spraying in the  P.M. in the back
> >>
> >>pasture.  He had the 4-wheeler and a load of spray spraying.  He was
> >>
> >>going along the ditch line and the 4-wheeler and load tipped over on top
> >>
> >>of him.  He laid for about 20 minutes before he could move and crawled
> >>
> >>out.  He was in so much pain when he finally got back to the house.  He
> >>
> >>said I have to go in.  They x-rayed his back and he has a compression
> >>
> >>fracture.  He compressed the vertebrae.  He is in alot of pain.  They
> >>
> >>gave him four shots and pain pills.  The doctor advised him to stay in
> >>
> >>the hospital over night but he wouldn't.  He must be very careful and
> >>
> >>any change in his condition he must get to the hospital immediately.
He
> >>
> >>
> >has a brace.  If the
> >
> >
> >>pain doean't have of let up, he would have gone to Dubuque (Iowa) to
> >>see a specialist and perhaps surgery .   He went to the doctor and the
> >>
> >>
> >doctor told his do whatver
> >
> >
> >>he wants and stop when it hurts
> >>
> >>
> >>
> >>My Grandmother seems to be doing a lot better!  Since the Tuesday afteer
> >>
> >>Mother's Day, she has had pneumonia , couldn't eat or drink, and kidney
> >>
> >>failure . She was in and out of the hospital three times.
> >>
> >>
> >
> >
> >
> >