Hello,
I too look forward to the day that I can post the results here for 3 very
important reasons:
1) Perhaps we will serve children with cerebral palsy better.
2) Hopefully we will know more about children with cerebral palsy and and
how they feel about themselves.
3) I will have received my PhD. Thus, one journey is complete and the next
will soon start. So I can serve children with disabilities even better as a
clinician, professor, and advocate.
Thank you again,
Greta
>From: Susan Moskowitz <[log in to unmask]>
>Reply-To: "St. John's University Cerebral Palsy List"
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: dissertation research
>Date: Mon, 31 Jan 2005 08:49:53 -0500
>
>Greta,
> You're welcome. As an adult with CP who is also an MSW and who worked
>with both able bodied and disabled children in the past, I am intrigued by
>your research and look forward to the day when you can summarize and post
>your results.
>Susan
>----- Original Message -----
>From: "greta von der luft" <[log in to unmask]>
>To: <[log in to unmask]>
>Sent: Sunday, January 30, 2005 9:10 PM
>Subject: Re: dissertation research
>
>
> > Hello,
> > Thank you very much for your suggestion. I have contacted the moderator
>of
> > the listserv asking for his permission to post a message there as well.
>If
> > you have any other ideas, please let me know.
> > Thank you again,
> > Greta
> >
> > >From: Susan Moskowitz <[log in to unmask]>
> > >Reply-To: "St. John's University Cerebral Palsy List"
> > ><[log in to unmask]>
> > >To: [log in to unmask]
> > >Subject: Re: dissertation research
> > >Date: Sat, 29 Jan 2005 12:19:24 -0500
> > >
> > >Greta,
> > > Although the C-Palsy list does have some subscribers who are
>parents
> > >of
> > >children with cerebral palsy, most of the subscribers are adults who
>have
> > >CP. There is another list called CP Parent which is focused on giving
> > >parents of children with CP a forum to support each other in their
>efforts
> > >to raise their children. Since you are seeking child subjects, with
>very
> > >specific characteristics, I think you might have more success
>recruiting
> > >from the CP Parent list. That list can be found at www.cpparrent.org .
> > >Good luck with your research!
> > >Susan
> > >----- Original Message -----
> > >From: "greta von der luft" <[log in to unmask]>
> > >To: <[log in to unmask]>
> > >Sent: Friday, January 28, 2005 3:03 PM
> > >Subject: dissertation research
> > >
> > >
> > > > Hello,
> > > > My name is Greta von der Luft. I hold master's degrees in physical
>=
> > > > therapy and special education. I have practiced ten years as a
>pediatric
> > >=
> > > > physical therapist. I am now a PhD Candidate at Temple University, =
> > > > Philadelphia, Pennsylvania. I am studying self concept in children
>with
> > >=
> > > > cerebral palsy for my dissertation research to partially fulfill the
>=
> > > > requirements for a PhD. Temple University's Institutional Review
>Board
>=
> > > > (IRB) has approved of my dissertation research. I would like to use
>this
> > >=
> > > > listserv to introduce my research. Additionally, I would like to =
> > > > encourage parents of fifth and sixth grade children with spastic =
> > > > diplegic cerebral palsy and average intelligence who reside in the
>mid
>=
> > > > Atlantic region to contact me to help me with this important
>research
>=
> > > > endeavor. But first, please let me briefly introduce the topic, its
>=
> > > > significance, my research, what I would like parents to do, and how
>I
>=
> > > > will share the results.=20
> > > >
> > > > Introduction: As you know, self concept is how a child views himself
>and
> > >=
> > > > herself and how s/he evaluates his/her capabilities academically =
> > > > (reading, math, general school) and non academically (physical =
> > > > appearance, physical capabilities, social relations with
>parents/peers).
> > >=
> > > > There is much inconclusive research involving children with
>disabilities
> > >=
> > > > due to poor methodology.
> > > >
> > > > Significance: A positive self concept is needed to succeed and have
>=
> > > > positive relationships in the education, health, business, and
>social
>=
> > > > arenas. We do not know if children with cerebral palsy have positive
>or
> > >=
> > > > negative self concepts. Additionally, we do not know if we (health,
>=
> > > > educational, and vocational areas) are serving children with
>cerebral
>=
> > > > palsy in the best method possible which would promote their self =
> > > > concepts or not.
> > > >
> > > > My research: I am trying to fill this need by conducting my
>dissertation
> > >=
> > > > research under the supervision of Temple University's IRB. This will
>be
> > >=
> > > > done by first cross validating the Self Description Questionnaire-I
>=
> > > > (SDQ-I) which is the most valid and reliable tool for use with =
> > > > preadolescent children without disabilities. The cross validation
>will
>=
> > > > involve performing data analysis to find the reliability and
>validity
>of
> > >=
> > > > the tool when it is used with children with CP. If the tool is found
>=
> > > > valid and reliable for use with children with CP, then I will look
>for
>=
> > > > associations between self concept, gender, physical impairment, and
>=
> > > > educational placement.
> > > >
> > > > Parents: I would like parents of fifth and sixth grade children with
>=
> > > > spastic diplegic cerebral palsy and average intelligence to contact
>me
>=
> > > > for more information on the research and to schedule a research
>session
> > >=
> > > > if they are interested. Because of geographic limitations, the
>parents
>=
> > > > need to reside in the Mid Atlantic region as I will need to meet
>with
>=
> > > > them and their child at a place that is convenient for all. The
>research
> > >=
> > > > session would take 30-60 minutes to complete and would involve:
> > > > 1.. introducing the research topic in greater detail=20
> > > > 2.. signing informed consent and informed assent forms=20
> > > > 3.. completing a demographic form that has no identifying
>information
> > >=
> > > > (e.g. gender, race, educational placement)=20
> > > > 4.. interviewing the child using the SDQ-I asking him/her how s/he
>=
> > > > feels about himself/herself academically and nonacademically.=20
> > > > 5.. observing the child move for five minutes to complete a =
> > > > standardized functional assessment tool=20
> > > > 6.. giving the child a nominal gift thanking him/her for his/her =
> > > > participation
> > > > Results: When the study is complete, I will share a group summary of
>the
> > >=
> > > > results
> > > > 1.. With the listserv=20
> > > > 2.. With the parents and children who participated.
> > > > If you would like more information or are interested in this study,
>=
> > > > please contact me.
> > > >
> > > > Contact Information:
> > > > Greta von der Luft
> > > > email [log in to unmask]<mailto:[log in to unmask]> or =
> > > > [log in to unmask]<mailto:[log in to unmask]>.
> > > > phone 610 240 9520=20
> > > >
> > > >
> > > > Thank you so very much for your time and consideration,
> > > >
> > > > Greta von der Luft BS, MSPT, MEd, PhD Candidate
> > > >
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