KJ,
>> Are Jerky Movements a characteristic of all cases of Cerebral Palsy?
No, but they are of some types of CP,
and as some of us have seen, they can become more frequent or pronounced
as we get older.
>> I wanted an assessment for somewhere else, my caseworker said okay
and
>> stop going to Cornerstone.
Why did your caseworker say to stop
going to Cornerstone, when you asked about an assessment for someplace
else?
>>come the first of the next year, you will be kicked out of the house
and
>>be at Cornerstone permanently and lose your guardianship.
Are you your own guardian now, or are
your parents your guardian?
>>our agency which has a personal care services department - unlike
other
>>ILC's - only offers that service in the La Crosse area.
Have you considered the possibility of
moving to LaCrosse?
You had a lot of good questions for your
caseworker; I'd be interested in the answers to more of those questions.
Sorry to hear about your dad's accident.
Janet got a compression fracture of a vertebra, so I've seen how painful
that can be. Luckily, most people recover from them completely. Janet
did.
Glad to hear that your grandmother's
doing better.
Kendall Corbett
Married to Janet for 8 wonderful years on July 26th - a week from
tomorrow [gulp!]
(We got married on the 7th anniversary of the ADA - Lucky 7, and all
that!).
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all
progress depends on the unreasonable man.
-George Bernard Shaw 1856-1950
-----Original Message-----
From: Kathy Jo Pink [mailto:[log in to unmask]]
Sent: Sunday, July 17, 2005 10:16 AM
To: [log in to unmask]
Subject: Re: I'm Back
mag, Mag, MAG,
NO, I DON'T WANT TO STOP GOING TO CORNERSTONE. (unless I find something
to do that is different) i DON'T WANT MY PARENTS TO KICK ME OUT . If I
was to stop going to Cornerstone, come January first, 2006, I will be at
Cornerstone all of the time and lose my guardianship. No, they don't
work for Cornerstone or own it. I go to Cornerstone just so they can
have a break.
Kathy Jo
Magenta Raine wrote:
>Kathy Jo,
>So, stop going to cornerstone! Let your parents kick you out. You want
to
>be on your own anyway... Do they own cornerstone? Do they work for
>Cornerstone? It sure sounds like your parents have a financial stake in
>keeping you either at home, or at Cornerstone. Why else would they be
so
>mad about you leaving the day program? They have no right to hold you
back,
>so, don't let them manipulate you.
>
>Mag
>
>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>[log in to unmask]
>How can we expect new results if we do what we've always done?
>War is outdated for the 21st century!
>
>
>
>
>>[Original Message]
>>From: Kathy Jo Pink <[log in to unmask]>
>>To: <[log in to unmask]>
>>Date: 7/16/2005 3:01:03 PM
>>Subject: I'm Back
>>
>>Hello Everybody,
>>
>>
>>
>>For those who are new or don't remember me. My name is Kathy Jo Pink .
I
>>am a thirty -four year old born with Cerebral Palsy and because of
this
>>I need help eating, going to the bathroom, brushing my teeth, taking a
>>bath (or a shower), washing my hair, shaving , cutting my nails,
>>dressing, brushing my hair, etc. Basically I need total care much like
>>an infant.
>>
>>
>>
>>I left C-PALSY because I went to an Easter Seals Camp in June. I will
be
>>leaving the list in a month again to go to Camp Courageous of Iowa.
>>
>>Are JerkyMovements a characteristic of all cases of Cerebral Palsy?
>>
>>I am stillfighting with Independent Living. Last November, I agreed to
>>go to Cornerstone one day a week (just for Dayservice). That was a BIG
>>mistake . I said yes because My Mom wanted it and wanted a break and
>>Cornerstone was building on...well, about a month ago, when I wanted
an
>>assessment for somewhere else, my caseworker said okay and stop going
to
>>Cornerstone. My parents said (after my caseworker left) if you stop
>>going to Cornerstone , once a week, come the first of the next year,
you
>>will be kicked out of the house and be at Cornerstone permanently and
>>lose your guardianship. I have been looking in to another options . My
>>Independent Living Specialist says , "
>>You are correct, ILR is your local independent living center. However,
>>our agency which has a personal care services department - unlike
other
>>ILC's - only offers that service in the La Crosse area. One of the
>>things we do is to help people locate other options for personal care
>>services or living options. My personal preference is that if a person
>>has a county case worker, that case worker should be doing that
service.
>>If your case worker needs more resources to help you, I'd be happy to
>>help in any way I can. But like I said, I prefer you work with your
case
>>worker - She is there to help you. If your case worker is unwilling to
>>help you, you can let me know and I can assist you with advocating or
>>helping you find services.
>>Hope your search is going well. Let me know if you or your case worker
>>need help." and
>>
>>however, what your case manage presents may be the only
>>options available in your area and for your funding source. If you are
>>not satisfied, let her know and ask why those are the only options.
The
>>area you live in does not have a lot of options to begin with, so you
>>may not have much to choose from.Yesterday, I wrote a letter to my
>>
>>
>caseworker, I said As you know, I'm not completely satisfied with
>
>
>>Cornerstone. Some of the things I like
>>about it are the staff and
>>drivers, some of the outings and some
>>of the afternoon activities . . Some of the reasons that I don't
like
>>
>>
>are
>
>
>>the morning programming, I am not given a choice what I want to do
when
>>
>>
>I'm
>
>
>>there (at dayservice), I don't like some of the the other clients , I
>>
>>
>don't
>
>
>>like going to bed early the night before and getting up early. Is
>>
>>
>Cornerstone my only option for Dayservice
>
>
>>and Respite ? If so, why? If it's my only option, I am going to get
>>somebody else involved . How is Room
>>and Board paid for Residential Services?
>>The REM assessment is free. Knowing that, can I have a REM Assessment
>>done and still continue with Cornerstone?
>>Until I find something else that I like and can afford , I will be
>>willing to continue with Cornerstone.
>>Does Unified have a billing number that could be used for personal
care?
>>
>>
>>
>>
>>
>>
>>On the Fourth of July, my Dad was out spraying in the P.M. in the
back
>>
>>pasture. He had the 4-wheeler and a load of spray spraying. He was
>>
>>going along the ditch line and the 4-wheeler and load tipped over on
top
>>
>>of him. He laid for about 20 minutes before he could move and crawled
>>
>>out. He was in so much pain when he finally got back to the house.
He
>>
>>said I have to go in. They x-rayed his back and he has a compression
>>
>>fracture. He compressed the vertebrae. He is in alot of pain. They
>>
>>gave him four shots and pain pills. The doctor advised him to stay in
>>
>>the hospital over night but he wouldn't. He must be very careful and
>>
>>any change in his condition he must get to the hospital immediately.
He
>>
>>
>has a brace. If the
>
>
>>pain doean't have of let up, he would have gone to Dubuque (Iowa) to
>>see a specialist and perhaps surgery . He went to the doctor and the
>>
>>
>doctor told his do whatver
>
>
>>he wants and stop when it hurts
>>
>>
>>
>>My Grandmother seems to be doing a lot better! Since the Tuesday
afteer
>>
>>Mother's Day, she has had pneumonia , couldn't eat or drink, and
kidney
>>
>>failure . She was in and out of the hospital three times.
>>
>>
>
>
>
>
|
