Rayna,
Thanks much. I hope I help to create well rounded PT's. I will see what I
get in the end...
If anyone else has suggestions, they will be most appreciated as well.
Thank you,
Greta
On 12/13/06, Rayna <[log in to unmask]> wrote:
>
> Hi Greta,
>
> A few years ago I put together a list of books about/by people with
> disabilities for the women with disabilities group I coordinate. I've
> cut and pasted the books from the Auto/Biographical section for you.
> I've been meaning to update it and also add in books about/by men with
> disabilities to make a more general list - but I've been so busy (as
> well as just bone-idle with my do-to list), that I haven't gotten around
> to it yet. I don't know if you'll be able to get hold of the
> Australian/NZ books, but I've left them in there in case anyone else is
> interested.
>
>
> Annie's Coming Out - Rosemary Crossley and Anne McDonald.**
> (Cerebral Palsy - Australian)
>
> Recovering: A Journal - May Sarton
> (Depression)
>
> After the Stroke: A Journal - May Sarton
> (Stroke)
>
> Bird and other Writings on Epilepsy - Susan Hawthorne**
> (Epilepsy - Australian)
>
> Listening: Ways of Hearing in a Silent World - Hannah Merker
> (Hearing Impairment)
>
> Just An Ordinary Kid - Lisa Vasil**
> (Cerebral Palsy - New Zealand)
>
> An Unquiet Mind: A Memoir of Moods and Madness - Kay Redfield Jamison
> (Manic Depression)
>
> Daughter of the Queen of Sheba - Jacki Lynden
> (Manic Depression)
>
> Spasm: A Memoir of Lies - Lauren Slater
> (Epilepsy)
>
> Autobiography of a Face - Lucy Grealy**
> (Facial Disfigurement)
>
>
> I, Alison: Reaching for a Life of My Own - Alison French with Veronica
> Groocock**
> (Cerebral Palsy)
>
>
> An Iranian Odyssey - Gohar Kordi**
> (Vision Impairment)
>
> Somebody Somewhere
> Nobody Nowhere
> Like Color to the Blind - Donna Williams**
> (Autism - Australian)
>
> Rusty - Carol Gino**
> (Epilepsy)
>
> Why Can't Sharon Kowalski Come Home? - Karen Thompson and Julie
> Andrzejewski
> (Acquired Head Injury & Lesbian Issues)
>
> I've **'ed the ones that are definitely have experience of childhood
> disability in them - ie before the age of about 18.
>
> Good luck with the course, it sounds great!
>
> Rayna
>
>
> greta von der luft wrote:
>
> > Hello,
> > I am teaching a pediatrics neuro course to physical therapy students. In
> > order to try to make them more empathetic & understanding (or attempt
> > to if
> > needed), I am in search of a reading list. Specifically, I was
> > wondering if
> > you can recommend any books non fiction, biographical, or
> > autobiographical
> > about children/ adults with disabilities and/or their caregivers. I am
> > not
> > so much looking about books which cover MS (multiple sclerosis), ALS
> (lou
> > gherig's), CVA (stroke) but instead health conditions that are found in
> > children and in adults like CP, MD (muscular dystrophy), SMA (spinal
> > muscular atrophy), TBI (traumatic brain injury) etc. The parental
> > aspect of
> > caring/advocating for a child with a disability would be welcomed as
> > well.
> > So the story could be told from the viewpoint of the individual with a
> > disability or his/her caregiver.
> >
> > Let me assure you that adults with CP will be considered, because
> > children
> > with CP do become adults with CP. The reason why I am steering away
> > from MS,
> > ALS, CVA is because it is a pediatrics course and they already had an
> > adult
> > neuro course.
> >
> > Your suggestions would be greatly appreciated.
> >
> > Please and Thank you,
> >
> > Greta
> >
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