C-PALSY Archives

Cerebral Palsy List

C-PALSY@LISTSERV.ICORS.ORG

Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Show All Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Subject:
From:
Reply To:
St. John's University Cerebral Palsy List
Date:
Sun, 10 Oct 2004 18:04:44 -0400
Content-Type:
text/plain
Parts/Attachments:
text/plain (242 lines)
Will this be a permanent place for you?  What did you think of it?  Do you
have the right to leave if you don't like it?  How many residents are in your
age group?

If this is truely what you want, then I'm happy for you, Kathy Jo.  I hope you
will have a computer and internet connection there.

Kat

On Sunday 10 October 2004 05:33 pm, Kathy Pink wrote:
> First of all, I would like to apologize for the last e-mail I sent
> regarding this topic.  At that time, I just got a hard directory at work to
> work on.
>
>
>
> No, Mag, I'm not going to Cornerstone .  But, However, I am going to a
> local nursing home.  They have a DD (Developmental Disability) Unit.  I was
> there visitvisiting and interviewing (getting ready to beadmitted)
> Thursday.  They said they need help teach me about money.
>
> Kathy Jo
>
>
>
>
>
>
>
>
>
>
>
>
> Date:         Sun, 12 Sep 2004 11:22:28 -0700
>
>
> Reply-To:     [log in to unmask]
>
>
> Sender:       "St. John's University Cerebral Palsy List"
>
>               <[log in to unmask]>
>
>
> From:         Tamar Raine <[log in to unmask]>
>
>
> Subject:      Re: Your summer
>
>
>
> Content-type: text/plain; charset=US-ASCII
>
> Kathy Jo,
> what did the specialist say?  What was the outcome of the meeting?  will
> you be going to cornerstone in October?
>
> Tamar Mag Raine
> [log in to unmask]
> IM: tamarmag48
> Oakland Mayor's Commission on People with disabilities
>
> > [Original Message]
> > From: Kathy Pink <[log in to unmask]>
> > To: <[log in to unmask]>
> > Date: 9/12/2004 11:06:09 AM
> > Subject: Re: Your summer
> >
> > It isn't only my parents that say I can't live alone.  I have a history
> > of hurting myself and others.  My county social worker says I need
> > 24-Hour Care.  I met with The Independent Living Specialist , my social
> > worker,
>
> and
>
> > my parents Thursday.  My parents and my social worker were mad with me
> > because I contacted the Center Of Independent Living.  No two CP Cases
> > are alike.  I can't afford 24-Hour Care.
> >
> >
> >
> > My parents are going to Branson in October and they said I can't stay
> > here because it is their house.  People that worked here have stolen,
> > some
>
> people
>
> > have forgotten , not showed, or they were three hours late.
> >
> >
> > Kathy Jo
> > Kathy Jo Pink
> > [log in to unmask]
> > AOL IM ScreenName:  kjptde
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > -----Original Message-----
> > From: St. John's University Cerebral Palsy List
> > [mailto:[log in to unmask]]On Behalf Of Kathy
> > Sent: Monday, September 06, 2004 8:14 PM
> > To: [log in to unmask]
> > Subject: Re: Your summer
> >
> >
> > He's wrong.  There's assistive technology to help you with such things,
>
> and
>
> > if
> > not that, aides can help you.  What will you do when your parents die?
>
> You
>
> > need to start planning ahead and getting ready to be on your own.
> >
> > Kat
> >
> > On Monday 06 September 2004 8:34 pm, Kathy Pink wrote:
> > > My dad said in order to live independently you have to be able to talk,
> > > walk, or feed yourself and I can't do any.
> > >
> > > Kathy Jo Pink
> > > [log in to unmask]
> > > AOL IM ScreenName:  kjptde
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > -----Original Message-----
> > > From: St. John's University Cerebral Palsy List
> > > [mailto:[log in to unmask]]On Behalf Of Tamar Raine
> > > Sent: Sunday, September 05, 2004 9:51 PM
> > > To: [log in to unmask]
> > > Subject: Re: Your summer
> > >
> > >
> > > I can get in and out of my wheelchair, and I can feed myself, though I
> >
> > need
> >
> > > somebody to cut my food.  and I talk ok, not great, but i can
>
> communicate.
>
> > > But regardless, each of us is different, and please don't compare
>
> yourself
>
> > > to anybody.
> > >
> > > Tamar Mag Raine
> > > [log in to unmask]
> > >
> > > The reasonable man adapts himself to the world; the unreasonable one
> > > persists in trying to adapt the world to himself.
> > > Therefore, all progress depends on the unreasonable man.
> > > -George Bernard Shaw 1856-1950
> > >
> > > IM: tamarmag48
> > > Oakland Mayor's Commission on People with disabilities
> > >
> > > > [Original Message]
> > > > From: Kathy Pink <[log in to unmask]>
> > > > To: <[log in to unmask]>
> > > > Date: 9/5/2004 12:29:23 PM
> > > > Subject: Re: Your summer
> > > >
> > > > Mag,
> > > >
> > > > Can you walk, talk, or feed yourself ? Kathy Jo
> > > >
> > > > Kathy Jo Pink
> > > > [log in to unmask]
> > > > AOL IM ScreenName:  kjptde
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > > -----Original Message-----
> > > > From: St. John's University Cerebral Palsy List
> > > > [mailto:[log in to unmask]]On Behalf Of Tamar Raine
> > > > Sent: Friday, September 03, 2004 5:15 PM
> > > > To: [log in to unmask]
> > > > Subject: Re: Your summer
> > > >
> > > >
> > > > Kathy Jo,
> > > > You know I have an average of 5 hours of assistance a day. Others
> > > > need
> > >
> > > more
> > >
> > > > assistance and yet they have their own apartments. So, you can do it,
> > > > even if they say 24 hour care is too expensive, it is your right to
>
> live
>
> > > > where you want to live. The law is called Olmstead, and I know that
> > > > States are having trouble helping everybody that needs it, but I urge
> >
> > you
> >
> > > > not to give up. it may take a year. but don't give up.  in the
>
> meantime
>
> > > > there are things you can do, like have somebody teach you about
> > > > money.
> > > >
> > > > Mag
>
> Kathy Jo Pink
> [log in to unmask]
> AOL IM ScreenName:  kjptde

ATOM RSS1 RSS2