WOW

Are you going Mag?  I'll be there.  I'll look for you and lets try and
hang out a bit OK?

So see ya soon I hope!!-Gary


On Tue, 14 Sep 2004, Tamar Raine wrote:

> in the first place you can wait until they get back from vacation.
> secondly, as i told you, the difference between IL and SL is simply the
> number of hours of support. for instance at my agency IL is about 5-7 hours
> a week, so obviously, more than that is SL. Some people have a paid
> roommate for the night time, others just have 4 shifts every day and the
> night staff sleeps on a spare bed. I do think you might find SL by looking
> on the web for Wisconsin. (supported living is different than assisted
> living, which is for senior citizens).
>
> Whoever wrote that your staff has the right to be safe from physical harm
> is absolutely correct.
>
> in October there is a Supported Living conference in Sacramento Calif. I
> will see if there is info i can get for you.
>
> why do your parents think you need to train ten people?
>
> Mag
>
> Tamar Mag Raine
> [log in to unmask]
> IM: tamarmag48
> Oakland Mayor's Commission on People with disabilities
>
>
>> [Original Message]
>> From: Kathy Pink <[log in to unmask]>
>> To: <[log in to unmask]>
>> Date: 9/14/2004 10:15:22 AM
>> Subject: Re: Your summer
>>
>> Mag, I don't know if there are any Supported Living Organizations in my
> area
>> or not.  Should I do a Web Search ?  What's the difference between
>> Independent Living and Supported Living?  My parents say it is too close
> to
>> their vacation to hire and train ten people.  (4 weeks)
>>
>>
>>
>> There are three people that I wrote about yesterday to you as far as
>> Cornerstone goes.  I only complained about one.
>>
>>
>>
>> Yesterday, I met with my county nurse.  (We meet every two months.)  She
> was
>> all for Independent Living.  (There are two businesses in my town that
>> provide caseworkers.)  The County Nurse told me that the business that I
> get
>> my caseworker from doesn't support independent living where as the other
> one
>> does.  I used to to get my caseworker from the other agency , I don't know
>> why I was switched.  My parents were complete opposite yesterday.  As they
>> were talking about my own place down the road.  They talked about how
>> expensive it would be.
>>
>>
>>
>> Kathy
>>
>> Kathy Jo Pink
>> [log in to unmask]
>> AOL IM ScreenName:  kjptde
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>> -----Original Message-----
>> From: St. John's University Cerebral Palsy List
>> [mailto:[log in to unmask]]On Behalf Of Tamar Raine
>> Sent: Monday, September 13, 2004 7:35 PM
>> To: [log in to unmask]
>> Subject: Re: Your summer
>>
>>
>> Kathy Jo, are there any supported living organizations in your area? That
>> is what I, and Gary have. We get Supported Living services because we need
>> more hours of help than somebody who is an independent Living client.
> your
>> dept of developmental services may know of an agency and then they could
>> help you move out into your own place. it sounds like your parents are
>> being passive aggressive -- in that they offer you the basement to live
> in,
>> but then they say they don't want anybody in their house while they're
>> gone.
>>
>> If this person at cornerstone is doing those things, they need to move
> that
>> person out! have you complained?
>>
>>
>>
>> Tamar Mag Raine
>> [log in to unmask]
>> IM: tamarmag48
>> Oakland Mayor's Commission on People with disabilities
>>
>>
>>> [Original Message]
>>> From: kat <[log in to unmask]>
>>> To: <[log in to unmask]>
>>> Date: 9/13/2004 3:08:46 PM
>>> Subject: Re: Your summer
>>>
>>> If they are conditions you can't live with - and they do sound pretty
>>> bad indeed - you should have other choices.  Having said that, I'm
>>> afraid that most residental programs have problems such as those you
>>> describe because the care facilities are normally woefully
>>> understaffed.  However even for that situation, you should feel
>>> empowered to complain if you're treated in such a manner by another
>>> resident or staff member.  No one should need to put up with sexual
>>> abuse.
>>>
>>> I'd advise you to document each incidence so you have proof of such
>>> things.  Log them in your laptop, etc. with dates, names and places.
>>>
>>> Kat
>>>
>>> On Mon, 2004-09-13 at 13:55, Kathy Pink wrote:
>>>
>>>> They propose I go to Cornerstone when they are in Branson.  (Yes, it
> is
>>>> Branson, MS that I'm talking about.)  No one in my county gets as much
>> money
>>>> as I do.  I know that is wrong because I know of other people that can
>> have
>>>> 24-Hour Care that are in my county, bit, they are all elderly.
>>>>
>>>>
>>>>
>>>> Some of the reasons that I don't like Cornerstone is because what the
>>>> permanent clients say / do.  This one particular client says "Doctors
>>>> cripple people" and then without my or anybody's permission got in my
>> power
>>>> chair and took off.  When I went to my bedroom for personal time (I
> had
>> my
>>>> own single bedroom.) I shut the door.  This same client came in.  The
>> same
>>>> client salted my food without asking or getting my permission .  This
>> same
>>>> client has accused other people for taking her personnel belongings
>> .Another
>>>> client has asked me if I would go to bed because him and if I would
> love
>>>> him. There is another client that said or did something, but, I don't
>>>> remember what.
>>>>
>>>>
>>>>
>>>> This weekend, I wrote a letter to my case manager asking for a
> different
>>>> respite place .  it will probably be a nursing home or a home for the
>>>> Mentally Retarded.
>>>>
>>>>
>>>>
>>>> Kathy Jo
>>>>
>>>> Kathy Jo Pink
>>>> [log in to unmask]
>>>> AOL IM ScreenName:  kjptde
>>>>
>>>> -----Original Message-----
>>>> From: St. John's University Cerebral Palsy List
>>>> [mailto:[log in to unmask]]On Behalf Of kat
>>>> Sent: Sunday, September 12, 2004 1:59 PM
>>>> To: [log in to unmask]
>>>> Subject: Re: Your summer
>>>>
>>>>
>>>> So what do they propose you do while they're in Branson?  (I assume
>>>> you're talking about Branson, MS).  As for not being able to afford
>>>> 24-hour care, I think the state has to help you get that if that is
> what
>>>> they think you need.
>>>>
>>>> You've said you don't like Cornerstone.  What exactly don't you like
>>>> about Cornerstone?  You know, no matter where you go or what you do,
>>>> there will be rules to follow, things you'll have to do even though
> you
>>>> don't like them.  I live by myself, and I don't particularly like
>>>> getting up early but I do it.  If I don't, I don't get to work on time
>>>> and I'd get fired.
>>>>
>>>> There are trade-offs in any path in life.  It's just a matter of
> finding
>>>> those you can live with.   Now I'll get off my soapbox! :p
>>>>
>>>> Kat
>>>>
>>>> On Sun, 2004-09-12 at 14:05, Kathy Pink wrote:
>>>>
>>>>> It isn't only my parents that say I can't live alone.  I have a
>> history of
>>>>> hurting myself and others.  My county social worker says I need
>> 24-Hour
>>>>> Care.  I met with The Independent Living Specialist , my social
>> worker,
>>>> and
>>>>> my parents Thursday.  My parents and my social worker were mad with
> me
>>>>> because I contacted the Center Of Independent Living.  No two CP
>> Cases are
>>>>> alike.  I can't afford 24-Hour Care.
>>>>>
>>>>>
>>>>>
>>>>> My parents are going to Branson in October and they said I can't
> stay
>> here
>>>>> because it is their house.  People that worked here have stolen,
> some
>>>> people
>>>>> have forgotten , not showed, or they were three hours late.
>>>>>
>>>>>
>>>>> Kathy Jo
>>>>> Kathy Jo Pink
>>>>> [log in to unmask]
>>>>> AOL IM ScreenName:  kjptde
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> -----Original Message-----
>>>>> From: St. John's University Cerebral Palsy List
>>>>> [mailto:[log in to unmask]]On Behalf Of Kathy
>>>>> Sent: Monday, September 06, 2004 8:14 PM
>>>>> To: [log in to unmask]
>>>>> Subject: Re: Your summer
>>>>>
>>>>>
>>>>> He's wrong.  There's assistive technology to help you with such
>> things,
>>>> and
>>>>> if
>>>>> not that, aides can help you.  What will you do when your parents
> die?
>>>> You
>>>>> need to start planning ahead and getting ready to be on your own.
>>>>>
>>>>> Kat
>>>>>
>>>>> On Monday 06 September 2004 8:34 pm, Kathy Pink wrote:
>>>>>> My dad said in order to live independently you have to be able to
>> talk,
>>>>>> walk, or feed yourself and I can't do any.
>>>>>>
>>>>>> Kathy Jo Pink
>>>>>> [log in to unmask]
>>>>>> AOL IM ScreenName:  kjptde
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>> -----Original Message-----
>>>>>> From: St. John's University Cerebral Palsy List
>>>>>> [mailto:[log in to unmask]]On Behalf Of Tamar Raine
>>>>>> Sent: Sunday, September 05, 2004 9:51 PM
>>>>>> To: [log in to unmask]
>>>>>> Subject: Re: Your summer
>>>>>>
>>>>>>
>>>>>> I can get in and out of my wheelchair, and I can feed myself,
>> though I
>>>>> need
>>>>>> somebody to cut my food.  and I talk ok, not great, but i can
>>>> communicate.
>>>>>> But regardless, each of us is different, and please don't compare
>>>> yourself
>>>>>> to anybody.
>>>>>>
>>>>>> Tamar Mag Raine
>>>>>> [log in to unmask]
>>>>>>
>>>>>> The reasonable man adapts himself to the world; the unreasonable
> one
>>>>>> persists in trying to adapt the world to himself.
>>>>>> Therefore, all progress depends on the unreasonable man.
>>>>>> -George Bernard Shaw 1856-1950
>>>>>>
>>>>>> IM: tamarmag48
>>>>>> Oakland Mayor's Commission on People with disabilities
>>>>>>
>>>>>>> [Original Message]
>>>>>>> From: Kathy Pink <[log in to unmask]>
>>>>>>> To: <[log in to unmask]>
>>>>>>> Date: 9/5/2004 12:29:23 PM
>>>>>>> Subject: Re: Your summer
>>>>>>>
>>>>>>> Mag,
>>>>>>>
>>>>>>> Can you walk, talk, or feed yourself ? Kathy Jo
>>>>>>>
>>>>>>> Kathy Jo Pink
>>>>>>> [log in to unmask]
>>>>>>> AOL IM ScreenName:  kjptde
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>> -----Original Message-----
>>>>>>> From: St. John's University Cerebral Palsy List
>>>>>>> [mailto:[log in to unmask]]On Behalf Of Tamar Raine
>>>>>>> Sent: Friday, September 03, 2004 5:15 PM
>>>>>>> To: [log in to unmask]
>>>>>>> Subject: Re: Your summer
>>>>>>>
>>>>>>>
>>>>>>> Kathy Jo,
>>>>>>> You know I have an average of 5 hours of assistance a day.
> Others
>> need
>>>>>>
>>>>>> more
>>>>>>
>>>>>>> assistance and yet they have their own apartments. So, you can
> do
>> it,
>>>>>>> even if they say 24 hour care is too expensive, it is your right
>> to
>>>> live
>>>>>>> where you want to live. The law is called Olmstead, and I know
>> that
>>>>>>> States are having trouble helping everybody that needs it, but I
>> urge
>>>>> you
>>>>>>> not to give up. it may take a year. but don't give up.  in the
>>>> meantime
>>>>>>> there are things you can do, like have somebody teach you about
>> money.
>>>>>>>
>>>>>>> Mag
>