Kathy Jo,
So, stop going to cornerstone! Let your parents kick you out. You want to
be on your own anyway... Do they own cornerstone? Do they work for
Cornerstone? It sure sounds like your parents have a financial stake in
keeping you either at home, or at Cornerstone. Why else would they be so
mad about you leaving the day program? They have no right to hold you back,
so, don't let them manipulate you.

Mag

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How can we expect new results if we do what we've always done?
War is outdated for the 21st century!


> [Original Message]
> From: Kathy Jo Pink <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 7/16/2005 3:01:03 PM
> Subject: I'm Back
>
> Hello Everybody,
>
>
>
> For those who are new or don't remember me. My name is Kathy Jo Pink . I
> am a thirty -four year old born with Cerebral Palsy and because of this
> I need help eating, going to the bathroom, brushing my teeth, taking a
> bath (or a shower), washing my hair, shaving , cutting my nails,
> dressing, brushing my hair, etc. Basically I need total care much like
> an infant.
>
>
>
> I left C-PALSY because I went to an Easter Seals Camp in June. I will be
> leaving the list in a month again to go to Camp Courageous of Iowa.
>
> Are JerkyMovements a characteristic of all cases of Cerebral Palsy?
>
> I am stillfighting with Independent Living. Last November, I agreed to
> go to Cornerstone one day a week (just for Dayservice). That was a BIG
> mistake . I said yes because My Mom wanted it and wanted a break and
> Cornerstone was building on...well, about a month ago, when I wanted an
> assessment for somewhere else, my caseworker said okay and stop going to
> Cornerstone. My parents said (after my caseworker left) if you stop
> going to Cornerstone , once a week, come the first of the next year, you
> will be kicked out of the house and be at Cornerstone permanently and
> lose your guardianship. I have been looking in to another options . My
> Independent Living Specialist says , "
> You are correct, ILR is your local independent living center. However,
> our agency which has a personal care services department - unlike other
> ILC's - only offers that service in the La Crosse area. One of the
> things we do is to help people locate other options for personal care
> services or living options. My personal preference is that if a person
> has a county case worker, that case worker should be doing that service.
> If your case worker needs more resources to help you, I'd be happy to
> help in any way I can. But like I said, I prefer you work with your case
> worker - She is there to help you. If your case worker is unwilling to
> help you, you can let me know and I can assist you with advocating or
> helping you find services.
> Hope your search is going well. Let me know if you or your case worker
> need help." and
>
> however, what your case manage presents may be the only
> options available in your area and for your funding source. If you are
> not satisfied, let her know and ask why those are the only options. The
> area you live in does not have a lot of options to begin with, so you
> may not have much to choose from.Yesterday, I wrote a letter to my
caseworker, I said As you know, I’m not completely satisfied with
> Cornerstone.  Some of the things I like
> about it are the  staff and
> drivers,  some of the outings and some
> of the afternoon activities .  .  Some of the reasons that I don’t like
are
> the morning programming, I am not given a choice what I want to do when
I’m
> there (at dayservice), I don’t like some of the the other clients , I
don’t
> like going to bed early the night before and getting up early.  Is
Cornerstone my only option for Dayservice
> and Respite ?  If so, why?  If it’s my only option, I am going to get
> somebody else involved .  How is Room
> and Board paid for Residential Services?
> The REM assessment is free. Knowing that, can I have a REM Assessment
> done and still continue with Cornerstone?
> Until I find something else that I like and can afford , I will be
> willing to continue with Cornerstone.
> Does Unified have a billing number that could be used for personal care?
>
>
>
>
>
>
> On the Fourth of July, my Dad  was out spraying in the  P.M. in the back
>
> pasture.  He had the 4-wheeler and a load of spray spraying.  He was
>
> going along the ditch line and the 4-wheeler and load tipped over on top
>
> of him.  He laid for about 20 minutes before he could move and crawled
>
> out.  He was in so much pain when he finally got back to the house.  He
>
> said I have to go in.  They x-rayed his back and he has a compression
>
> fracture.  He compressed the vertebrae.  He is in alot of pain.  They
>
> gave him four shots and pain pills.  The doctor advised him to stay in
>
> the hospital over night but he wouldn't.  He must be very careful and
>
> any change in his condition he must get to the hospital immediately.   He
has a brace.  If the
> pain doean't have of let up, he would have gone to Dubuque (Iowa) to
> see a specialist and perhaps surgery .   He went to the doctor and the
doctor told his do whatver
> he wants and stop when it hurts
>
>
>
> My Grandmother seems to be doing a lot better!  Since the Tuesday afteer
>
> Mother's Day, she has had pneumonia , couldn't eat or drink, and kidney
>
> failure . She was in and out of the hospital three times.