We don't have one of those in this town that I know of but my neuro's pretty
good so I'll stick with him. :) He also works with MS and PPS patients, so
he does have a good knowledge of working older disabled patients, which is
more than I could say of my orthopaedist.
Kat
On Sunday 19 June 2005 7:54 am, Elizabeth Thiers wrote:
> Hey Kat,
> I think many people have gotten decent results with a physyiatrist (sp)
> (can you tell my brain is on other things, took three tries to write
> "Hey"). For those who may not know it's a rehab doctor. They seem to be
> able to combine that neurologist/ orthopedist. No true adult cp
> specialists.
>
> Beth t.
>
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]] On Behalf Of Kathy
> Sent: Sunday, June 19, 2005 6:34 AM
> To: [log in to unmask]
> Subject: CP, Vision & Balance (Was: Re: new to list introduction)
>
> I think it's hard for many doctors to realise just how diverse CP symptoms
> are and just how diffuse they are. I've often had to respond to a doctor
> who would blithely say, "This works for my other CP patients" or to one
> who'd say puzzled, "But none of my other CP patients show this" with "Yes,
> but no two CP patients are exactly alike!," which is very true.
>
> Incidentially, that's what my neuro confirmed the other day - since CP is
> the effect of brain damage, and since brain damage is so variable, and
> since our reactions are so individual, you can't neatly classify a CP
> person any more.
> It used to be we were classified as rigid spastics, etc. (that was in my
> childhood, y'see) and then as paraplegic, etc, and now it's being
> recognised that along with those major neuromuscular categories come
> another group of disabilites and previously unnoticed audio and visual
> symptoms that affect balance and motor control. I wonder if the day will
> ever come when a "CP Specialist" is truely a multidisciplinarian and not
> mainly an orthorpaedist or a neurologist, etc.
>
> I don't have problems with my vision as to navigation but since I am
> severely hard of hearing that does affect my balance. You need to check
> all the possiibilities and explore everything to do everything you can.
>
> Kat
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