Merry Meet Fiz,

        My daughter age 18(years), has Right Hemiplegia, one of the most frustrating things when she was small - and not able to speak was - what was it like for her so I could get the right help and make the right accomodations. Once my Witchling could speak, she could help but before then I was in the dark. Amber didn't speak until she was almost 5. I found adults with CP reluctant to talk and wanted you to talk to other parents, and my point was the parents don't have CP, they can tell me what its like to have a child with CP but not what its like to have CP and what really was helpful. Its like asking the husband about what his wife's breast cancer is like - and not person with the cancer. Is this perhaps what your mentoring will accomplish?
        I have never tried to fix her. Only help her be the best she could be. I tried an alternative technique to surgery - e-stim and e-stim assisted pt and was able to never have her surged upon!! When she was about 9 and beginning to do spells - she wanted to do a spell to get rid of the CP. I said - that doesn't work - You have CP for a reason, you may ask to be the best you can be but not to change the basics of who you are. In my view - she is normal( whatever that means!!). Amber has just finished her first year of college, has a nice boyfriend, and we just got back from her dream vacation - A five day stay at Disney World - we went to Blizzard Beach, The Magic Kingdom, MGM Theme Park, Epcot, and The Animal Kingdom. She was in heaven and wants to work there - thru the college program. 
        Welcome to the list!!

                                 Brightest Blessings 
                                     Trisha

> [Original Message]
> From: Felice Tanya Vaiani <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 5/6/2005 10:46:46 PM
> Subject: new member intro and some well-meant comments...
>
> Hi all,
> Miss Felice Vaiani here. I'm 27 from Melbourne
> Australia. Thank Goddess that this is an active list.
> I have had Spastic Ataxic Quadriplegic CP resulting
> from brain trauma after a difficult birth. I am
> training to be a mentor for others with disabilities.
>
> I believe this is a list primarily for adults with CP
> and I am curious as to WHY so many parents on here
> seek 'cures' and 'relief' for their children. With
> -much- reverence to you all, having CP is okay. If
> your kids hurt it is fine to medicate them and seek
> some therapy, but please do not shelter them from the
> experience of being a person proud of having CP. Let
> them revel in it. I know I do and all the therapy in
> the world wouldn't change who I was inside.
>
> Thanks, I hope to find friends (and wise detractors)
> here.
>
> In strength,
> Fiz
>
>
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