I am with you, Kat....it harkens back to when people thought of us as "the
cerebral palsied children"  I brought this issue up previously, I have no
mention of my disabilities in my sig either...  it seems so odd, because if
they stay on a parents group, they are bond to learn what each person has
in the way of a child with cp.   What we have been doing for 20 or 30 years
in getting person-centered language, and then these parents come along and
LABEL  their own kids!   sigh... 

It's true I wrote a poem in the 80's called the cerebral palsy lady, but
it's very empowering... but to label yourself or your own kid "parent to
lisa with athetoid dystonic cp...."   well, there - that's my opinion,  the
parents can take it or leave it.


Mag 

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
[log in to unmask]
Come visit my new store! http://www.cafepress.com/TamarMag
visit my Blog at; http://tamarmag-newsletters.blogspot.com/


> [Original Message]
> From: Kathleen Salkin <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 3/13/2006 6:15:03 PM
> Subject: Re: New to list - intensive suit therapy - hand surgery?
>
> Thanks, Kendall, for amplifying what I was trying to say.  I can see  
> the need for such sigs on a parents' list, but here, where most of us  
> are the CPs, I feel it can be a bit degrading.  I hate having a label  
> slapped on me, and I think such sigs aren't really appropriate here.  
> I see it rather like being in hospital and hearing a doctor refer to  
> you as "the broken leg in Room Four-oh-five." (and yes, that did  
> happen to me, and I was most annoyed at the time!).
>
> Now, that is not to say that I'm going to make a rule and enforce it;  
> that'd be silly.  I'm just voicing my opinion.
>
> Kat
>
> On 13 Mar 2006, at 14:28, Kendall David Corbett wrote:
>
> > I belong to another list for people with hydrocephalus, and there's a
> > mix of people with the condition and parents of kids with hydro, and
> > most people include a brief descriptor of why they're on the list in
> > their siglines.  I think it's kind of nice, because as new people  
> > join,
> > it's kind of like a built in introduction to them.  As folks stay  
> > on the
> > list, they get to know us as individuals, and the sigline  
> > descriptor is
> > not as necessary.
> >
> > I see your point though, Kat; it's kind of like people are still  
> > meeting
> > our (or a child's) disability first.  I just reread my sigline for
> > C-Palsy, and it doesn't mention Janet's or my CP at all.
> >
> > Kendall
> >
> > An unreasonable man (but my wife says that's redundant!)
> >
> > The reasonable man adapts himself to the world; the unreasonable one
> > persists in trying to adapt the world to himself. Therefore, all
> > progress depends on the unreasonable man.
> >
> > -George Bernard Shaw 1856-1950
> >
> > -----Original Message-----
> > From: [log in to unmask] [mailto:[log in to unmask]]
> > Sent: Monday, March 13, 2006 11:59 AM
> > To: [log in to unmask]
> > Subject: Re: New to list - intensive suit therapy - hand surgery?
> >
> > What kind of surgery?
> >
> > And as an aside, what's with the labels all the parents of CPs put in
> > their
> > sigs?  I know y'all have your sigs on the parents' lists, but  
> > frankly I
> > find those a wee bit offensive.  Just my tuppence.
> >
> > Kat
> >
> > Original Message:
> > -----------------
> > From: lynette smilelaughgiggle [log in to unmask]
> > Date: Mon, 13 Mar 2006 12:44:03 -0600
> > To: [log in to unmask]
> > Subject: Re: New to list - intensive suit therapy - hand surgery?
> >
> >
> > Hi All,
> >
> > My son has upper body spasticity and we are looking at surgery on his
> > hands.
> >   Has anyone experienced this with their child?  Cody has a baclofen
> > pump,
> > got us through puberty....still a never ending battle.
> >
> > Blessings,
> > Lynette LaScala, mom to Cody (post near drowning,CP)
> >
> >
> > --------------------------------------------------------------------
> > mail2web - Check your email from the web at
> > http://mail2web.com/ .