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Sender:
"St. John's University Cerebral Palsy List" <[log in to unmask]>
Subject:
From:
Tamar Raine <[log in to unmask]>
Date:
Sun, 19 Jun 2005 11:12:52 -0700
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Wow, kat, how does being hard of hearing affect the balance? Perhaps thhhat
is why I used to fall mostly at night?



~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
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Catch you later!


> [Original Message]
> From: Kathy <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 6/19/2005 4:35:00 AM
> Subject: CP, Vision &  Balance (Was: Re: new to list introduction)
>
> I think it's hard for many doctors to realise just how diverse CP
symptoms are
> and just how diffuse they are.  I've often had to respond to a doctor who
> would blithely say, "This works for my other CP patients" or to one who'd
say
> puzzled, "But none of my other CP patients show this" with "Yes, but no
two
> CP patients are exactly alike!," which is very true.
>
> Incidentially, that's what my neuro confirmed the other day - since CP is
the
> effect of brain damage, and since brain damage is so variable, and since
our
> reactions are so individual, you can't neatly classify a CP person any
more.
> It used to be we were classified as rigid spastics, etc. (that was in my
> childhood, y'see) and then as paraplegic, etc, and now it's being
recognised
> that along with those major neuromuscular categories come another group of
> disabilites and previously unnoticed audio and visual symptoms that affect
> balance and motor control.  I wonder if the day will ever come when a "CP
> Specialist" is truely a multidisciplinarian and not mainly an
orthorpaedist
> or a neurologist, etc.
>
> I don't have problems with my vision as to navigation but since I am
severely
> hard of hearing that does affect my balance.  You need to check all the
> possiibilities and explore everything to do everything you can.
>
> Kat

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