Mag, what is catch 22? Kathy Jo









Magenta Raine wrote:

>Kathy Jo,
>
>Why is your mom taking care of you? You should at least have your own
>helper who is not your mom or dad. That way your mom would not force you to
>go to cornerstone.  The others have all asked very good questions. All
>these years you have being crying "i want to move out, I want my own
>place."  But it will not happen by itself, KJ... I applaud you for at least
>following  up on leads. If  your parents are threatening you, you should
>seek out help from ilc or protection and advocacy, no one should be
>threatening you. But like I said, your mom should NOT be your helper! And
>if she refuses to have somebody comre into her home, you should point out
>that is a catch 22 for you. You're damned if you do, and damned if you
>don't, and  that is not right of your parents  to do that.
>
>Mag
>
>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>[log in to unmask]
>How can we expect new results if we do what we've always done?
>War is outdated for the 21st century!
>
>
>
>
>>[Original Message]
>>From: Kathy Jo Pink <[log in to unmask]>
>>To: <[log in to unmask]>
>>Date: 7/19/2005 11:45:03 AM
>>Subject: Re: I'm Back
>>
>>Sorry, Mag, (For yelling)
>>
>>By guardianship, I mean someone else would make all of my decisions ,
>>handle all of my money, and I couldn't vote in public elections .
>>
>>
>>
>>Kathy Jo
>>
>>
>>
>>
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>>
>>
>>
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>>
>>Magenta Raine wrote:
>>
>>
>>
>>>OKAY, Kathy Jo...
>>>
>>>What do you mean by guardianship?
>>>
>>>Mag
>>>
>>>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>>>[log in to unmask]
>>>How can we expect new results if we do what we've always done?
>>>War is outdated for the 21st century!
>>>
>>>
>>>
>>>
>>>
>>>
>>>>[Original Message]
>>>>From: Kathy Jo Pink <[log in to unmask]>
>>>>To: <[log in to unmask]>
>>>>Date: 7/17/2005 10:17:20 AM
>>>>Subject: Re: I'm Back
>>>>
>>>>mag, Mag, MAG,
>>>>
>>>>
>>>>
>>>>NO, I DON'T WANT TO STOP GOING TO CORNERSTONE. (unless I find something
>>>>to do that is different) i DON'T WANT MY PARENTS TO KICK ME OUT . If I
>>>>was to stop going to Cornerstone, come January first, 2006, I will be at
>>>>Cornerstone all of the time and lose my guardianship. No, they don't
>>>>work for Cornerstone or own it. I go to Cornerstone just so they can
>>>>have a break.
>>>>
>>>>
>>>>
>>>>Kathy Jo
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>Magenta Raine wrote:
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>>Kathy Jo,
>>>>>So, stop going to cornerstone! Let your parents kick you out. You want
>>>>>
>>>>>
>to
>
>
>>>>>be on your own anyway... Do they own cornerstone? Do they work for
>>>>>Cornerstone? It sure sounds like your parents have a financial stake in
>>>>>keeping you either at home, or at Cornerstone. Why else would they be
>>>>>
>>>>>
>so
>
>
>>>>>mad about you leaving the day program? They have no right to hold you
>>>>>
>>>>>
>>>>>
>>>>>
>>>back,
>>>
>>>
>>>
>>>
>>>>>so, don't let them manipulate you.
>>>>>
>>>>>Mag
>>>>>
>>>>>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>>>>>[log in to unmask]
>>>>>How can we expect new results if we do what we've always done?
>>>>>War is outdated for the 21st century!
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>>[Original Message]
>>>>>>From: Kathy Jo Pink <[log in to unmask]>
>>>>>>To: <[log in to unmask]>
>>>>>>Date: 7/16/2005 3:01:03 PM
>>>>>>Subject: I'm Back
>>>>>>
>>>>>>Hello Everybody,
>>>>>>
>>>>>>
>>>>>>
>>>>>>For those who are new or don't remember me. My name is Kathy Jo Pink
>>>>>>
>>>>>>
>. I
>
>
>>>>>>am a thirty -four year old born with Cerebral Palsy and because of
>>>>>>
>>>>>>
>this
>
>
>>>>>>I need help eating, going to the bathroom, brushing my teeth, taking a
>>>>>>bath (or a shower), washing my hair, shaving , cutting my nails,
>>>>>>dressing, brushing my hair, etc. Basically I need total care much like
>>>>>>an infant.
>>>>>>
>>>>>>
>>>>>>
>>>>>>I left C-PALSY because I went to an Easter Seals Camp in June. I will
>>>>>>
>>>>>>
>be
>
>
>>>>>>leaving the list in a month again to go to Camp Courageous of Iowa.
>>>>>>
>>>>>>Are JerkyMovements a characteristic of all cases of Cerebral Palsy?
>>>>>>
>>>>>>I am stillfighting with Independent Living. Last November, I agreed to
>>>>>>go to Cornerstone one day a week (just for Dayservice). That was a BIG
>>>>>>mistake . I said yes because My Mom wanted it and wanted a break and
>>>>>>Cornerstone was building on...well, about a month ago, when I wanted
>>>>>>
>>>>>>
>an
>
>
>>>>>>assessment for somewhere else, my caseworker said okay and stop going
>>>>>>
>>>>>>
>to
>
>
>>>>>>Cornerstone. My parents said (after my caseworker left) if you stop
>>>>>>going to Cornerstone , once a week, come the first of the next year,
>>>>>>
>>>>>>
>you
>
>
>>>>>>will be kicked out of the house and be at Cornerstone permanently and
>>>>>>lose your guardianship. I have been looking in to another options . My
>>>>>>Independent Living Specialist says , "
>>>>>>You are correct, ILR is your local independent living center. However,
>>>>>>our agency which has a personal care services department - unlike
>>>>>>
>>>>>>
>other
>
>
>>>>>>ILC's - only offers that service in the La Crosse area. One of the
>>>>>>things we do is to help people locate other options for personal care
>>>>>>services or living options. My personal preference is that if a person
>>>>>>has a county case worker, that case worker should be doing that
>>>>>>
>>>>>>
>service.
>
>
>>>>>>If your case worker needs more resources to help you, I'd be happy to
>>>>>>help in any way I can. But like I said, I prefer you work with your
>>>>>>
>>>>>>
>case
>
>
>>>>>>worker - She is there to help you. If your case worker is unwilling to
>>>>>>help you, you can let me know and I can assist you with advocating or
>>>>>>helping you find services.
>>>>>>Hope your search is going well. Let me know if you or your case worker
>>>>>>need help." and
>>>>>>
>>>>>>however, what your case manage presents may be the only
>>>>>>options available in your area and for your funding source. If you are
>>>>>>not satisfied, let her know and ask why those are the only options.
>>>>>>
>>>>>>
>The
>
>
>>>>>>area you live in does not have a lot of options to begin with, so you
>>>>>>may not have much to choose from.Yesterday, I wrote a letter to my
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>caseworker, I said As you know, I’m not completely satisfied with
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>>Cornerstone.  Some of the things I like
>>>>>>about it are the  staff and
>>>>>>drivers,  some of the outings and some
>>>>>>of the afternoon activities .  .  Some of the reasons that I don’t
>>>>>>
>>>>>>
>like
>
>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>are
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>>the morning programming, I am not given a choice what I want to do
>>>>>>
>>>>>>
>when
>
>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>I’m
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>>there (at dayservice), I don’t like some of the the other clients , I
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>don’t
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>>like going to bed early the night before and getting up early.  Is
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>Cornerstone my only option for Dayservice
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>>and Respite ?  If so, why?  If it’s my only option, I am going to get
>>>>>>somebody else involved .  How is Room
>>>>>>and Board paid for Residential Services?
>>>>>>The REM assessment is free. Knowing that, can I have a REM Assessment
>>>>>>done and still continue with Cornerstone?
>>>>>>Until I find something else that I like and can afford , I will be
>>>>>>willing to continue with Cornerstone.
>>>>>>Does Unified have a billing number that could be used for personal
>>>>>>
>>>>>>
>care?
>
>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>On the Fourth of July, my Dad  was out spraying in the  P.M. in the
>>>>>>
>>>>>>
>back
>
>
>>>>>>pasture.  He had the 4-wheeler and a load of spray spraying.  He was
>>>>>>
>>>>>>going along the ditch line and the 4-wheeler and load tipped over on
>>>>>>
>>>>>>
>top
>
>
>>>>>>of him.  He laid for about 20 minutes before he could move and crawled
>>>>>>
>>>>>>out.  He was in so much pain when he finally got back to the house.
>>>>>>
>>>>>>
>He
>
>
>>>>>>said I have to go in.  They x-rayed his back and he has a compression
>>>>>>
>>>>>>fracture.  He compressed the vertebrae.  He is in alot of pain.  They
>>>>>>
>>>>>>gave him four shots and pain pills.  The doctor advised him to stay in
>>>>>>
>>>>>>the hospital over night but he wouldn't.  He must be very careful and
>>>>>>
>>>>>>any change in his condition he must get to the hospital immediately.
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>He
>>>
>>>
>>>
>>>
>>>>>>
>>>>>>
>>>>>has a brace.  If the
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>>pain doean't have of let up, he would have gone to Dubuque (Iowa) to
>>>>>>see a specialist and perhaps surgery .   He went to the doctor and the
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>doctor told his do whatver
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>>he wants and stop when it hurts
>>>>>>
>>>>>>
>>>>>>
>>>>>>My Grandmother seems to be doing a lot better!  Since the Tuesday
>>>>>>
>>>>>>
>afteer
>
>
>>>>>>Mother's Day, she has had pneumonia , couldn't eat or drink, and
>>>>>>
>>>>>>
>kidney
>
>
>>>>>>failure . She was in and out of the hospital three times.
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
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