Content-Transfer-Encoding: |
7bit |
Sender: |
|
Subject: |
|
From: |
|
Date: |
Sun, 30 Jan 2005 16:05:25 -0500 |
Content-Type: |
text/plain; charset=us-ascii |
MIME-Version: |
1.0 |
Reply-To: |
|
Parts/Attachments: |
|
|
Regarding research.
As the parent of a child with cerebral palsy, it is
significant to emphasize that I participate in list serves
solely for the sharing of experience with other parents.
Parents sharing with parents is a vital resource that should
not be corrupted from well-meaning clinicians. It is critical
that these list serves be available and comfortable sites for
parents to openly discuss all topics related to a cerebral
palsy without fear of further diagnosis, labelling, judgment,
recrimination, or more unsolicited expertise from clinicians.
For those of us families involved in the service system, we
need a place of safety from further questioning, more
labels, predictions, prognosis, etc. I do not feel it is
appropriate for a clinician to solicit research subjects from
the list serve. There are many places to do this
solicitation. It is important to respect the integrity of
the list serve.
Cynthia Crosby
|
|
|