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Today, for the first time, individuals with Celiac Disease
testified before a Congressional Committee.

Lisa Murphy, and her son, Colin, represented the ACTF before
the House Appropriations Subcommittee on Labor, HHS, and
Education.  They did an outstanding job outlining what celiac
disease is, who it affects, the need for NIDDK to develop a
research plan for CD, as well as the need for greater
physician and patient education.  (The Murphy family, of
Chappaqua, NY, was featured in a Feb. 2004 Parents magazine
article about CD)

The Labor-HHS Subcommittee determines how much money NIH
receives each year. Having individuals with Celiac Disease
provide information about the disease is critical to securing
funding for research.

After hearing the testimony, Subcommittee Chairman, Ralph
Regula (R-OH), asked if food labels were a problem for
celiacs.  Not missing a beat, Lisa offered an mphatic, 'Yes,'
then highlighted problems she has encountered. Rep. Nita
Lowey (D-NY), sponsor of H.R. 3684, the Food Allergen
Labeling and Consumer Protection Act, and member of the
Subcommittee, explained the bill was drafted to help
individuals like Lisa, and Colin.

The celiac community has waited a very long time for this
incredible opportunity.

The American Celiac Task Force is grateful to the entire
Murphy family for graciously agreeing toshare their story,
and for helping to make this historic day possible.

Allison Herwitt
Co-Chair, Legislative Project
American Celiac Task Force
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