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Mon, 17 Feb 1997 02:10:23 -0500
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Holycow, thanks for your well meaning advice. Believe me, I have done my
research, as I have suffered with Wilson's Syndrome since I was 15 years old,
and I am now 41.  I did not "jump into any alternative thyroid treatment"
either.  I am well aware of the case in Florida involving Dr. Wilson and the
death of a patient.  This protocol has risks, just like any other protocol,
and if a patient is not responsible and careful in the titrating of the
thyroid medication, it could be dangerous.
The fact that the Florida Board of Medicine "determined that Wilson was
prescribing a drug that patients didn't need for a condition that they didn't
have", only suggests to me the limited knowledge of the Florida Board of
Medicine.
I do not expect someone that does not suffer from this disorder to
understand.  I also do not wish to debate the issue over and over.  I expect
that very soon someone else will do a double blind study, get published in a
peer review journal and change the protocol slightly, and the medical
community will embrace something that Dr. Wilson tried to convince them of
for several years.  In the meantime, a lot of people suffer.

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