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Date: | Fri, 6 Feb 2004 07:19:47 -0800 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
First and foremost:
Stool testing DOES NOT WORK for celiac. It may
work for other allergies but NOT for diagnosing
celiac disease!
Get a blood draw and have it tested by a lab
that knows what they are looking for. If your
doctor/insuranse will cover using Prometheus
Labs, do that. If not, then have your doctor
check the Prometheus Labs web site for the
right protocols and direct his lab of choise
run those tests.
Second:
If your doctor says: " ... (he)wouldn't be able
to make the diagnosis for celiac disease ... it
can be hard to tell from that test in 2 year
olds." he obviously knows NOTHING about celiac
disease. He needs a quick education on the topic
and you need a better doctor!
Third:
After several blood draws before finally getting
my son diagnosed, my recommendations for easing
the blood-draw fears and pain:
a) insist they use a 'butterfly' needle. It's
extra fine and you feel the 'needle-pinch'
less.
b) Our doctors use a spray that numbs the spot
where they are going to put the needle and
that takes the sensation away.
c) Then your part: engage your two year old by
talking to her, smiling, making faces,
whatever works to distract her from what the
nurse is doing - keep your daughter looking at
you. Get her to grab one of your fingers and
stroke her hand during the draw. Before you
know it, it's over!
Fourth: Lactose intolerance is one of the sysmptoms of
celiac disease as are the loose, smelly bm and
the 'failure to thrive'.
Finally:
If she is diagnosed with celiac, have each member
of your family tested on your next annual
check-up
- or sooner if there are symptoms. The numbers
say
that as many as 1 in 20 relatives of a person
with celiac has celiac. The odds are high enough
to justify the test.
Regards ...
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